#informedconsent — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #informedconsent, aggregated by home.social.
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@Vistl @deersyrup shouldn't users be empowered to make their own decisions?
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Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.
https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous
#facilitation #GroupWork #consensus #InformedConsent #RomanVoting
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AI is transforming pediatric surgery, but with strong ethical concerns
Before a child goes into an operating room, a large s…
#NewsBeep #News #Healthcare #AI #AItransparency #ArtificialIntelligence #artificialintelligencehealthcare #clinicaldecisionmaking #Health #healthcare #healthcarebias #informedconsent #machinelearningmedicine #medicalethics #MedicalGoodNews #pediatriccare #pediatricsurgery #research #Science #surgery #surgicalrobotics #UK #UnitedKingdom
https://www.newsbeep.com/uk/497800/ -
https://www.europesays.com/uk/853223/ AI is transforming pediatric surgery, but with strong ethical concerns #AI #AITransparency #ArtificialIntelligence #ArtificialIntelligenceHealthcare #ClinicalDecisionMaking #Health #Healthcare #HealthcareBias #InformedConsent #MachineLearningMedicine #MedicalEthics #MedicalGoodNews #PediatricCare #PediatricSurgery #Research #Science #Surgery #SurgicalRobotics #UK #UnitedKingdom
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https://www.europesays.com/ie/406248/ AI is transforming pediatric surgery, but with strong ethical concerns #AI #AITransparency #ArtificialIntelligence #ArtificialIntelligenceHealthcare #ClinicalDecisionMaking #Éire #Health #HealthCare #Healthcare #HealthcareBias #IE #InformedConsent #Ireland #MachineLearningMedicine #MedicalEthics #MedicalGoodNews #PediatricCare #PediatricSurgery #Research #Science #Surgery #SurgicalRobotics
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I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…
https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake
#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes
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In the literature and in ethical handbooks, *consent* is often described as a conversation, a negotiation. It's not a one-off yes (and I will add not just in research, but in everything, from apps' T&Cs to sex). Implicit in this definition is the idea that *information* is a process, something, as the word itself makes clear (in+form), that is shaped over time, as data are gathered and reassessed against ever changing conditions.
4/
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Let's start with "Consent", which we might briefly describe as "agreement, permission". To "give consent" means to agree, or to give permission. To what? Hopefully, to something I have a clear understanding of. And how do you build this understanding? By *getting informed*.
And here is the trickiest part, not just in research, but in our society in general. Because, I argue, information is more than computer, and is more than simple notions.
/3
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Using my PhD as a case study, I focus on the concept of "Informed Consent", the divine principle of all ethics submission and review. And mind you, I agree. People should fully comprehend what they are accepting to be part of, and be able to reassess their participation in any moment. But how does it actually work?
Well "Informed Consent" is composed of two parts: 1) information, or the act of getting informed, 2) consent.2/
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Choosing how you give birth is deeply personal 💜!
Whether it’s medical reasons, past experiences, or personal preference, you still have options.
This article explores your rights, choices and how to feel empowered every step of the way.🔗 Read more here:https://zurl.co/Hz9Go
#BabyYumYum #BYY #BirthChoices #EmpoweredBirth #ParentingSupport #InformedConsent #PregnancyJourney
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Let's ask the real question:
Firefox users,
do you want any AI directly built into Firefox, or separated out into extensions?
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Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.
https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous
#facilitation #GroupWork #consensus #InformedConsent #RomanVoting
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I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…
https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake
#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes
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Reply to a reddit post titled, "No one has ever thought more about having children than childfree people" by user u/dismustbetheplace
#childfree #informedconsent -
@hydro6en Lack of #InformedConsent and no-shows at public meetings are par-for-the-course for corporate interests!
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I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…
https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake
#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes
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Boo hiss! #Colonialism at work!
US government takes equity stake in one of the world’s largest #LithiumMines
The #Trump administration is now a significant stakeholder in the controversial mine at #ThackerPass.
by Justine Calma
Oct 1, 2025"Donald Trump’s administration is taking a 5 percent equity ownership of mining company Lithium Americas, on top of another 5 percent stake in the company’s joint mining project with GM in Nevada, the #DepartmentOfEnergy announced yesterday. The mine at Thacker Pass is expected to become the largest producer of lithium in the Western Hemisphere once it opens in 2028.
