#internationalmeawarenessday — Public Fediverse posts

Mum drew this and wrote the original. #internationalMEAwarenessDay #LymeDisease #GulfWarSyndrome

Herewith this year’s blog-post for #InternationalMEAwarenessDay #MEAwarenessDay, entitled “Pink Triangles, Blue Triangles” on the theme of pro-active, pragmatic support for individual people with M.E. (#PwME ).

#InternationalMEAwarenessMonth #MEAwarenessMonth

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder

https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html

#GreatestMEdicalScandal #MyalgicEncephalomyelitis #PwME #MECFS #MedicalMisogyny #InternationalMEawarenessDay

Written by my mum then digitised by me, as she struggles with computerised devices.

Myalgic Encephalomyelitis- Valerie B’s Story, originally written on September 2024

12 May is
International ME Awareness Day

A view from UK charity Invest in ME Research

"𝙔𝙤𝙪 𝙣𝙚𝙚𝙙 𝙩𝙤 𝙜𝙞𝙫𝙚 𝙈𝙀/𝘾𝙁𝙎 𝙥𝙖𝙩𝙞𝙚𝙣𝙩𝙨 𝙖 𝙛𝙪𝙩𝙪𝙧𝙚"

https://investinme.org/investinMEresearch2024.shtml

#mecfs #InternationalMEawarenessDay #severeME #MEawareness #MEAwarenessmonth

#InternationalMEAwarenessDay #MEAwarenessDay #WorldMEDay made the news in #Austria, where a demonstration in central #Vienna caught the media’s interest. For the most part, the interviewee’s spoken German is very clear. Lasts 5-6 mins.

https://www.puls24.at/news/chronik/mecfs-aktionstag-wenn-der-akku-nicht-mehr-auflaedt/297143

I know it is late in the day, but it is still technically #InternationalMEAwarenessDay #MEAwarenessDay, #WorldMEDay: here I am, a #pwME #SevereME, in my blue T-shirt and blue bedding. I cannot sit upright for long, but wanted to take the photo today to mark the occasion. And thank you to #ÖsterreichischeGesellschaftFürMECFS for my fabulous Leibl!

Tomorrow will be International M.E. Awareness Day. I am warning folks ahead of schedule that - unless unwell - I shall be sharing a lot throughout the day. I donæ expect Twitter to still be here this time next year, so I want to make as much use of resources already creäted before they disappear.

You may wish to mute my posts for 24hours. No umbrage taken. Or you may be kind enough to repost the odd item or two. If the latter, I shall endow you with faëry-dust! 😉 🧚🏻💙 #InternationalMEAwarenessDay

Can hardly believe how recent days panned out! Whilst I have had some bad health issues, I somehow have had short periods of clear-headedness. I have hopefully - assuming nothing else springs to mind - completed the final draft of my blog-post for this year’s #InternationalMEAwarenessDay #MEAwarenessDay. My title is “Pink Triangles, Blue Triangles” which may or may not give one a hint or so. Ha ha ha Anyway, I hope folk will check out my blog idc, a link will be posted here, on 12th May. 🙏🏻🌈💕🤓💙

After making a donation to Österreichische Gesellschaft für #mecfs they kindly sent me a gift - a T-shirt. I shall be proudly wearing it on 12th May, #InternationalMEAwarenessDay #MEAwarenessDay #MEAD2023.

Text reads:

ÖG ME/CFS

ME/CFS

UNVERSORGT Seit 1969

The last sentence translates as “Unprovided for since 1969”.