#longtermillness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #longtermillness, aggregated by home.social.
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4/
“It’s almost impossible, but remember to take care of yourself, too. You won’t be any use to the person(s) you’re taking care of if you crash or worsen.”
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4/
“It’s almost impossible, but remember to take care of yourself, too. You won’t be any use to the person(s) you’re taking care of if you crash or worsen.”
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4/
“It’s almost impossible, but remember to take care of yourself, too. You won’t be any use to the person(s) you’re taking care of if you crash or worsen.”
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4/
“It’s almost impossible, but remember to take care of yourself, too. You won’t be any use to the person(s) you’re taking care of if you crash or worsen.”
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4/
“It’s almost impossible, but remember to take care of yourself, too. You won’t be any use to the person(s) you’re taking care of if you crash or worsen.”
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8/
“Sloan’s study similarly found higher rates of healthcare avoidance and of underreporting symptoms “from distrust and fear that symptoms would be disbelieved and misattributed again,” the researchers wrote.”#neisvoid #longtermdisease #longtermillness
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
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8/
“Sloan’s study similarly found higher rates of healthcare avoidance and of underreporting symptoms “from distrust and fear that symptoms would be disbelieved and misattributed again,” the researchers wrote.”#neisvoid #longtermdisease #longtermillness
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
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8/
“Sloan’s study similarly found higher rates of healthcare avoidance and of underreporting symptoms “from distrust and fear that symptoms would be disbelieved and misattributed again,” the researchers wrote.”#neisvoid #longtermdisease #longtermillness
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
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8/
“Sloan’s study similarly found higher rates of healthcare avoidance and of underreporting symptoms “from distrust and fear that symptoms would be disbelieved and misattributed again,” the researchers wrote.”#neisvoid #longtermdisease #longtermillness
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
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8/
“Sloan’s study similarly found higher rates of healthcare avoidance and of underreporting symptoms “from distrust and fear that symptoms would be disbelieved and misattributed again,” the researchers wrote.”#neisvoid #longtermdisease #longtermillness
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
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6/
“Preparing Information for your Doctor Appointment - Template”
https://emerge.org.au/wp-content/uploads/2023/12/Preparing-for-your-Drs-appointment-template.pdf
#chronicallyill #longtermillness #mecfs #spoonies
@mecfs @chronicillness @spoonies @fibromyalgia #fibromyalgia #pots @pots #chronicillness -
6/
“Preparing Information for your Doctor Appointment - Template”
https://emerge.org.au/wp-content/uploads/2023/12/Preparing-for-your-Drs-appointment-template.pdf
#chronicallyill #longtermillness #mecfs #spoonies
@mecfs @chronicillness @spoonies @fibromyalgia #fibromyalgia #pots @pots #chronicillness -
6/
“Preparing Information for your Doctor Appointment - Template”
https://emerge.org.au/wp-content/uploads/2023/12/Preparing-for-your-Drs-appointment-template.pdf
#chronicallyill #longtermillness #mecfs #spoonies
@mecfs @chronicillness @spoonies @fibromyalgia #fibromyalgia #pots @pots #chronicillness -
6/
“Preparing Information for your Doctor Appointment - Template”
https://emerge.org.au/wp-content/uploads/2023/12/Preparing-for-your-Drs-appointment-template.pdf
#chronicallyill #longtermillness #mecfs #spoonies
@mecfs @chronicillness @spoonies @fibromyalgia #fibromyalgia #pots @pots #chronicillness -
6/
“Preparing Information for your Doctor Appointment - Template”
https://emerge.org.au/wp-content/uploads/2023/12/Preparing-for-your-Drs-appointment-template.pdf
#chronicallyill #longtermillness #mecfs #spoonies
@mecfs @chronicillness @spoonies @fibromyalgia #fibromyalgia #pots @pots #chronicillness -
Today is #LongCovidAwarenessDay.
In the lack of having a good macroblog or similar, I tried to publish it on my Friendica.