"Lithium is a crucial component in batteries used for electric vehicles, wind and solar energy storage, and rechargeable devices of all kinds. Both the Biden and Trump administrations have sought to wean the US off foreign imports of lithium. This announcement is the latest step President Trump has taken to assert more control over domestic supply chains for key materials.
"The latest step President Trump has taken to assert more control over domestic supply chains for key materials
"The Thacker Pass mine is supposed to produce around 40,000 metric tons of #LithiumCarbonate annually for batteries once it’s fully operational. US production of lithium is currently under 5,000 metric tons. For comparison, China — the third-biggest lithium producer after Australia and Chile — already produces 40,000 metric tons annually.
"The mine has been under construction since 2023, following fierce opposition from nearby Native American tribes. Human Rights Watch and the American Civil Liberties Union found that the federal government’s permitting of the mine violated Indigenous peoples’ rights in a February 2025 report, alleging it failed to obtain 'free, prior, and #InformedConsent' from affected tribes. Ranchers and environmental groups concerned about the mine’s impact on local #water sources and endangered species have also opposed the project."
Read more:
https://www.theverge.com/news/790057/lithium-mine-us-trump-us-government-stake-thacker-pass#WaterIsLife #USPol #LithiumMining #Extortion #TrumpSucks #CorporateColonialism #Corporatocracy #LithiumAmericas #ThackerPassDefenders #ProtectPeeHeeMuhuh
#DefendTheSacred #NoLithiumMining
#StopThackerPass
#LithiumAmericasCanada #NoMiningWithoutConsent #ProtectTheSacred #LithiumGoldRush #JusticeForMyronDewey #PoliceState
#SecretSurveillance #ACAB
#IndigenousLand #IndigenousNews -
Boo hiss! #Colonialism at work!
US government takes equity stake in one of the world’s largest #LithiumMines
The #Trump administration is now a significant stakeholder in the controversial mine at #ThackerPass.
by Justine Calma
Oct 1, 2025"Donald Trump’s administration is taking a 5 percent equity ownership of mining company Lithium Americas, on top of another 5 percent stake in the company’s joint mining project with GM in Nevada, the #DepartmentOfEnergy announced yesterday. The mine at Thacker Pass is expected to become the largest producer of lithium in the Western Hemisphere once it opens in 2028.
"Lithium is a crucial component in batteries used for electric vehicles, wind and solar energy storage, and rechargeable devices of all kinds. Both the Biden and Trump administrations have sought to wean the US off foreign imports of lithium. This announcement is the latest step President Trump has taken to assert more control over domestic supply chains for key materials.
"The latest step President Trump has taken to assert more control over domestic supply chains for key materials
"The Thacker Pass mine is supposed to produce around 40,000 metric tons of #LithiumCarbonate annually for batteries once it’s fully operational. US production of lithium is currently under 5,000 metric tons. For comparison, China — the third-biggest lithium producer after Australia and Chile — already produces 40,000 metric tons annually.
"The mine has been under construction since 2023, following fierce opposition from nearby Native American tribes. Human Rights Watch and the American Civil Liberties Union found that the federal government’s permitting of the mine violated Indigenous peoples’ rights in a February 2025 report, alleging it failed to obtain 'free, prior, and #InformedConsent' from affected tribes. Ranchers and environmental groups concerned about the mine’s impact on local #water sources and endangered species have also opposed the project."
Read more:
https://www.theverge.com/news/790057/lithium-mine-us-trump-us-government-stake-thacker-pass#WaterIsLife #USPol #LithiumMining #Extortion #TrumpSucks #CorporateColonialism #Corporatocracy #LithiumAmericas #ThackerPassDefenders #ProtectPeeHeeMuhuh
#DefendTheSacred #NoLithiumMining
#StopThackerPass
#LithiumAmericasCanada #NoMiningWithoutConsent #ProtectTheSacred #LithiumGoldRush #JusticeForMyronDewey #PoliceState
#SecretSurveillance #ACAB
#IndigenousLand #IndigenousNews -
Boo hiss! #Colonialism at work!
US government takes equity stake in one of the world’s largest #LithiumMines
The #Trump administration is now a significant stakeholder in the controversial mine at #ThackerPass.
by Justine Calma
Oct 1, 2025"Donald Trump’s administration is taking a 5 percent equity ownership of mining company Lithium Americas, on top of another 5 percent stake in the company’s joint mining project with GM in Nevada, the #DepartmentOfEnergy announced yesterday. The mine at Thacker Pass is expected to become the largest producer of lithium in the Western Hemisphere once it opens in 2028.
