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#notdeadyet — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #notdeadyet, aggregated by home.social.

  1. So yeah, I'm still here. I'm trying to get rid of the weight the treatment has given me, unsuccessfully.

    I have no sex drive at all, my body hair has changed, my self image is appalling, my back hurts all the time and my body temperature is out of control. Hot flushes, yay.

    But I'm still here. Fuck cancer.

    #cancer #prostate #stillhere #notdeadyet

  2. Between the three of them, I'm still here

    Chemotherapy is awful.
    The injections for the testosterone suppression are awful.
    The side effects of both are awful.

    But I'm still here. If I'd had no symptoms, I wouldn't be. Pretty stark.

    As is seeing the box for "palliative treatment, not curable" ticked on your treatment consent form.

    #cancer #prostate #stillhere #notdeadyet

  3. ... And thus started a load of clinical investigations, which showed that I had a very enlarged prostate (the size of an orange), I didn't have intrusions into my bladder or bowel, but I did have masses in my lymph system. Big masses. Serious, life threatening masses.

    But! Nothing in my bones, unlike Sir Chris Hoy. So no radiotherapy.

    However, it did mean:
    * Testosterone suppression
    * Chemotherapy
    * Tablets for the rest of my life

    #cancer #prostate #stillhere #notdeadyet

  4. One year to the day since I got told of a numeric result of a blood test, initially with no context.

    "1206", I was told, "that's higher than usual". When I asked what usual was, "anything over 5 is problematic".

    The units were ng/ml, of a compound called PSA. Prostate Specific Antigen.

    When asked what that meant, the reply was "that almost certainly means advanced metastatic prostate cancer".

    Oh. Crap.

    #cancer #prostate #stillhere #notdeadyet

  5. #gettingbettereveryday
    .
    #NotDeadYet
    .
    I have been going through it lately (last 2 years) and am finally starting to tread Water.

    Going to be dropping a #newpodcast #newpod #new #podcast on #mentalhealth & #Trauma / #TraumaHealing in the next little bit.

    #StayTuned

    As well as an update on my current #Organizing #webdesign #activism & #life updates.

    Full & #free #articles/poetry will be posted to #mywebsite #first and then to #substack & other platforms afterwards.

    All of my #writing #poetry will never be behind a #paywall

    **PRRIOD**

    It will always be available on a #paywhatyouwant #ifyouwant

    #agender #traumarecovery #beyourbestself #recovery

  6. I tried NOT DEAD YET (2023) on Hulu and I'm in.

    Turns out producer Casey Johnson produced a bunch of shows I love. She worked on Mr. Sunshine, Breaking In, Guys With Kids, Don't Trust the B in Apartment 23, Trophy Wife and other things I should check out.

    #NotDeadYet #Hulu #CaseyJohnson #ginarodriguez #hannahsimone #mrsunshine #donttrustthebinapartment23 #trophywife #breakingin #cosotv

  7. It's been nearly four years since "Jane the Virgin's" finale, and Gina Rodriguez is finally back on network TV with "Not Dead Yet." She told us why she waited for the right script to come along.

    hollywoodoutbreak.com/2023/02/

    #GinaRodriguez #JanetheVirgin #NotDeadYet #TV #TVNews #television #entertainment