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#necrotizingenterocolitis — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #necrotizingenterocolitis, aggregated by home.social.

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  1. Today is #FNDAwareness Day. Not unlike long term outcomes of #necrotizingenterocolitis, if patients want to find a cure or proper treatment for FND, we have to share our experiences, raise awareness, & hope we can inspire others to share. I am finding ways to manage, but what I really need is access to help so I can have the future every young person deserves.

    #functionalneurologicaldisorder #raredisorder #neurologicaldisorder

  2. I’m thrilled to share that #MadameNoire has published a #necrotizingenterocolitis piece I worked on in collaboration with the #NationalBirthEquityCollaboration’s Susan Perez & Afua Nyame-Mireku!

    The article discusses surviving #necrotizing enterocolitis, understanding my mom’s experience with the healthcare system as I began to navigate it myself as a #Black female #raredisease patient, and NEC’s disproportionate impact on Black infants.

    #blackmastodon #equity #health

    madamenoire.com/1327729/nec-ne

  3. I’m thrilled to share that #MadameNoire has published a #necrotizingenterocolitis piece I worked on in collaboration with the #NationalBirthEquityCollaboration’s Susan Perez & Afua Nyame-Mireku!

    The article discusses surviving #necrotizing enterocolitis, understanding my mom’s experience with the healthcare system as I began to navigate it myself as a #Black female #raredisease patient, and NEC’s disproportionate impact on Black infants.

    #blackmastodon #equity #health

    madamenoire.com/1327729/nec-ne

  4. I’m thrilled to share that #MadameNoire has published a #necrotizingenterocolitis piece I worked on in collaboration with the #NationalBirthEquityCollaboration’s Susan Perez & Afua Nyame-Mireku!

    The article discusses surviving #necrotizing enterocolitis, understanding my mom’s experience with the healthcare system as I began to navigate it myself as a #Black female #raredisease patient, and NEC’s disproportionate impact on Black infants.

    #blackmastodon #equity #health

    madamenoire.com/1327729/nec-ne

  5. I’m thrilled to share that #MadameNoire has published a #necrotizingenterocolitis piece I worked on in collaboration with the #NationalBirthEquityCollaboration’s Susan Perez & Afua Nyame-Mireku!

    The article discusses surviving #necrotizing enterocolitis, understanding my mom’s experience with the healthcare system as I began to navigate it myself as a #Black female #raredisease patient, and NEC’s disproportionate impact on Black infants.

    #blackmastodon #equity #health

    madamenoire.com/1327729/nec-ne

  6. I’m thrilled to share that #MadameNoire has published a #necrotizingenterocolitis piece I worked on in collaboration with the #NationalBirthEquityCollaboration’s Susan Perez & Afua Nyame-Mireku!

    The article discusses surviving #necrotizing enterocolitis, understanding my mom’s experience with the healthcare system as I began to navigate it myself as a #Black female #raredisease patient, and NEC’s disproportionate impact on Black infants.

    #blackmastodon #equity #health

    madamenoire.com/1327729/nec-ne

  7. Hello! After jumping the Titanic, I thought I’d introduce myself here: I’m Linseigh, a rare disease activist, actor, singer, & storyteller. Originally from GA, I used to live in NY and Cambridge and now live in London, where I try to convince locals that US biscuits aren’t scones.

    I mainly talk about: #writing #raredisease #necrotizingenterocolitis #politics #immersive #performance #disability #xr #random etc.

    This #news feature summarizes me pretty well: fox5atlanta.com/news/georgia-g

  8. Hello! After jumping the Titanic, I thought I’d introduce myself here: I’m Linseigh, a rare disease activist, actor, singer, & storyteller. Originally from GA, I used to live in NY and Cambridge and now live in London, where I try to convince locals that US biscuits aren’t scones.

    I mainly talk about: #writing #raredisease #necrotizingenterocolitis #politics #immersive #performance #disability #xr #random etc.

    This #news feature summarizes me pretty well: fox5atlanta.com/news/georgia-g

  9. Hello! After jumping the Titanic, I thought I’d introduce myself here: I’m Linseigh, a rare disease activist, actor, singer, & storyteller. Originally from GA, I used to live in NY and Cambridge and now live in London, where I try to convince locals that US biscuits aren’t scones.

    I mainly talk about: #writing #raredisease #necrotizingenterocolitis #politics #immersive #performance #disability #xr #random etc.

    This #news feature summarizes me pretty well: fox5atlanta.com/news/georgia-g

  10. Hello! After jumping the Titanic, I thought I’d introduce myself here: I’m Linseigh, a rare disease activist, actor, singer, & storyteller. Originally from GA, I used to live in NY and Cambridge and now live in London, where I try to convince locals that US biscuits aren’t scones.

    I mainly talk about: #writing #raredisease #necrotizingenterocolitis #politics #immersive #performance #disability #xr #random etc.

    This #news feature summarizes me pretty well: fox5atlanta.com/news/georgia-g

  11. Hello! After jumping the Titanic, I thought I’d introduce myself here: I’m Linseigh, a rare disease activist, actor, singer, & storyteller. Originally from GA, I used to live in NY and Cambridge and now live in London, where I try to convince locals that US biscuits aren’t scones.

    I mainly talk about: #writing #raredisease #necrotizingenterocolitis #politics #immersive #performance #disability #xr #random etc.

    This #news feature summarizes me pretty well: fox5atlanta.com/news/georgia-g