I reposted it here, so you might get it double? Not sure how a Friendica post-share actually shows in this system (if it gets cropped or not?) so thats why I did the double share.
#postcovid
#longcovid
#longtermillness
#disabiliity
#longcovidawarenesshttps://friendica.world/display/84b6ef2b-2067-d5db-1b65-b90155356905
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Today is #LongCovidAwarenessDay.
In the lack of having a good macroblog or similar, I tried to publish it on my Friendica.
I reposted it here, so you might get it double? Not sure how a Friendica post-share actually shows in this system (if it gets cropped or not?) so thats why I did the double share.
#postcovid
#longcovid
#longtermillness
#disabiliity
#longcovidawarenesshttps://friendica.world/display/84b6ef2b-2067-d5db-1b65-b90155356905
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Today is #LongCovidAwarenessDay.
In the lack of having a good macroblog or similar, I tried to publish it on my Friendica.
I reposted it here, so you might get it double? Not sure how a Friendica post-share actually shows in this system (if it gets cropped or not?) so thats why I did the double share.
#postcovid
#longcovid
#longtermillness
#disabiliity
#longcovidawarenesshttps://friendica.world/display/84b6ef2b-2067-d5db-1b65-b90155356905
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Today is #LongCovidAwarenessDay.
In the lack of having a good macroblog or similar, I tried to publish it on my Friendica.
I reposted it here, so you might get it double? Not sure how a Friendica post-share actually shows in this system (if it gets cropped or not?) so thats why I did the double share.
#postcovid
#longcovid
#longtermillness
#disabiliity
#longcovidawarenesshttps://friendica.world/display/84b6ef2b-2067-d5db-1b65-b90155356905
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10/
“The problematic conversations that transpire between clinicians and patients often involve specific words and phrases—termed the “never-words [6]”—that can leave patients feeling upset, angry, fearful, confused, and demoralized”#LongTermIllness #chronicallyill
@mecfs @longcovid @chronicillness #mecfs #longcovid -
10/
“The problematic conversations that transpire between clinicians and patients often involve specific words and phrases—termed the “never-words [6]”—that can leave patients feeling upset, angry, fearful, confused, and demoralized”#LongTermIllness #chronicallyill
@mecfs @longcovid @chronicillness #mecfs #longcovid -
10/
“The problematic conversations that transpire between clinicians and patients often involve specific words and phrases—termed the “never-words [6]”—that can leave patients feeling upset, angry, fearful, confused, and demoralized”#LongTermIllness #chronicallyill
@mecfs @longcovid @chronicillness #mecfs #longcovid -
10/
“The problematic conversations that transpire between clinicians and patients often involve specific words and phrases—termed the “never-words [6]”—that can leave patients feeling upset, angry, fearful, confused, and demoralized”#LongTermIllness #chronicallyill
@mecfs @longcovid @chronicillness #mecfs #longcovid -
10/
“The problematic conversations that transpire between clinicians and patients often involve specific words and phrases—termed the “never-words [6]”—that can leave patients feeling upset, angry, fearful, confused, and demoralized”#LongTermIllness #chronicallyill
@mecfs @longcovid @chronicillness #mecfs #longcovid -
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2. When You Need to Cancel or Change Plans
3. When You’re Unable to Keep Up With Your Kids
4. When You Depend on Others and Feel Like a ‘Burden’
5. When You’re Unable to Work and Contribute Financially to Your Family
#spoonie #longtermillness #chronicdiseases