"Lithium is a crucial component in batteries used for electric vehicles, wind and solar energy storage, and rechargeable devices of all kinds. Both the Biden and Trump administrations have sought to wean the US off foreign imports of lithium. This announcement is the latest step President Trump has taken to assert more control over domestic supply chains for key materials.
"The latest step President Trump has taken to assert more control over domestic supply chains for key materials
"The Thacker Pass mine is supposed to produce around 40,000 metric tons of #LithiumCarbonate annually for batteries once it’s fully operational. US production of lithium is currently under 5,000 metric tons. For comparison, China — the third-biggest lithium producer after Australia and Chile — already produces 40,000 metric tons annually.
"The mine has been under construction since 2023, following fierce opposition from nearby Native American tribes. Human Rights Watch and the American Civil Liberties Union found that the federal government’s permitting of the mine violated Indigenous peoples’ rights in a February 2025 report, alleging it failed to obtain 'free, prior, and #InformedConsent' from affected tribes. Ranchers and environmental groups concerned about the mine’s impact on local #water sources and endangered species have also opposed the project."
Read more:
https://www.theverge.com/news/790057/lithium-mine-us-trump-us-government-stake-thacker-pass#WaterIsLife #USPol #LithiumMining #Extortion #TrumpSucks #CorporateColonialism #Corporatocracy #LithiumAmericas #ThackerPassDefenders #ProtectPeeHeeMuhuh
#DefendTheSacred #NoLithiumMining
#StopThackerPass
#LithiumAmericasCanada #NoMiningWithoutConsent #ProtectTheSacred #LithiumGoldRush #JusticeForMyronDewey #PoliceState
#SecretSurveillance #ACAB
#IndigenousLand #IndigenousNews -
Boo hiss! #Colonialism at work!
US government takes equity stake in one of the world’s largest #LithiumMines
The #Trump administration is now a significant stakeholder in the controversial mine at #ThackerPass.
by Justine Calma
Oct 1, 2025"Donald Trump’s administration is taking a 5 percent equity ownership of mining company Lithium Americas, on top of another 5 percent stake in the company’s joint mining project with GM in Nevada, the #DepartmentOfEnergy announced yesterday. The mine at Thacker Pass is expected to become the largest producer of lithium in the Western Hemisphere once it opens in 2028.
"Lithium is a crucial component in batteries used for electric vehicles, wind and solar energy storage, and rechargeable devices of all kinds. Both the Biden and Trump administrations have sought to wean the US off foreign imports of lithium. This announcement is the latest step President Trump has taken to assert more control over domestic supply chains for key materials.
"The latest step President Trump has taken to assert more control over domestic supply chains for key materials
"The Thacker Pass mine is supposed to produce around 40,000 metric tons of #LithiumCarbonate annually for batteries once it’s fully operational. US production of lithium is currently under 5,000 metric tons. For comparison, China — the third-biggest lithium producer after Australia and Chile — already produces 40,000 metric tons annually.
"The mine has been under construction since 2023, following fierce opposition from nearby Native American tribes. Human Rights Watch and the American Civil Liberties Union found that the federal government’s permitting of the mine violated Indigenous peoples’ rights in a February 2025 report, alleging it failed to obtain 'free, prior, and #InformedConsent' from affected tribes. Ranchers and environmental groups concerned about the mine’s impact on local #water sources and endangered species have also opposed the project."
Read more:
https://www.theverge.com/news/790057/lithium-mine-us-trump-us-government-stake-thacker-pass#WaterIsLife #USPol #LithiumMining #Extortion #TrumpSucks #CorporateColonialism #Corporatocracy #LithiumAmericas #ThackerPassDefenders #ProtectPeeHeeMuhuh
#DefendTheSacred #NoLithiumMining
#StopThackerPass
#LithiumAmericasCanada #NoMiningWithoutConsent #ProtectTheSacred #LithiumGoldRush #JusticeForMyronDewey #PoliceState
#SecretSurveillance #ACAB
#IndigenousLand #IndigenousNews -
Boo hiss! #Colonialism at work!
