home.social

#longhauler — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #longhauler, aggregated by home.social.

fetched live
  1. CW: Death of fedi friend

    Sad to report that @KarenStrickholm has died. It was 2 months ago, but I just found out. I found her FB page and saw her relatives’ posts.

    Some of the hashtags she used. Maybe some of you knew her.
    #disability
    #DisabilityMatters
    #ChronicPain
    #LongHauler
    #knitting

  2. CW: Death of fedi friend

    Sad to report that @KarenStrickholm has died. It was 2 months ago, but I just found out. I found her FB page and saw her relatives’ posts.

    Some of the hashtags she used. Maybe some of you knew her.
    #disability
    #DisabilityMatters
    #ChronicPain
    #LongHauler
    #knitting

  3. CW: Death of fedi friend

    Sad to report that @KarenStrickholm has died. It was 2 months ago, but I just found out. I found her FB page and saw her relatives’ posts.

    Some of the hashtags she used. Maybe some of you knew her.
    #disability
    #DisabilityMatters
    #ChronicPain
    #LongHauler
    #knitting

  4. CW: Death of fedi friend

    Sad to report that @KarenStrickholm has died. It was 2 months ago, but I just found out. I found her FB page and saw her relatives’ posts.

    Some of the hashtags she used. Maybe some of you knew her.
    #disability
    #DisabilityMatters
    #ChronicPain
    #LongHauler
    #knitting

  5. #C19LAP member, division lead & 4 year #Longhauler @TammyWilshire1 speaks with @pfizer for their “Dear Scientist” series.

    Pfizer developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.
    sponsored.bostonglobe.com/pfiz

  6. #C19LAP member, division lead & 4 year #Longhauler @TammyWilshire1 speaks with @pfizer for their “Dear Scientist” series.

    Pfizer developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.
    sponsored.bostonglobe.com/pfiz

  7. #C19LAP member, division lead & 4 year #Longhauler @TammyWilshire1 speaks with @pfizer for their “Dear Scientist” series.

    Pfizer developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.
    sponsored.bostonglobe.com/pfiz

  8. #C19LAP member, division lead & 4 year #Longhauler @TammyWilshire1 speaks with @pfizer for their “Dear Scientist” series.

    Pfizer developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.
    sponsored.bostonglobe.com/pfiz

  9. @ThunderHoneySnow
    We've long suspected something like this action. It certainly helps account for why I feel this way all the time. Since my infection in June of 2022, I have not been the "same person".

    Take it from a #longHauler... Do NOT get #covid, ever.

    #staySafe #wearAMask #covidIsNotOver #covidIsWorse

  10. @ThunderHoneySnow
    We've long suspected something like this action. It certainly helps account for why I feel this way all the time. Since my infection in June of 2022, I have not been the "same person".

    Take it from a #longHauler... Do NOT get #covid, ever.

    #staySafe #wearAMask #covidIsNotOver #covidIsWorse

  11. @ThunderHoneySnow
    We've long suspected something like this action. It certainly helps account for why I feel this way all the time. Since my infection in June of 2022, I have not been the "same person".

    Take it from a #longHauler... Do NOT get #covid, ever.

    #staySafe #wearAMask #covidIsNotOver #covidIsWorse

  12. @ThunderHoneySnow
    We've long suspected something like this action. It certainly helps account for why I feel this way all the time. Since my infection in June of 2022, I have not been the "same person".

    Take it from a #longHauler... Do NOT get #covid, ever.

    #staySafe #wearAMask #covidIsNotOver #covidIsWorse

  13. Fresh #introduction for 2024: The Year It All Comes Crashing Down!

    I'm Sean - a formerly prolific rock #musician, current #foss engineer, full-time #audioEngineer at a busy roadhouse #theatre and #covid19 #longHauler, almost 2yrs with #pem, #pots, and an host of other goodies. #wearAMask #saveALife

    I like working on projects that enable marginalised persons to take back their autonomy on and offline. I subscribe to #diy and am a voracious #autodidact. I make #bots for #mastodon and the #fedi. I'm building a replacement for #bandcamp and #spotify.