@mecfs @longcovid @chronicillness @spoonies @disability @fibromyalgia @pots -
2/
2. When You Need to Cancel or Change Plans
3. When You’re Unable to Keep Up With Your Kids
4. When You Depend on Others and Feel Like a ‘Burden’
5. When You’re Unable to Work and Contribute Financially to Your Family
#spoonie #longtermillness #chronicdiseases
@mecfs @longcovid @chronicillness @spoonies @disability @fibromyalgia @pots -
2/
2. When You Need to Cancel or Change Plans
3. When You’re Unable to Keep Up With Your Kids
4. When You Depend on Others and Feel Like a ‘Burden’
5. When You’re Unable to Work and Contribute Financially to Your Family
#spoonie #longtermillness #chronicdiseases
@mecfs @longcovid @chronicillness @spoonies @disability @fibromyalgia @pots -
2/
2. When You Need to Cancel or Change Plans
3. When You’re Unable to Keep Up With Your Kids
4. When You Depend on Others and Feel Like a ‘Burden’
5. When You’re Unable to Work and Contribute Financially to Your Family
#spoonie #longtermillness #chronicdiseases
@mecfs @longcovid @chronicillness @spoonies @disability @fibromyalgia @pots -
2/
2. When You Need to Cancel or Change Plans
3. When You’re Unable to Keep Up With Your Kids
4. When You Depend on Others and Feel Like a ‘Burden’
5. When You’re Unable to Work and Contribute Financially to Your Family
#spoonie #longtermillness #chronicdiseases
@mecfs @longcovid @chronicillness @spoonies @disability @fibromyalgia @pots -
5/
“Focus on what is within your control
Many aspects of an incurable chronic illness are outside your control, and that can feel overwhelming. Find the things that are within your control and try to focus on those. (contd)”
#chronicallyill #longtermillness #chronicillness #chroniclife @mecfs
#MEcfs #CFS #PwME #LongCovid @longcovid @chronicillness
@spoonies
@disability
@fibromyalgia
#Fibromyalgia #Fibro #FM #POTS -
5/
“Focus on what is within your control
Many aspects of an incurable chronic illness are outside your control, and that can feel overwhelming. Find the things that are within your control and try to focus on those. (contd)”
#chronicallyill #longtermillness #chronicillness #chroniclife @mecfs
#MEcfs #CFS #PwME #LongCovid @longcovid @chronicillness
@spoonies
@disability
@fibromyalgia
#Fibromyalgia #Fibro #FM #POTS -
5/
“Focus on what is within your control
Many aspects of an incurable chronic illness are outside your control, and that can feel overwhelming. Find the things that are within your control and try to focus on those. (contd)”
#chronicallyill #longtermillness #chronicillness #chroniclife @mecfs
#MEcfs #CFS #PwME #LongCovid @longcovid @chronicillness
@spoonies
@disability
@fibromyalgia
#Fibromyalgia #Fibro #FM #POTS -
5/
“Focus on what is within your control
Many aspects of an incurable chronic illness are outside your control, and that can feel overwhelming. Find the things that are within your control and try to focus on those. (contd)”
#chronicallyill #longtermillness #chronicillness #chroniclife @mecfs
#MEcfs #CFS #PwME #LongCovid @longcovid @chronicillness
@spoonies
@disability
@fibromyalgia
#Fibromyalgia #Fibro #FM #POTS -
5/
“Focus on what is within your control
Many aspects of an incurable chronic illness are outside your control, and that can feel overwhelming. Find the things that are within your control and try to focus on those. (contd)”
#chronicallyill #longtermillness #chronicillness #chroniclife @mecfs
#MEcfs #CFS #PwME #LongCovid @longcovid @chronicillness
@spoonies
@disability
@fibromyalgia
#Fibromyalgia #Fibro #FM #POTS -
More than 500,000 under-35s in UK out of work due to #LongTermIllness
Experts link 44% increase in four years to a growing #MentalHealth crisis and #underinvestment in #HealthServices
https://www.theguardian.com/society/2023/dec/24/500000-under-35s-out-of-work-long-term-illness-uk