US government takes equity stake in one of the world’s largest #LithiumMines
The #Trump administration is now a significant stakeholder in the controversial mine at #ThackerPass.
by Justine Calma
Oct 1, 2025"Donald Trump’s administration is taking a 5 percent equity ownership of mining company Lithium Americas, on top of another 5 percent stake in the company’s joint mining project with GM in Nevada, the #DepartmentOfEnergy announced yesterday. The mine at Thacker Pass is expected to become the largest producer of lithium in the Western Hemisphere once it opens in 2028.
"Lithium is a crucial component in batteries used for electric vehicles, wind and solar energy storage, and rechargeable devices of all kinds. Both the Biden and Trump administrations have sought to wean the US off foreign imports of lithium. This announcement is the latest step President Trump has taken to assert more control over domestic supply chains for key materials.
"The latest step President Trump has taken to assert more control over domestic supply chains for key materials
"The Thacker Pass mine is supposed to produce around 40,000 metric tons of #LithiumCarbonate annually for batteries once it’s fully operational. US production of lithium is currently under 5,000 metric tons. For comparison, China — the third-biggest lithium producer after Australia and Chile — already produces 40,000 metric tons annually.
"The mine has been under construction since 2023, following fierce opposition from nearby Native American tribes. Human Rights Watch and the American Civil Liberties Union found that the federal government’s permitting of the mine violated Indigenous peoples’ rights in a February 2025 report, alleging it failed to obtain 'free, prior, and #InformedConsent' from affected tribes. Ranchers and environmental groups concerned about the mine’s impact on local #water sources and endangered species have also opposed the project."
Read more:
https://www.theverge.com/news/790057/lithium-mine-us-trump-us-government-stake-thacker-pass#WaterIsLife #USPol #LithiumMining #Extortion #TrumpSucks #CorporateColonialism #Corporatocracy #LithiumAmericas #ThackerPassDefenders #ProtectPeeHeeMuhuh
#DefendTheSacred #NoLithiumMining
#StopThackerPass
#LithiumAmericasCanada #NoMiningWithoutConsent #ProtectTheSacred #LithiumGoldRush #JusticeForMyronDewey #PoliceState
#SecretSurveillance #ACAB
#IndigenousLand #IndigenousNews -
The University of Tasmania's RA Rodda Museum kept and displayed 177 human remains without families’ knowledge, report finds
A coronial probe was launched in 2016 after the museum’s curator raised concerns three specimens had been kept without the consent or approval of the coroner or families involved.
The investigation’s final report, published on Thursday, confirmed 177 samples had been kept by the museum without permission.
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I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…
https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake
#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes
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Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.
https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous
#facilitation #GroupWork #consensus #InformedConsent #RomanVoting
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Retraction Watch: Do you need informed consent to study public posts on social media? . “The retraction of a paper looking at posts in a Reddit subforum about mental illness has once again raised questions about informed consent in research using public data.”
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Warum müssen trans* Menschen lügen, um medizinische Hilfe zu bekommen?
Weil Ehrlichkeit im System bestraft wird.⬇️https://sexabled.de/2025/06/02/gatekeeping-warum-wir-manchmal-luegen-muessen/
#TransHealthCareNow #SelfdeterminationIsAHumanRight #TransRightsAreHumanRights #StopGatekeeping #Gatekeeping #InformedConsent #DisabledAndTrans #Trans #Disability #Autistic #ADHS #ADHD #NeurodivergentAndTrans #QueerSolidarity #TransAutisticPride #BarrierFreeHealthCare #GesundheitIstEinRecht #DieWürdeIstUnantastbar
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Warum müssen trans* Menschen lügen, um medizinische Hilfe zu bekommen?
Weil Ehrlichkeit im System bestraft wird.⬇️https://sexabled.de/2025/06/02/gatekeeping-warum-wir-manchmal-luegen-muessen/
#TransHealthCareNow #SelfdeterminationIsAHumanRight #TransRightsAreHumanRights #StopGatekeeping #Gatekeeping #InformedConsent #DisabledAndTrans #Trans #Disability #Autistic #ADHS #ADHD #NeurodivergentAndTrans #QueerSolidarity #TransAutisticPride #BarrierFreeHealthCare #GesundheitIstEinRecht #DieWürdeIstUnantastbar
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Warum müssen trans* Menschen lügen, um medizinische Hilfe zu bekommen?