    I care about all #humans and #animals on this planet, an am strongly aligned against their destruction via a #socialist #anarchist education. I'm against all #fascists, and call #bullshit where I see it, and I see every #microexpression. I'm pretty #autistic.

    I #protest for #humanRights, #disabilityRights, #lgbtqRights, against #climateDestruction, #corporateGreed and for a #ceasefireNow in #palestine.

    I educate myself on the world around me - with help from y'all - and I do my best to educate and #lift those around me.

    I'm friendly, weird, and irreverent. Feel free to follow, boost and interact. This is a social media!

  14. Fresh #introduction for 2024: The Year It All Comes Crashing Down!

    I'm Sean - a formerly prolific rock #musician, current #foss engineer, full-time #audioEngineer at a busy roadhouse #theatre and #covid19 #longHauler, almost 2yrs with #pem, #pots, and an host of other goodies. #wearAMask #saveALife

    I like working on projects that enable marginalised persons to take back their autonomy on and offline. I subscribe to #diy and am a voracious #autodidact. I make #bots for #mastodon and the #fedi. I'm building a replacement for #bandcamp and #spotify.

    I care about all #humans and #animals on this planet, an am strongly aligned against their destruction via a #socialist #anarchist education. I'm against all #fascists, and call #bullshit where I see it, and I see every #microexpression. I'm pretty #autistic.

    I #protest for #humanRights, #disabilityRights, #lgbtqRights, against #climateDestruction, #corporateGreed and for a #ceasefireNow in #palestine.

    I educate myself on the world around me - with help from y'all - and I do my best to educate and #lift those around me.

    I'm friendly, weird, and irreverent. Feel free to follow, boost and interact. This is a social media!

  15. Fresh #introduction for 2024: The Year It All Comes Crashing Down!

    I'm Sean - a formerly prolific rock #musician, current #foss engineer, full-time #audioEngineer at a busy roadhouse #theatre and #covid19 #longHauler, almost 2yrs with #pem, #pots, and an host of other goodies. #wearAMask #saveALife

    I like working on projects that enable marginalised persons to take back their autonomy on and offline. I subscribe to #diy and am a voracious #autodidact. I make #bots for #mastodon and the #fedi. I'm building a replacement for #bandcamp and #spotify.

    I care about all #humans and #animals on this planet, an am strongly aligned against their destruction via a #socialist #anarchist education. I'm against all #fascists, and call #bullshit where I see it, and I see every #microexpression. I'm pretty #autistic.

    I #protest for #humanRights, #disabilityRights, #lgbtqRights, against #climateDestruction, #corporateGreed and for a #ceasefireNow in #palestine.

    I educate myself on the world around me - with help from y'all - and I do my best to educate and #lift those around me.

    I'm friendly, weird, and irreverent. Feel free to follow, boost and interact. This is a social media!

  16. Fresh #introduction for 2024: The Year It All Comes Crashing Down!

    I'm Sean - a formerly prolific rock #musician, current #foss engineer, full-time #audioEngineer at a busy roadhouse #theatre and #covid19 #longHauler, almost 2yrs with #pem, #pots, and an host of other goodies. #wearAMask #saveALife

    I like working on projects that enable marginalised persons to take back their autonomy on and offline. I subscribe to #diy and am a voracious #autodidact. I make #bots for #mastodon and the #fedi. I'm building a replacement for #bandcamp and #spotify.

    I care about all #humans and #animals on this planet, an am strongly aligned against their destruction via a #socialist #anarchist education. I'm against all #fascists, and call #bullshit where I see it, and I see every #microexpression. I'm pretty #autistic.

    I #protest for #humanRights, #disabilityRights, #lgbtqRights, against #climateDestruction, #corporateGreed and for a #ceasefireNow in #palestine.

    I educate myself on the world around me - with help from y'all - and I do my best to educate and #lift those around me.

