#loeysdietz — Public Fediverse posts

Please check out myaorticjourney.org - my story plus a growing list of resources for aortic disease education, awareness, management, research, and support. #aortaed #aorticdissection #tad #htad #marfan #loeysdietz #veds #bav #cardiogen #cardiology

This is a call to #MedMastodon for assistance! My team is looking to recruit patients with #Marfans or #LoeysDietz for a simple survey (~20 min) about their #gynecologic and #reproductive health. Please pass along to relevant physicians/patients.

Details can be found at:
https://marfan.org/research/current-studies/

To our knowledge, this is the first of its kind to characterize these aspects of health in these populations. Special thanks to the Marfan's Foundation @[email protected]!