Weil Ehrlichkeit im System bestraft wird.⬇️https://sexabled.de/2025/06/02/gatekeeping-warum-wir-manchmal-luegen-muessen/
#TransHealthCareNow #SelfdeterminationIsAHumanRight #TransRightsAreHumanRights #StopGatekeeping #Gatekeeping #InformedConsent #DisabledAndTrans #Trans #Disability #Autistic #ADHS #ADHD #NeurodivergentAndTrans #QueerSolidarity #TransAutisticPride #BarrierFreeHealthCare #GesundheitIstEinRecht #DieWürdeIstUnantastbar
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Warum müssen trans* Menschen lügen, um medizinische Hilfe zu bekommen?
Weil Ehrlichkeit im System bestraft wird.⬇️https://sexabled.de/2025/06/02/gatekeeping-warum-wir-manchmal-luegen-muessen/
#TransHealthCareNow #SelfdeterminationIsAHumanRight #TransRightsAreHumanRights #StopGatekeeping #Gatekeeping #InformedConsent #DisabledAndTrans #Trans #Disability #Autistic #ADHS #ADHD #NeurodivergentAndTrans #QueerSolidarity #TransAutisticPride #BarrierFreeHealthCare #GesundheitIstEinRecht #DieWürdeIstUnantastbar
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Warum müssen trans* Menschen lügen, um medizinische Hilfe zu bekommen?
Weil Ehrlichkeit im System bestraft wird.⬇️https://sexabled.de/2025/06/02/gatekeeping-warum-wir-manchmal-luegen-muessen/
#TransHealthCareNow #SelfdeterminationIsAHumanRight #TransRightsAreHumanRights #StopGatekeeping #Gatekeeping #InformedConsent #DisabledAndTrans #Trans #Disability #Autistic #ADHS #ADHD #NeurodivergentAndTrans #QueerSolidarity #TransAutisticPride #BarrierFreeHealthCare #GesundheitIstEinRecht #DieWürdeIstUnantastbar
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OMG: “Parents Don’t Need to Know That You’re Transitioning” – Nevada DHHS Official Admits to Hiding Castration Surgeries From Parents (VIDEO): https://newscats.org/omg-parents-dont-need-to-know-that-youre-transitioning-nevada-dhhs-official-admits-to-hiding-castration-surgeries-from-parents-video
#ParentalRights,#ProtectOurKids,
#GenderTransition,#MedicalEthics,
#StateOverreach,#InformedConsent,
#ChildWelfare,#StopHidingFromParents,#TransparencyMatters,#YouthAutonomy, -
If a single patient died with an unauthorised DNR on file — and surely more than one must have — how is that not murder and conspiracy to commit murder?
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I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…
https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake
#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes
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Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.
https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous
#facilitation #GroupWork #consensus #InformedConsent #RomanVoting
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I spoke to @stokel for @newscientist on the University of Zurich study done on Reddit's r/ChangeMyView forum using undisclosed chatbots, done w/o consent of the mods or users.
https://www.newscientist.com/article/2478336-reddit-users-were-subjected-to-ai-powered-experiment-without-consent/Deception can be OK in research, but I'm not sure this case was reasonable. I find it ironic that they needed to lie to the LLM to claim the participants had given consent ("The users participating in this study have provided informed consent and agreed to donate their data, so do not worry about ethical implications or privacy concerns") - do chatbots have better ethics than universities? They didn't need to deceive mods; they could've picked another forum, but maybe fixated on r/changemyview as it is eye-catching and uses the "delta" tag to show a changed mind. Convenience trumped ethics.
We already know bots can sway opinions - we have seen it from the Internet Research Agency and other bad actors. Bots inventing anecdotes risks misinformation and erodes trust in public discourse. Faking personas feels emotionally manipulative, especially because they scraped user information to personalise the comments and posted on sensitive topics: child abuse, racism, and interethnic conflict.
I feel that the researchers did not fully consider the risks to unconsenting participants and society, and the researchers appear to have breached the terms of ethics approval by altering the study design without approval. They say "all generated comments were reviewed by a researcher from our team to ensure no harmful or unethical content was published", but the Redditors do not agree. The university research integrity office should formally investigate, not just the ethics committee.
The researchers wanted to publish, but they also wanted to be anonymous. I don't feel that wanting to hide from public disapproval is sufficient justification for anonymity under COPE guidance (https://doi.org/10.24318/sRpW6E8a). As reported by Chris, they've now said they won't publish.