    I'm friendly, weird, and irreverent. Feel free to follow, boost and interact. This is a social media!

  17. What have you developed as a result of #LongCOVID?

    #LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!

    #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability

  18. What have you developed as a result of #LongCOVID?

    #LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!

    #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability

  19. What have you developed as a result of #LongCOVID?

    #LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!

    #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability

  20. What have you developed as a result of #LongCOVID?

    #LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!

    #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability

  21. #LongCOVID is a complex and systemic illness, requiring multi-specialty care and coordination. The underlying mechanism of #longCOVID has not yet been proven, but several theories have risen to the top of the list. Preventing #COVID -19 is the only way to prevent #LongCovid.

    #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability

  22. #LongCOVID is a complex and systemic illness, requiring multi-specialty care and coordination. The underlying mechanism of #longCOVID has not yet been proven, but several theories have risen to the top of the list. Preventing #COVID -19 is the only way to prevent #LongCovid.

    #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability

  23. #LongCOVID is a complex and systemic illness, requiring multi-specialty care and coordination. The underlying mechanism of #longCOVID has not yet been proven, but several theories have risen to the top of the list. Preventing #COVID -19 is the only way to prevent #LongCovid.

    #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability

  24. #LongCOVID is a complex and systemic illness, requiring multi-specialty care and coordination. The underlying mechanism of #longCOVID has not yet been proven, but several theories have risen to the top of the list. Preventing #COVID -19 is the only way to prevent #LongCovid.

    #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability

  25. @augieray I love that on other social media networks I am having to block COVID deniers liberally, and I open up Mastodon and this is one of the first things I see. ❤️🙏🏼

    As a #LongHauler I feel like I live in a different reality than the “back to normal” crowd, and it’s nice to not be alone.

  26. @augieray I love that on other social media networks I am having to block COVID deniers liberally, and I open up Mastodon and this is one of the first things I see. ❤️🙏🏼

    As a #LongHauler I feel like I live in a different reality than the “back to normal” crowd, and it’s nice to not be alone.

  27. @augieray I love that on other social media networks I am having to block COVID deniers liberally, and I open up Mastodon and this is one of the first things I see. ❤️🙏🏼

    As a #LongHauler I feel like I live in a different reality than the “back to normal” crowd, and it’s nice to not be alone.

  28. @augieray I love that on other social media networks I am having to block COVID deniers liberally, and I open up Mastodon and this is one of the first things I see. ❤️🙏🏼

    As a #LongHauler I feel like I live in a different reality than the “back to normal” crowd, and it’s nice to not be alone.

  29. Anyway, please sign this petition.

    "In March 2022, the U.S. Government Accountability Office estimated that 23 million Americans had developed Long COVID. Nearly a year later, studies suggest that number could be as high as 41 million. Yet there is no cure or treatment available."

    #LongCovid #LongHauler #PASC #Artist #BrokeAsHell

    actionnetwork.org/letters/help

  30. Anyway, please sign this petition.

    "In March 2022, the U.S. Government Accountability Office estimated that 23 million Americans had developed Long COVID. Nearly a year later, studies suggest that number could be as high as 41 million. Yet there is no cure or treatment available."

    #LongCovid #LongHauler #PASC #Artist #BrokeAsHell

    actionnetwork.org/letters/help

  31. Anyway, please sign this petition.

    "In March 2022, the U.S. Government Accountability Office estimated that 23 million Americans had developed Long COVID. Nearly a year later, studies suggest that number could be as high as 41 million. Yet there is no cure or treatment available."

    #LongCovid #LongHauler #PASC #Artist #BrokeAsHell

    actionnetwork.org/letters/help

  32. Anyway, please sign this petition.

    "In March 2022, the U.S. Government Accountability Office estimated that 23 million Americans had developed Long COVID. Nearly a year later, studies suggest that number could be as high as 41 million. Yet there is no cure or treatment available."

