#myhealthrecord — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #myhealthrecord, aggregated by home.social.
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If RFK Jr was Australian, he’d already have most of his register, in the form of #MyHealthRecord. https://www.theguardian.com/us-news/2025/apr/22/rfk-jr-autism-nih
Australia already has a register of autistic people who haven’t opted out from MHR record keeping. Virtually any other diagnosis for anything else, too. Big treasure trove of data kept by the Australian government for any purpose they choose, including any purpose they haven’t legislated *yet*.
We’re literally already there.
As is often the case, we spend a lot of time pointing hilariously at the USA and commenting about how stupid/oppressive/authoritarian they‘ve become, but we lack the self-consciousness to see that we’re worse.
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The Australian Government has a central digital records system called My Health Record.
Anyone in the medical system have an intelligible take as to if this is worth the privacy costs to be sharing health info into a central health record.
Im weighing up the benefits of "medical staff being able to access my records in a time of high need" vs future versions of the state using this information to discriminate / make decisions in the background that are not in the individuals benefit.
#MyHealthRecord #DigitalHealth #MedicalRecords #Australia #AustralianGovernment #AusPol #Doctor #AustralianHospitals #AustralianDoctors #AustralianNurses #Health
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The Australian Government has a central digital records system called My Health Record.
Anyone in the medical system have an intelligible take as to if this is worth the privacy costs to be sharing health info into a central health record.
Im weighing up the benefits of "medical staff being able to access my records in a time of high need" vs future versions of the state using this information to discriminate / make decisions in the background that are not in the individuals benefit.
#MyHealthRecord #DigitalHealth #MedicalRecords #Australia #AustralianGovernment #AusPol #Doctor #AustralianHospitals #AustralianDoctors #AustralianNurses #Health
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The Australian Government has a central digital records system called My Health Record.
Anyone in the medical system have an intelligible take as to if this is worth the privacy costs to be sharing health info into a central health record.
Im weighing up the benefits of "medical staff being able to access my records in a time of high need" vs future versions of the state using this information to discriminate / make decisions in the background that are not in the individuals benefit.
#MyHealthRecord #DigitalHealth #MedicalRecords #Australia #AustralianGovernment #AusPol #Doctor #AustralianHospitals #AustralianDoctors #AustralianNurses #Health
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The Australian Government has a central digital records system called My Health Record.
Anyone in the medical system have an intelligible take as to if this is worth the privacy costs to be sharing health info into a central health record.
Im weighing up the benefits of "medical staff being able to access my records in a time of high need" vs future versions of the state using this information to discriminate / make decisions in the background that are not in the individuals benefit.
#MyHealthRecord #DigitalHealth #MedicalRecords #Australia #AustralianGovernment #AusPol #Doctor #AustralianHospitals #AustralianDoctors #AustralianNurses #Health
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The Australian Government has a central digital records system called My Health Record.
Anyone in the medical system have an intelligible take as to if this is worth the privacy costs to be sharing health info into a central health record.
Im weighing up the benefits of "medical staff being able to access my records in a time of high need" vs future versions of the state using this information to discriminate / make decisions in the background that are not in the individuals benefit.
#MyHealthRecord #DigitalHealth #MedicalRecords #Australia #AustralianGovernment #AusPol #Doctor #AustralianHospitals #AustralianDoctors #AustralianNurses #Health
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Funny these #myhealthrecord signs don’t appear to present a choice
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Got my opt out confirmation from #MyHealthRecord. Have you yet?
Consumer is a weird title to use imo
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« Chronic care patients are being forced to have My Health Records to access the government's Health Care Homes program, raising ethical questions and concerns about discrimination: http://bit.ly/2Kjk3Vn #MyHealthRecord https://t.co/FCRfIbW2nU »
— Retweet https://twitter.com/HealthITNewsAU/status/1025277422256574464
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Suddenly #MyHealthRecord is neither opt-in or opt-out, but mandatory if you need government support. This is a horrendous over reach by authorities. https://t.co/qFMTllFU12
« Chronic care patients are being forced to have My Health Records to access the government's Health Care Homes program, raising ethical questions and concerns about discrimination: http://bit.ly/2Kjk3Vn #MyHealthRecord https://t.co/FCRfIbW2nU »
— Retweet https://twitter.com/HealthITNewsAU/status/1025277422256574464
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« Oh wow. #MyHealthRecord uses ADOBE FLASH for their 'secure' @MyHealthRec Provider Portal training.
@AuDigitalHealth, making users install/enable a plugin that ASD tells everyone to block/uninstall, because riddled with security holes. cc @CyberGovAU.
