#longcovidadvocacy — Public Fediverse posts

This 🚨👇 was shared on XTwitter by Dr. @[email protected] earlier today (and Dr. Perego has been instrumental in ensuring patients are heard and are centered in care WRT LC). #LongCovid #LongCovidAdvocacy #Twitter #LCTwitter

RE: https://bsky.app/profile/did:plc:43rudsv62fuwsmnk7oppgtdy/post/3mfkzh6slp22f

‘Finally we’re believed’: Long Covid sufferers hail new research saying they should avoid intense exercise | The Independent
https://www.independent.co.uk/news/uk/home-news/long-covid-intense-exercise-b2473174.html

#LongCovid
#Research
#Exercise
#Muscle
#MuscleDamage
#LongCovidSupportGroup
#LongCovidAdvocacy
#DisabilityLaw

‘Finally we’re believed’: Long Covid sufferers hail new research saying they should avoid intense exercise | The Independent
https://www.independent.co.uk/news/uk/home-news/long-covid-intense-exercise-b2473174.html

#LongCovid
#Research
#Exercise
#Muscle
#MuscleDamage
#LongCovidSupportGroup
#LongCovidAdvocacy
#DisabilityLaw

‘Finally we’re believed’: Long Covid sufferers hail new research saying they should avoid intense exercise | The Independent
https://www.independent.co.uk/news/uk/home-news/long-covid-intense-exercise-b2473174.html

#LongCovid
#Research
#Exercise
#Muscle
#MuscleDamage
#LongCovidSupportGroup
#LongCovidAdvocacy
#DisabilityLaw

‘Finally we’re believed’: Long Covid sufferers hail new research saying they should avoid intense exercise | The Independent
https://www.independent.co.uk/news/uk/home-news/long-covid-intense-exercise-b2473174.html

#LongCovid
#Research
#Exercise
#Muscle
#MuscleDamage
#LongCovidSupportGroup
#LongCovidAdvocacy
#DisabilityLaw

‘Finally we’re believed’: Long Covid sufferers hail new research saying they should avoid intense exercise | The Independent
https://www.independent.co.uk/news/uk/home-news/long-covid-intense-exercise-b2473174.html

#LongCovid
#Research
#Exercise
#Muscle
#MuscleDamage
#LongCovidSupportGroup
#LongCovidAdvocacy
#DisabilityLaw

ABCNewsLive did a phenomenal 11 minute piece on #LongCovid featuring the COVID-19 Longhauler Advocacy Project's very own Dir of Education, Netia McCray, and Founder, Karyn Bishof! They discuss life before the pandemic and how dramatically it's changed living with #LongCovid. 1/2
https://youtu.be/lGGtXpSpiJY

#FBLC #longhauler #COVID #PASC #LongCovidAdvocacy #longcovidawareness #longcovidresearch #longcovidsupport #longcovideducation #longcovidrecovery #longcovidassociatedconditions #LC #LCAC

ABCNewsLive did a phenomenal 11 minute piece on #LongCovid featuring the COVID-19 Longhauler Advocacy Project's very own Dir of Education, Netia McCray, and Founder, Karyn Bishof! They discuss life before the pandemic and how dramatically it's changed living with #LongCovid. 1/2
https://youtu.be/lGGtXpSpiJY

#FBLC #longhauler #COVID #PASC #LongCovidAdvocacy #longcovidawareness #longcovidresearch #longcovidsupport #longcovideducation #longcovidrecovery #longcovidassociatedconditions #LC #LCAC

ABCNewsLive did a phenomenal 11 minute piece on #LongCovid featuring the COVID-19 Longhauler Advocacy Project's very own Dir of Education, Netia McCray, and Founder, Karyn Bishof! They discuss life before the pandemic and how dramatically it's changed living with #LongCovid. 1/2
https://youtu.be/lGGtXpSpiJY

#FBLC #longhauler #COVID #PASC #LongCovidAdvocacy #longcovidawareness #longcovidresearch #longcovidsupport #longcovideducation #longcovidrecovery #longcovidassociatedconditions #LC #LCAC

ABCNewsLive did a phenomenal 11 minute piece on #LongCovid featuring the COVID-19 Longhauler Advocacy Project's very own Dir of Education, Netia McCray, and Founder, Karyn Bishof! They discuss life before the pandemic and how dramatically it's changed living with #LongCovid. 1/2
https://youtu.be/lGGtXpSpiJY

#FBLC #longhauler #COVID #PASC #LongCovidAdvocacy #longcovidawareness #longcovidresearch #longcovidsupport #longcovideducation #longcovidrecovery #longcovidassociatedconditions #LC #LCAC

ABCNewsLive did a phenomenal 11 minute piece on #LongCovid featuring the COVID-19 Longhauler Advocacy Project's very own Dir of Education, Netia McCray, and Founder, Karyn Bishof! They discuss life before the pandemic and how dramatically it's changed living with #LongCovid. 1/2
https://youtu.be/lGGtXpSpiJY

#FBLC #longhauler #COVID #PASC #LongCovidAdvocacy #longcovidawareness #longcovidresearch #longcovidsupport #longcovideducation #longcovidrecovery #longcovidassociatedconditions #LC #LCAC

More lists will be posted for anyone in the #LongCovid #MECFS #CovidIsNotOver #CovidIsAirborne community (When more steam arrives 🚂)
If you would like to be included tag #LongCovidAdvocacy or DM or comment your details in the comments or toot an #introduction and will boost.

Are you a young person living with Long Covid?

We want to hear from young people who want to be part of the solution. Help us learn more about Long Covid in children and young people.

What do people need to know ?
How was Long Covid effecting daily life?
What’s been the biggest challenge?
What is needed?

Get involved in our TiKTok campaign.

#LongCovid #LongCovidKids #longcovidsymptoms #TikTok #longcovidadvocacy #childrensrights #kids #covid #advocacy #advocates #dontlookup
#charity

🐘A Toot to say 👋hello to all those in the #LongCovid #MECFS #CovidIsNotOver community who've made it over to #Mastodon

🙇‍♀️It's not easy with energy limitations and cognitive dysfunction to do - so wow - that we continue to support each other is amazing

🐦But we are creating a safety net in case the bird falls or is irrevocably changed

💙✊ Solidarity Always
#LongCovidAdvocacy

#Introduction
#LongCovidAdvocacy is on #Mastodon
Hello👋

Long Covid Advocacy key advocacy aims and specialities

Aims
🔹We seriously need better funding and effective biological research
🔹To draw a line that just having crap rehab and CBT apps is not good enough
🔹 #LongCovid and #MECFS are interconnected therefore advocacy for both is essential

Specialities
🔹 Joining the dots - showing how the policies and treatment of #LongCovid #ME are connected to #MedicalHistory #Philosophy #BPS