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#longhauler — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #longhauler, aggregated by home.social.

  1. Slowly figuring out how to make the Fitbit work better for #pacing. It's set up to be constantly all "rah! rah! climb those stairs! burn that fat! get that heart rate up!" quite aggravating, to say the least.

    But I think I got most of its little cheers turned off, and I figured out I can set my own maximum heart rate. The fitbit still thinks I should be in higher "zones" as much as possible, which is annoying.

    I just programmed a custom zone, though, which goes from 10bpm above my resting rate to 5 below my max. Hopefully I'll be able to see on the graph when I've been exerting a little but not too much.

    #PEM #PESE #PENE #MECFS #ME #CFS #fibromyalgia #Fibro #ChronicIllness #LongCOVID #LongHauler

  2. So far, so good with the #pacing.

    Still getting the feel for some of the more difficult-to-quantify symptoms, but wearing a heart-rate monitor is helping me identify how it feels when I'm pushing a little or a lot.

    Also using the Visible app, which seems useful so far. I needed a low-maintenance way to track symptoms, and I'm interested to see what trends build up with heart-rate variability.

    Please feel free to share your own experiences!

    #LongCOVID #MECFS #ME #CFS #fibromyalgia #fibro #PEM #PENE #PESE #LongHauler