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#myalgicencephalomyeltis — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #myalgicencephalomyeltis, aggregated by home.social.

  1. @tomkindlon I disagree with pts. 2 & 5. Having #SevereME I do very much #suffer with/from #MyalgicEncephalomyeltis. #NICE use the term ‘mild’ however infuriating - using different terminology is not necessarily helpful. In this case ref. to #NG206 / #NICE classification &/or the caveat re 50% loss of function ought to be included in articles.

  2. 2/

    “Now, more than ever, we need a robust health system with well-paid staff, and a new focus on the research and treatment of post-viral illness.

    Not as a psychosomatic phenomenon, but as a severely disabling physical disease that can and does kill people.”

    #myalgicencephalomyeltis #ChronicFatigueSyndrome #PostViral #PostViralIllness #postviralsequelae #PostViralSyndrome #LongCovid @longcovid