#longlyme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #longlyme, aggregated by home.social.
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Weer een voorstel vanuit de Tweede Kamer om post-acuut infectieuze syndromen aan te pakken. Ingediend bij de VWS begroting 2027.
Nog steeds druppels op de gloeiende plaat en met 1 jaar horizon, maar iets is beter dan niets.
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Weer een voorstel vanuit de Tweede Kamer om post-acuut infectieuze syndromen aan te pakken. Ingediend bij de VWS begroting 2027.
Nog steeds druppels op de gloeiende plaat en met 1 jaar horizon, maar iets is beter dan niets.
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Weer een voorstel vanuit de Tweede Kamer om post-acuut infectieuze syndromen aan te pakken. Ingediend bij de VWS begroting 2027.
Nog steeds druppels op de gloeiende plaat en met 1 jaar horizon, maar iets is beter dan niets.
-
Weer een voorstel vanuit de Tweede Kamer om post-acuut infectieuze syndromen aan te pakken. Ingediend bij de VWS begroting 2027.
Nog steeds druppels op de gloeiende plaat en met 1 jaar horizon, maar iets is beter dan niets.
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Weer een voorstel vanuit de Tweede Kamer om post-acuut infectieuze syndromen aan te pakken. Ingediend bij de VWS begroting 2027.
Nog steeds druppels op de gloeiende plaat en met 1 jaar horizon, maar iets is beter dan niets.
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Hoort zegt het voort...
Protestactie om een heel grote groep chronisch zieke mensen te ondersteunen. -
Hoort zegt het voort...
Protestactie om een heel grote groep chronisch zieke mensen te ondersteunen. -
Hoort zegt het voort...
Protestactie om een heel grote groep chronisch zieke mensen te ondersteunen. -
Hoort zegt het voort...
Protestactie om een heel grote groep chronisch zieke mensen te ondersteunen. -
Hoort zegt het voort...
Protestactie om een heel grote groep chronisch zieke mensen te ondersteunen. -
Sliding further down into PEM today 🫨
P.s. If you're on Instagram, I recommend me_in_a_comic (fennine) who makes great cartoons showing chronic illness life.
When a picture says more than a thousand words...
#LongCovid #pwME #longlyme #QVS #SEID -
Sliding further down into PEM today 🫨
P.s. If you're on Instagram, I recommend me_in_a_comic (fennine) who makes great cartoons showing chronic illness life.
When a picture says more than a thousand words...
#LongCovid #pwME #longlyme #QVS #SEID -
From the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
https://talresearchgroup.mit.edu/mitmaestro
https://intake.mit.edu/surveys/?s=WLPFP8M9YD73WXY9 -
From the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
https://talresearchgroup.mit.edu/mitmaestro
https://intake.mit.edu/surveys/?s=WLPFP8M9YD73WXY9 -
From the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
https://talresearchgroup.mit.edu/mitmaestro
https://intake.mit.edu/surveys/?s=WLPFP8M9YD73WXY9 -
From the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
https://talresearchgroup.mit.edu/mitmaestro
https://intake.mit.edu/surveys/?s=WLPFP8M9YD73WXY9 -
From the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
https://talresearchgroup.mit.edu/mitmaestro
https://intake.mit.edu/surveys/?s=WLPFP8M9YD73WXY9 -
3/fin
This study by @maayanLevy_lab is a marvel of dozens of avenues of science that all point to a greater understanding of the realities of #LongCOVID as a chronic disease state.Through work like this, we legitimize not only LC, but also #MECFS #LongLyme etc & take one step closer to finding medical solutions for past & future post-infectious states + syndromes like #PICS
bit.ly/3Fjx3Jp
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3/fin
This study by @maayanLevy_lab is a marvel of dozens of avenues of science that all point to a greater understanding of the realities of #LongCOVID as a chronic disease state.Through work like this, we legitimize not only LC, but also #MECFS #LongLyme etc & take one step closer to finding medical solutions for past & future post-infectious states + syndromes like #PICS
bit.ly/3Fjx3Jp
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The PolyBio Fall 2023 Symposium is scheduled for October 20, 1 to 5 pm, EST
A speaker list, with links to their projects, has been posted on the Science for ME forum:
https://www.s4me.info/threads/polybio-fall-2023-symposium.35177/
PolyBio is "a 501(c)3 transforming how infection-associated chronic conditions like LongCovid, ME/CFS & Long Lyme Disease are studied, diagnosed and treated"
Description from their website -
https://polybio.org/#LongCovid #PASC #MEcfs #LongLyme #ChronicIllness
#MedMastodon -
The PolyBio Fall 2023 Symposium is scheduled for October 20, 1 to 5 pm, EST
A speaker list, with links to their projects, has been posted on the Science for ME forum:
https://www.s4me.info/threads/polybio-fall-2023-symposium.35177/
PolyBio is "a 501(c)3 transforming how infection-associated chronic conditions like LongCovid, ME/CFS & Long Lyme Disease are studied, diagnosed and treated"
Description from their website -
https://polybio.org/#LongCovid #PASC #MEcfs #LongLyme #ChronicIllness
#MedMastodon -
Yale School of Medicine Post-Acute Infection Syndromes Will Be the Focus of New YSM Center
On the newly launched Center for Infection & Immunity (CII) at Yale created by Akiko Iwasaki, PhD, which will investigate ME together with #LongCOVID and #posttreatmentLymedisease
@mecfs #MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #postcovid #longlyme #lyme1/
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Yale School of Medicine Post-Acute Infection Syndromes Will Be the Focus of New YSM Center
On the newly launched Center for Infection & Immunity (CII) at Yale created by Akiko Iwasaki, PhD, which will investigate ME together with #LongCOVID and #posttreatmentLymedisease
@mecfs #MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #postcovid #longlyme #lyme1/
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A new way of thinking about persistent infections, such as long COVID and chronic Lyme disease
“Infection-associated chronic illness” sounds like a mouthful.