#ToryPoliciesInAction #PrivatisationBeforePeople #Health #PublicHealth #UnderfundingPublicServices -
More than 500,000 under-35s in UK out of work due to #LongTermIllness
Experts link 44% increase in four years to a growing #MentalHealth crisis and #underinvestment in #HealthServices
https://www.theguardian.com/society/2023/dec/24/500000-under-35s-out-of-work-long-term-illness-uk
#ToryPoliciesInAction #PrivatisationBeforePeople #Health #PublicHealth #UnderfundingPublicServices -
More than 500,000 under-35s in UK out of work due to #LongTermIllness
Experts link 44% increase in four years to a growing #MentalHealth crisis and #underinvestment in #HealthServices
https://www.theguardian.com/society/2023/dec/24/500000-under-35s-out-of-work-long-term-illness-uk
#ToryPoliciesInAction #PrivatisationBeforePeople #Health #PublicHealth #UnderfundingPublicServices -
More than 500,000 under-35s in UK out of work due to #LongTermIllness
Experts link 44% increase in four years to a growing #MentalHealth crisis and #underinvestment in #HealthServices
https://www.theguardian.com/society/2023/dec/24/500000-under-35s-out-of-work-long-term-illness-uk
#ToryPoliciesInAction #PrivatisationBeforePeople #Health #PublicHealth #UnderfundingPublicServices -
More than 500,000 under-35s in UK out of work due to #LongTermIllness
Experts link 44% increase in four years to a growing #MentalHealth crisis and #underinvestment in #HealthServices
https://www.theguardian.com/society/2023/dec/24/500000-under-35s-out-of-work-long-term-illness-uk
#ToryPoliciesInAction #PrivatisationBeforePeople #Health #PublicHealth #UnderfundingPublicServices -
Hi Ren
I may have posted this b4 but just shakes me when I hear it. Amazing piece of great art.
https://open.spotify.com/track/0FLwYQoXvX8q5iRZnFX59u?si=ArKRNAUtSZyi-ypoxvxk2A
CW for the song's content: #bipolar #longtermillness #LimeDisease #neurodivergent #depression #InnerVoices
But so much existential power. (Sorry, another edit, absolutely fucking brilliant lyrics.)
> Ren · Song · 2022 -
Hi Ren
I may have posted this b4 but just shakes me when I hear it. Amazing piece of great art.
https://open.spotify.com/track/0FLwYQoXvX8q5iRZnFX59u?si=ArKRNAUtSZyi-ypoxvxk2A
CW for the song's content: #bipolar #longtermillness #LimeDisease #neurodivergent #depression #InnerVoices
But so much existential power. (Sorry, another edit, absolutely fucking brilliant lyrics.)
> Ren · Song · 2022 -
Hi Ren
I may have posted this b4 but just shakes me when I hear it. Amazing piece of great art.
https://open.spotify.com/track/0FLwYQoXvX8q5iRZnFX59u?si=ArKRNAUtSZyi-ypoxvxk2A
CW for the song's content: #bipolar #longtermillness #LimeDisease #neurodivergent #depression #InnerVoices
But so much existential power. (Sorry, another edit, absolutely fucking brilliant lyrics.)
> Ren · Song · 2022 -
Working people are being ‘pushed to breaking point’ | Morning Star
#WorkingPeople
#TUC
#Unemployment
#TakeHomePay
#Tories
#ToryMinisters
#ONS
#LongTermIllness
#LongTermSick
#Inflation
#Hunt
#PublicServices
#Trains
#NHS
#Labour
#Over50s
https://morningstaronline.co.uk/article/b/working-people-are-being-pushed-to-breaking-point -
Working people are being ‘pushed to breaking point’ | Morning Star
#WorkingPeople
#TUC
#Unemployment
#TakeHomePay
#Tories
#ToryMinisters
#ONS
#LongTermIllness
#LongTermSick
#Inflation
#Hunt
#PublicServices
#Trains
#NHS
#Labour
#Over50s
https://morningstaronline.co.uk/article/b/working-people-are-being-pushed-to-breaking-point -
Working people are being ‘pushed to breaking point’ | Morning Star
#WorkingPeople
#TUC
#Unemployment
#TakeHomePay
#Tories
#ToryMinisters
#ONS
#LongTermIllness
#LongTermSick
#Inflation
#Hunt
#PublicServices
#Trains
#NHS
#Labour
#Over50s
https://morningstaronline.co.uk/article/b/working-people-are-being-pushed-to-breaking-point