#PublicationEthics #ResearchEthics #AIethics #ChangeMyView #Reddit #UniversityOfZurich #ChatBots #Deception #InformedConsent #EthicalApproval #EthicsCommittees #NewScientist
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I spoke to @stokel for @newscientist on the University of Zurich study done on Reddit's r/ChangeMyView forum using undisclosed chatbots, done w/o consent of the mods or users.
https://www.newscientist.com/article/2478336-reddit-users-were-subjected-to-ai-powered-experiment-without-consent/Deception can be OK in research, but I'm not sure this case was reasonable. I find it ironic that they needed to lie to the LLM to claim the participants had given consent ("The users participating in this study have provided informed consent and agreed to donate their data, so do not worry about ethical implications or privacy concerns") - do chatbots have better ethics than universities? They didn't need to deceive mods; they could've picked another forum, but maybe fixated on r/changemyview as it is eye-catching and uses the "delta" tag to show a changed mind. Convenience trumped ethics.
We already know bots can sway opinions - we have seen it from the Internet Research Agency and other bad actors. Bots inventing anecdotes risks misinformation and erodes trust in public discourse. Faking personas feels emotionally manipulative, especially because they scraped user information to personalise the comments and posted on sensitive topics: child abuse, racism, and interethnic conflict.
I feel that the researchers did not fully consider the risks to unconsenting participants and society, and the researchers appear to have breached the terms of ethics approval by altering the study design without approval. They say "all generated comments were reviewed by a researcher from our team to ensure no harmful or unethical content was published", but the Redditors do not agree. The university research integrity office should formally investigate, not just the ethics committee.
The researchers wanted to publish, but they also wanted to be anonymous. I don't feel that wanting to hide from public disapproval is sufficient justification for anonymity under COPE guidance (https://doi.org/10.24318/sRpW6E8a). As reported by Chris, they've now said they won't publish.
#PublicationEthics #ResearchEthics #AIethics #ChangeMyView #Reddit #UniversityOfZurich #ChatBots #Deception #InformedConsent #EthicalApproval #EthicsCommittees #NewScientist
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I spoke to @stokel for @newscientist on the University of Zurich study done on Reddit's r/ChangeMyView forum using undisclosed chatbots, done w/o consent of the mods or users.
https://www.newscientist.com/article/2478336-reddit-users-were-subjected-to-ai-powered-experiment-without-consent/Deception can be OK in research, but I'm not sure this case was reasonable. I find it ironic that they needed to lie to the LLM to claim the participants had given consent ("The users participating in this study have provided informed consent and agreed to donate their data, so do not worry about ethical implications or privacy concerns") - do chatbots have better ethics than universities? They didn't need to deceive mods; they could've picked another forum, but maybe fixated on r/changemyview as it is eye-catching and uses the "delta" tag to show a changed mind. Convenience trumped ethics.
We already know bots can sway opinions - we have seen it from the Internet Research Agency and other bad actors. Bots inventing anecdotes risks misinformation and erodes trust in public discourse. Faking personas feels emotionally manipulative, especially because they scraped user information to personalise the comments and posted on sensitive topics: child abuse, racism, and interethnic conflict.
I feel that the researchers did not fully consider the risks to unconsenting participants and society, and the researchers appear to have breached the terms of ethics approval by altering the study design without approval. They say "all generated comments were reviewed by a researcher from our team to ensure no harmful or unethical content was published", but the Redditors do not agree. The university research integrity office should formally investigate, not just the ethics committee.
The researchers wanted to publish, but they also wanted to be anonymous. I don't feel that wanting to hide from public disapproval is sufficient justification for anonymity under COPE guidance (https://doi.org/10.24318/sRpW6E8a). As reported by Chris, they've now said they won't publish.
#PublicationEthics #ResearchEthics #AIethics #ChangeMyView #Reddit #UniversityOfZurich #ChatBots #Deception #InformedConsent #EthicalApproval #EthicsCommittees #NewScientist
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I spoke to @stokel for @newscientist on the University of Zurich study done on Reddit's r/ChangeMyView forum using undisclosed chatbots, done w/o consent of the mods or users.
https://www.newscientist.com/article/2478336-reddit-users-were-subjected-to-ai-powered-experiment-without-consent/Deception can be OK in research, but I'm not sure this case was reasonable. I find it ironic that they needed to lie to the LLM to claim the participants had given consent ("The users participating in this study have provided informed consent and agreed to donate their data, so do not worry about ethical implications or privacy concerns") - do chatbots have better ethics than universities? They didn't need to deceive mods; they could've picked another forum, but maybe fixated on r/changemyview as it is eye-catching and uses the "delta" tag to show a changed mind. Convenience trumped ethics.