But using that name has sparked a paradigm shift in how researchers and others view ailments that can keep people sick for years—with few or no options for getting better.
READ MORE: https://www.lymedisease.org/new-way-of-thinking-long-haul/
#longcovid #longlyme #chronicillness #chronicfatigue #chronicdisease #mecfs #ms #pots #dysautonomia -
This is what hope looks like ♥️ h/t @microbeminded2 and all the teams involved
#pwME #pwLC #LongCOVID #LongLyme #SARSCoV2
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RT @polybioRF
PolyBio is excited to be leading the LongCovid Research Consortium (LCRC): a global scientific collaboration to rapidly & comprehensively study #LongCovid disease mechanisms, with a focus on SARS-CoV-2 reservoir (https://polybio.org/longcovid). LCRC projects we are supporting include:
https://twitter.com/polybioRF/status/1645800172084158469 -
This is what hope looks like ♥️ h/t @microbeminded2 and all the teams involved
#pwME #pwLC #LongCOVID #LongLyme #SARSCoV2
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RT @polybioRF
PolyBio is excited to be leading the LongCovid Research Consortium (LCRC): a global scientific collaboration to rapidly & comprehensively study #LongCovid disease mechanisms, with a focus on SARS-CoV-2 reservoir (https://polybio.org/longcovid). LCRC projects we are supporting include:
https://twitter.com/polybioRF/status/1645800172084158469 -
Tired of the infighting.
It is *NOT* a productive use of our collective limited energy and spoons.We will either rise together by demanding and inspiring revolutionary change or be left for dead as a lot.
Listen to disabled people. Please. #pwME #pwLC #longCOVID #longLyme
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RT @ErinSandersNP
@IppokratisAnge1 So ME/CFS is an umbrella that you may fall under if you have long COVID, but you may not. And either is ok. Because we a…
https://twitter.com/ErinSandersNP/status/1574971761841827840 -
Tired of the infighting.
It is *NOT* a productive use of our collective limited energy and spoons.We will either rise together by demanding and inspiring revolutionary change or be left for dead as a lot.
Listen to disabled people. Please. #pwME #pwLC #longCOVID #longLyme
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RT @ErinSandersNP
@IppokratisAnge1 So ME/CFS is an umbrella that you may fall under if you have long COVID, but you may not. And either is ok. Because we a…
https://twitter.com/ErinSandersNP/status/1574971761841827840 -
2/
It looks like this study may still recruiting people from the US
https://snyderlabs.stanford.edu/crashcourse/
Researchers are recruiting ME/CFS, #ChronicLyme and #LongCovid patients for a study to better understand symptom flares such as post-exertional malaise (PEM), or “crashes”.
@longcovid #ptlds #longlyme #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme
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We need “Forgotten Diseases” Clinics -
Seriously I’ve been thinking about the massive Venn-diagram overlap of this group of diseases that have such an ill characterized set of definitions, diagnostic testing, therapeutic trials.
Patients tell us…
📍“We feel left behind by,” say 1,000s of Long COVID pts
📍Sadly, #MECFS, #LongLyme, fibromyalgia & #PICS patients tell us they hoped to “ride the coattails” of #LongCOVID
📍People say, “Get on w your life.”They say, “What life?”
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We need “Forgotten Diseases” Clinics -
Seriously I’ve been thinking about the massive Venn-diagram overlap of this group of diseases that have such an ill characterized set of definitions, diagnostic testing, therapeutic trials.
Patients tell us…
📍“We feel left behind by,” say 1,000s of Long COVID pts
📍Sadly, #MECFS, #LongLyme, fibromyalgia & #PICS patients tell us they hoped to “ride the coattails” of #LongCOVID
📍People say, “Get on w your life.”They say, “What life?”