#longtermillness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #longtermillness, aggregated by home.social.
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From @onelife_livedwell on IG: Interoception is your body’s ability to sense what’s happening on the inside. In athletes, we call this body awareness, but in chronic conditions, it’s too often labeled anxiety.
#chronicillness #spoonie #mecfs #longtermillness #longcovid @mecfs
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“It’s almost impossible, but remember to take care of yourself, too. You won’t be any use to the person(s) you’re taking care of if you crash or worsen.”
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“Sloan’s study similarly found higher rates of healthcare avoidance and of underreporting symptoms “from distrust and fear that symptoms would be disbelieved and misattributed again,” the researchers wrote.”#neisvoid #longtermdisease #longtermillness
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
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“Preparing Information for your Doctor Appointment - Template”
https://emerge.org.au/wp-content/uploads/2023/12/Preparing-for-your-Drs-appointment-template.pdf
#chronicallyill #longtermillness #mecfs #spoonies
@mecfs @chronicillness @spoonies @fibromyalgia #fibromyalgia #pots @pots #chronicillness -
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“The problematic conversations that transpire between clinicians and patients often involve specific words and phrases—termed the “never-words [6]”—that can leave patients feeling upset, angry, fearful, confused, and demoralized”#LongTermIllness #chronicallyill
@mecfs @longcovid @chronicillness #mecfs #longcovid -
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2. When You Need to Cancel or Change Plans
3. When You’re Unable to Keep Up With Your Kids
4. When You Depend on Others and Feel Like a ‘Burden’
5. When You’re Unable to Work and Contribute Financially to Your Family
#spoonie #longtermillness #chronicdiseases
@mecfs @longcovid @chronicillness @spoonies @disability @fibromyalgia @pots -
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“Focus on what is within your control
Many aspects of an incurable chronic illness are outside your control, and that can feel overwhelming. Find the things that are within your control and try to focus on those. (contd)”
#chronicallyill #longtermillness #chronicillness #chroniclife @mecfs
#MEcfs #CFS #PwME #LongCovid @longcovid @chronicillness
@spoonies
@disability
@fibromyalgia
#Fibromyalgia #Fibro #FM #POTS -
More than 500,000 under-35s in UK out of work due to #LongTermIllness
Experts link 44% increase in four years to a growing #MentalHealth crisis and #underinvestment in #HealthServices
https://www.theguardian.com/society/2023/dec/24/500000-under-35s-out-of-work-long-term-illness-uk
#ToryPoliciesInAction #PrivatisationBeforePeople #Health #PublicHealth #UnderfundingPublicServices -
Hi Ren
I may have posted this b4 but just shakes me when I hear it. Amazing piece of great art.
https://open.spotify.com/track/0FLwYQoXvX8q5iRZnFX59u?si=ArKRNAUtSZyi-ypoxvxk2A
CW for the song's content: #bipolar #longtermillness #LimeDisease #neurodivergent #depression #InnerVoices
But so much existential power. (Sorry, another edit, absolutely fucking brilliant lyrics.)
> Ren · Song · 2022 -
Working people are being ‘pushed to breaking point’ | Morning Star
#WorkingPeople
#TUC
#Unemployment
#TakeHomePay
#Tories
#ToryMinisters
#ONS
#LongTermIllness
#LongTermSick
#Inflation
#Hunt
#PublicServices
#Trains
#NHS
#Labour
#Over50s
https://morningstaronline.co.uk/article/b/working-people-are-being-pushed-to-breaking-point -
The 'economically inactive' count is declining in all categories except the long term sick...
there seems to be a slow nett return of retirees to the workforce, along while carers & others continue to return to work.
Other groups are also seeming to be finding work, but the numbers who are out of work due to #longtermillness continues t climb.
Whatever we might think about the designation 'economically inactive', this figure shows the impact of the #NHScrisis pretty clearly
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Are #Tories interested in #economicdevelopment?
Well, given their defunding of the #NHS & its now very clear effects on #longtermillness, costing the UK economy over £40bn a year in lost #productivity & economic activity, I think we can safely say they are not!... at least not when there is money to be made for their private sector chums (here in #healthcare).
Whatever its significant personal costs, long term sickness is emblematic of the UK's dysfunctional Govt.
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There's a record number of long term sick since the pandemic- Channel 4 news.
That's what happens when you let a pandemic run riot.
#LetTheBodiesPileHigh
#Tories
#LongCovid
#LongTermIllness
#LongTermSick
#Covid
#Pandemic
#Workforce
#WorkforceShortage -
‘The more outlandish the claim, the more likely it will stick in people’s minds’ – expert’s warning as fake news and cancer ‘cures’ put patients at risk
#skeptic #sceptic #scepticism #chronicillness @chronicillness @spoonies #longtermillness #health #quackery
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Why is #JeremyHunt keen to focus on trying to get the over-50s to 'unretire'?
Well, its a useful distraction from the real problems which are #longtermillness (aggravated by the #NHScrisis) and the costs of #childcare... both issues that the Govt. could do something about but chooses not to... its just another bit of declaratory politics that (following Polly Toynbee's article, just posted) emphasis the mendacity at the heart of UK politics!
https://www.theguardian.com/business/2023/feb/20/over-50s-back-to-work-uk-lcp-report
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“Use Others to Support You as a #Caregiver
There is a “rings of trauma theory” & it says that you draw a circle with whoever has the trauma in the center, & you make degrees (or people) connected to the trauma going outward. Please “support in” & “dump out””
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“Take Care of Yourself and Have a Life Outside of Caregiving
Please don’t make #caretaking your whole life. Make sure that you are doing the things that are restorative to you, and that make your life rewarding outside of me. And don’t feel guilty doing them! You deserve to have an identity outside of this illness, and you will be a better caregiver to me if you take care of yourself”
#caring #caregiver #caregivers #caregiving #carer #carers #longtermillness #chronicillness
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“Please put yourself in my shoes and meet me with empathy and understanding.”
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“Favorite Reads of 2022” by Jennie Spotila
http://occupyme.net/2022/12/30/favorite-reads-of-2022/Jennie has a #chronicillness (#MyalgicEncephalomyelitis) for nearly three decades and all but one of her non-fiction selections relate to #illness and #longtermillness
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“If you’re one of the many people with chronic health problems who don’t look sick, the burden is on you to make your condition “visible.” If you don’t take this pre-emptive action, people’s expectations of you may be way out of line with what you can handle”