— Retweet https://twitter.com/dlmetcalf/status/1025324066004029440
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« @trentyarwood @jpwarren But they did do a study into the safety of #MyHealthRecord. I found it 38 pages into a google dork at 2am last night https://twitter.com/asher_wolf/status/1023227422466961409?s=21 »
— Retweet https://twitter.com/Asher_Wolf/status/1023399727218360320
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« Astonishing. Mark Burgess, chief of the Australian Police Federation representing more than 60k police officers, has called on the Turnbull government to urgently legislate to outlaw investigators from accessing the #MyHealthRecord system without a warrant https://www.theaustralian.com.au/national-affairs/access-to-my-health-records-too-easy-police-say/news-story/8844b6d2b50f995315bba7c06014e55f »
— Retweet https://twitter.com/Asher_Wolf/status/1022492365804593153
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« @Info_Aus I agree. I am a GP, and I have accessed #MyHealthRecord a handful of times in several years. It is a mess of information, with no guarantee of accuracy or completeness. I think #MHR is more about ‘big data’ than patient care. »
— Retweet https://twitter.com/needlestix/status/1022839492112080897
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« I've opted out of #MyHealthRecord. Until I can explicitly allow access when requested, with an exception for medical emergencies, I'm not interested. »
— Retweet https://twitter.com/jasonetheridge/status/1022964072986210305
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My doctor's surgery just sent out a #MyHealthRecord info update by SMS. I wonder if recent coverage has prompted them? They make it clear this is not a practice initiative. https://t.co/gFAMmNL98W
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den mist mit #MyHealthRecord werden wir in DE auch haben, falls sich @jensspahn mit seinen vorstellungen zur elektronischen patientenakte durchsetzen sollte. #eGK
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« We've identified numerous issues with the #MyHealthRecord system. If you've encountered any, we're keen to hear your experiences. Get in touch today as we lobby for the system to become accessible. #MyHealth #OptOut #Accessibility http://bit.ly/2A8LaCE »
— Retweet https://twitter.com/visionaustralia/status/1021960988516671493
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« Not sure what to do about #MyHealthRecord - neither was I and I’m a doctor! After much deliberation I‘ve opted out - this is why http://kidocs.org/2018/07/why-i-am-opting-out-of-myhealthrecord-for-now/ »
— Retweet https://twitter.com/KangarooBeach/status/1020591708793262081
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« I guess the fact that #MyHealthRecord data is retained for 30 years after you die is a bit of a clue that it's not really about better health outcomes for you.
No amount of well collated data is going to help you when you're dead. »— Retweet https://twitter.com/OzBigLew/status/1020603366102032390
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« In 2016-17 the @OAICgov received numerous data breach notifications about #MyHealthRecord https://www.oaic.gov.au/about-us/corporate-information/annual-reports/ehealth-and-hi-act-annual-reports/annual-report-of-the-australian-information-commissioner-s-activities-in-relation-to-digital-health-2016-17#part-3-oaic-and-the-my-health-record-system https://t.co/e1wD3SnBKM »
— Retweet https://twitter.com/Asher_Wolf/status/1020807253249568768
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« @InsidersABC @vanOnselenP Officially opted out of #MyHealthRecord
Once thought it was a great idea, but contempt, loathing & mistrust of Turnbull Government & its incursion into personal privacy, leads me to have grave concerns it will abuse all public records volunteered to its captive agencies #insiders »— Retweet https://twitter.com/AnodyneParadigm/status/1020796564200013824
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« NIB's Fitzgibbon is unable to hide the drool dripping from his chin at the prospect of getting a look at your #MyHealthRecord https://www.smh.com.au/business/consumer-affairs/we-desperately-need-this-data-nib-boss-wants-members-digital-health-records-20180719-p4zsha.html »
— Retweet https://twitter.com/jpwarren/status/1020502530269200384
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« @noplaceforsheep Eight years ago I remember thinking that a digital medical record could be an extremely useful tool on a practical every day health management level. Now the thought terrifies me. I opted out. This is where our government trust level is at. It's more worrying than #myhealthrecord »
— Retweet https://twitter.com/evolvewrite/status/1020298101850951680
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« Quite easily, *this* is the most compelling of all reasons as to why #MyHealthRecord is potentially dangerous. Overall it’s a great idea, but it needs to be both FAILSAFE and doctor/patient-private, and shouldn’t be used until the gov proves that it is. https://twitter.com/dccharron/status/1018701264547270656 »
— Retweet https://twitter.com/HappyNacho73/status/1019035106504105985
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« Quite easily, *this* is the most compelling of all reasons as to why #MyHealthRecord is potentially dangerous. Overall it’s a great idea, but it needs to be both FAILSAFE and doctor/patient-private, and shouldn’t be used until the gov proves that it is. https://twitter.com/dccharron/status/1018701264547270656 »
— Retweet https://twitter.com/HappyNacho73/status/1019035106504105985
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« $50k for 200 keystrokes per quarter on ePIP. #MyHealthRecord http://medicalrepublic.com.au/earn-50k-200-keystrokes-per-quarter-love-epip/4657 »
— Retweet https://twitter.com/Asher_Wolf/status/1019020144440369152
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« $50k for 200 keystrokes per quarter on ePIP. #MyHealthRecord http://medicalrepublic.com.au/earn-50k-200-keystrokes-per-quarter-love-epip/4657 »
— Retweet https://twitter.com/Asher_Wolf/status/1019020144440369152