    #LongCovid #LongHauler #PASC #Artist #BrokeAsHell

    actionnetwork.org/letters/help

  33. it is hard to think or do anything. I wait for doctor's appointments, I wait to hear about my long covid clinic referral, I'm broke and dependent on my spouse, my medical history is too limited to apply for aid.

    I take vitamins, monitor blood pressure, go outside every day to get a little sun and move small things around in the yard, and try to read and paint, but mostly sleep. It got easier for a little bit, but now it is more difficult.

    #LongCovid #LongHauler #PASC #Artist #BrokeAsHell

  34. it is hard to think or do anything. I wait for doctor's appointments, I wait to hear about my long covid clinic referral, I'm broke and dependent on my spouse, my medical history is too limited to apply for aid.

    I take vitamins, monitor blood pressure, go outside every day to get a little sun and move small things around in the yard, and try to read and paint, but mostly sleep. It got easier for a little bit, but now it is more difficult.

    #LongCovid #LongHauler #PASC #Artist #BrokeAsHell

  35. it is hard to think or do anything. I wait for doctor's appointments, I wait to hear about my long covid clinic referral, I'm broke and dependent on my spouse, my medical history is too limited to apply for aid.

    I take vitamins, monitor blood pressure, go outside every day to get a little sun and move small things around in the yard, and try to read and paint, but mostly sleep. It got easier for a little bit, but now it is more difficult.

    #LongCovid #LongHauler #PASC #Artist #BrokeAsHell

  36. it is hard to think or do anything. I wait for doctor's appointments, I wait to hear about my long covid clinic referral, I'm broke and dependent on my spouse, my medical history is too limited to apply for aid.

    I take vitamins, monitor blood pressure, go outside every day to get a little sun and move small things around in the yard, and try to read and paint, but mostly sleep. It got easier for a little bit, but now it is more difficult.

    #LongCovid #LongHauler #PASC #Artist #BrokeAsHell

  37. "Long COVID poses unprecedented risks for the country that could rival the Great Depression. According to David Cutler, an economist at Harvard University, Long COVID could cost the economy $3.7 trillion in lost wages, increased medical expenses, and reduced quality of life. In 2023, up to 4 million Americans between 18 and 65 are missing from the workplace due to Long COVID."

    #LongCovid #LongHauler #PASC #petition

    actionnetwork.org/letters/help

  38. "Long COVID poses unprecedented risks for the country that could rival the Great Depression. According to David Cutler, an economist at Harvard University, Long COVID could cost the economy $3.7 trillion in lost wages, increased medical expenses, and reduced quality of life. In 2023, up to 4 million Americans between 18 and 65 are missing from the workplace due to Long COVID."

    #LongCovid #LongHauler #PASC #petition

    actionnetwork.org/letters/help

  39. "Long COVID poses unprecedented risks for the country that could rival the Great Depression. According to David Cutler, an economist at Harvard University, Long COVID could cost the economy $3.7 trillion in lost wages, increased medical expenses, and reduced quality of life. In 2023, up to 4 million Americans between 18 and 65 are missing from the workplace due to Long COVID."

    #LongCovid #LongHauler #PASC #petition

    actionnetwork.org/letters/help

  40. "Long COVID poses unprecedented risks for the country that could rival the Great Depression. According to David Cutler, an economist at Harvard University, Long COVID could cost the economy $3.7 trillion in lost wages, increased medical expenses, and reduced quality of life. In 2023, up to 4 million Americans between 18 and 65 are missing from the workplace due to Long COVID."

    #LongCovid #LongHauler #PASC #petition

    actionnetwork.org/letters/help

  41. "As a large and ever-growing international community, we feel government is not meeting the needs of this crisis."

    Spread this around to all your long covid pals and the people who love and support them.

    #LongCovid #LongHauler #Covid #PASC #petition
    actionnetwork.org/letters/help

  42. "As a large and ever-growing international community, we feel government is not meeting the needs of this crisis."

    Spread this around to all your long covid pals and the people who love and support them.

    #LongCovid #LongHauler #Covid #PASC #petition
    actionnetwork.org/letters/help