#internationalmeawarenessmonth — Public Fediverse posts

May has been #InternationalMEAwarenessMonth #MEAwarenessMonth, but, alas, I have not been well enough to post nor share much this year. Here is a #poem from a decade ago. Matters have ameliorated slightly in that time, in that awareness has been raised and the issues are within the sights of politicos across the Globe due to #LongCovid.

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #ELCI #PostViralDisorder

Great collection of researchers coming together/working together for International ME Conference Week 2024

https://investinme.org/meconferenceweek2024.shtml

#mecfs #research #InternationalMEawarenessMonth #longcovid #cpd #brmec13 #sparkme #IIMEC16
@euromeresearch @YoungEmerg @EUROMEALL

TW: #SuicidalIdeation

Today is the final day of 2023’s #InternationalMEAwarenessMonth #MEAwarenessMonth

I have run out of personal, relevant blog-posts. So, given my continuing suïcidal ideätion, in which I daily struggle to convince myself to stick around, I thought reposting the song that has helped me of late was best. Via #Blogger “A Song for People with MECFS”

https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/a-song-for-people-with-mecfs.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 29.

A link to my blog-post on #Blogger entitled, “International Day of Persons with Disabilities 2018”, looking at the widespread, #UKgov backed #discrimination against #disabled folk.

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2018/12/international-day-of-persons-with.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 28



A link to my blog-post on #Blogger entitled, “Pain: a Taxonomy”, an attempt to classify #pain as I experience it/them.



#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2012/05/pain-taxonomy.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 25


A link to my blog-post on #Blogger entitled, “Addlement or Brain-Fog”, #BrainFog #FibroFog


#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2014/05/addlement-or-brain-fog.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 24

A link to my blog-post on #Blogger entitled, “all back”, a #poem about grieving for what has been lost due to #ChronicIllness. #poetry

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2013/05/all-back.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 23

A link to my blog-post on #Blogger entitled, “International M.E. Awareness Day, 12th May 2014”, a live-blog of events and changing health throughout one day.

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2014/05/international-me-awareness-day-12th-may.html

My blog-post for this year’s M.E. events, on what the charities could do to help us.

#InternationalMEAwarenessMonth #MEAwarenessMonth

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder

https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 22

A link to my blog-post on #Blogger entitled, “My MEstory: Life with Myalgic Encephalomyelitis”.

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2014/05/my-mestory-life-with-myalgic.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 21

A link to my blog-post on #Blogger entitled, “Global Endemic Plague“, written prior to Covid.

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2015/05/global-endemic-plague.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 20

A link to my blog-post on #Blogger entitled, “Quotidian Losses: IMEAD2016“, which looks at the loss of day-to-day functions of the mind & body.

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2016/05/quotidian-losses-imead2016.html

Whether my #Fibromyalgia &/or my #MyalgicEncephalomyelitis, my body is always in #pain (the visualisation below): differing degrees; different places. Always in pain. And no, even with #painkillers, the pain never totally absents itself!

#InternationalMEAwarenessMonth #MEAwarenessMonth

#pwME #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder

#InternationalMEAwarenessMonth #MEAwarenessMonth day 19

A link to my blog-post on #Blogger entitled, “A Song for People with MECFS“. #IllGetBy

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/a-song-for-people-with-mecfs.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 18

A link to my blog-post on #Blogger entitled, “Severe M.E. Day 2016“.

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2016/08/severe-me-day-2016.html

I am not very techie, so uncertain whether this is a ten-minute-or-so podcast or a radio-broadcast extract. It is all conducted in, for the most part, very clear Austrian-German. The subject matter is the background to the M.E. demonstration in central Vienna.

#InternationalMEAwarenessMonth #MEAwarenessMonth

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder

https://www.technikumone.at/internationaler-me-cfs-tag/

@cjfriess Signature 8276. If the petition reaches 10,000 #UKgov must respond.

#InternationalMEAwarenessMonth #MEAwarenessMonth

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder

It may be #InternationalMEAwarenessMonth #MEAwarenessMonth, but here is some good news about M.E.’s sister illness, #Fibromyalgia.

“the immune system and the peripheral nervous system are involved” which could “lead to a whole new array of treatment choices for a disease that desperately needs them.”

#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid

https://www.healthrising.org/blog/2023/05/10/immune-disease-neutrophils-fibromyalgia/

#InternationalMEAwarenessMonth #MEAwarenessMonth day 16

A link to my blog-post on #Blogger entitled, “Masturbation & ME“. Due to the sexual nature of the contents, probably #NSFW.

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2017/05/masturbation-me.html

Herewith this year’s blog-post for #InternationalMEAwarenessDay #MEAwarenessDay, entitled “Pink Triangles, Blue Triangles” on the theme of pro-active, pragmatic support for individual people with M.E. (#PwME ).

#InternationalMEAwarenessMonth #MEAwarenessMonth

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder

https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 11

A link to my blog-post on #Blogger entitled, “ME” - it’s a shortish #poem. #Poetry

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2018/08/me.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 10

A link to my blog-post on #Blogger entitled, “My Myalgic Encephalomyelitis - My M.E.”

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2018/12/my-myalgic-encephalomyelitis-my-me.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 9

A link to my blog-post on #Blogger entitled, “International M.E. Awareness Day 2020” which details my various illnesses, #comorbidities & symptoms. (F.Y.I. this list has been superseded.)

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2020/05/international-me-awareness-day-2020.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 8

A link to my blog-post on #Blogger entitled, “Computer-Usage for pwME or other Chronic Illnesses”

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2021/03/computer-usage-for-pwme-or-other.html


#InternationalMEAwarenessMonth #MEAwarenessMonth day 7

A link to my blog-post on #Blogger entitled, “International M.E. Awareness Day 2021”

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME 

https://crippledqueeranglo-europeanranter.blogspot.com/2021/05/today-12th-may-us-may-12th-is.html

#InternationalMEAwarenessMonth #MEAwarenessMonth day 6

A link to my blog-post on #Blogger entitled, “Crime, Death or Asylum?”

#pwME #MyalgicEncephalomyelitis #MECFS #SevereME

https://crippledqueeranglo-europeanranter.blogspot.com/2022/04/crime-death-or-asylum.html

#AviKaplan’s “I’ll Get By” could be the theme-tune for folk with #MyalgicEncephalomyelitis #pwME, especially those of us suffering from #SevereME. I love that the hashtag equates to #IllGetBy, which can be read as the actual title or as the ill get by. 💙

#InternationalMEAwarenessMonth #MEAwarenessMonth

https://youtu.be/A1m0xdTN56E

Full lyrics & credits in the following thread…

I have signed up to #OpenMedicineFoundation‘s volunteer research-participant register, #StudyME , whereby scientists can locate potential contributors. The sign-up takes approximately five minutes.

I have #SevereME and the last page of text was the most difficult & time-consuming section for me to follow.

#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #MECFS
#pwFM #Fibromyalgia
#PVFS #PostViralFatigueSyndrome

https://www.omf.ngo/studyme/

The link is to healthaffairs.org where four #poems on #disability can be found. It being #InternationalMEAwarenessMonth #MEAwarenessMonth, the first two are on #MECFS, but the other two will also speak to #pwME, persons with #MyalgicEncephalomyelitis.

Enjoy! 💙

https://www.healthaffairs.org/content/forefront/sun-sneaks-more-poems-disability-and-health

@andy Als ein Mensch mit #MyalgischeEnzephalomyelitis, ich danke Dir vom tiefen Herzen. 💙 #pwME #MECFS #InternationalMEAwarenessMonth