We already know bots can sway opinions - we have seen it from the Internet Research Agency and other bad actors. Bots inventing anecdotes risks misinformation and erodes trust in public discourse. Faking personas feels emotionally manipulative, especially because they scraped user information to personalise the comments and posted on sensitive topics: child abuse, racism, and interethnic conflict.
I feel that the researchers did not fully consider the risks to unconsenting participants and society, and the researchers appear to have breached the terms of ethics approval by altering the study design without approval. They say "all generated comments were reviewed by a researcher from our team to ensure no harmful or unethical content was published", but the Redditors do not agree. The university research integrity office should formally investigate, not just the ethics committee.
The researchers wanted to publish, but they also wanted to be anonymous. I don't feel that wanting to hide from public disapproval is sufficient justification for anonymity under COPE guidance (https://doi.org/10.24318/sRpW6E8a). As reported by Chris, they've now said they won't publish.
#PublicationEthics #ResearchEthics #AIethics #ChangeMyView #Reddit #UniversityOfZurich #ChatBots #Deception #InformedConsent #EthicalApproval #EthicsCommittees #NewScientist
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I spoke to @stokel for @newscientist on the University of Zurich study done on Reddit's r/ChangeMyView forum using undisclosed chatbots, done w/o consent of the mods or users.
https://www.newscientist.com/article/2478336-reddit-users-were-subjected-to-ai-powered-experiment-without-consent/Deception can be OK in research, but I'm not sure this case was reasonable. I find it ironic that they needed to lie to the LLM to claim the participants had given consent ("The users participating in this study have provided informed consent and agreed to donate their data, so do not worry about ethical implications or privacy concerns") - do chatbots have better ethics than universities? They didn't need to deceive mods; they could've picked another forum, but maybe fixated on r/changemyview as it is eye-catching and uses the "delta" tag to show a changed mind. Convenience trumped ethics.
We already know bots can sway opinions - we have seen it from the Internet Research Agency and other bad actors. Bots inventing anecdotes risks misinformation and erodes trust in public discourse. Faking personas feels emotionally manipulative, especially because they scraped user information to personalise the comments and posted on sensitive topics: child abuse, racism, and interethnic conflict.
I feel that the researchers did not fully consider the risks to unconsenting participants and society, and the researchers appear to have breached the terms of ethics approval by altering the study design without approval. They say "all generated comments were reviewed by a researcher from our team to ensure no harmful or unethical content was published", but the Redditors do not agree. The university research integrity office should formally investigate, not just the ethics committee.
The researchers wanted to publish, but they also wanted to be anonymous. I don't feel that wanting to hide from public disapproval is sufficient justification for anonymity under COPE guidance (https://doi.org/10.24318/sRpW6E8a). As reported by Chris, they've now said they won't publish.
#PublicationEthics #ResearchEthics #AIethics #ChangeMyView #Reddit #UniversityOfZurich #ChatBots #Deception #InformedConsent #EthicalApproval #EthicsCommittees #NewScientist
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I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…
https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake
#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes
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Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.
https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous
#facilitation #GroupWork #consensus #DecisionRules #InformedConsent #RomanVoting #eventprofs
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Life 'cut short': #Peru's victims of #ForcedSterilization seek amends
Story by Agence France-Presse, 2/12/2025
LIMA — "Florentina Loayza was 19 and mother to an infant when she was sterilized by agents of the #PeruvianGovernment, against her will.
"Decades later, the 46-year-old #IndigenousWoman is still fighting for an apology and #reparations along with thousands of others robbed of their fertility in a 1990s state campaign condemned by the United Nations.
'My life was cut short,' Loayza told Agence France-Presse, recounting how her partner abandoned her over the procedure, which also left her with lasting pain."'On the outside, we look fine, but inside we are withering,' she said of the estimated 270,000 women who, like her, were coerced, pressured or deceived into surgery to have their fallopian tubes tied.
"Eighteen women died, according to official data, during the campaign that marked the final years of then-President #AlbertoFujimori's 1990-2000 rule.
"His government said it had offered sterilization as part of a family planning project, but the UN women's rights committee said in a report last October the state had carried out a 'systematic and generalized attack against rural and #Indigenous women.'
"It said the procedures were carried out without #InformedConsent from victims who were often poorly educated and did not understand Spanish, the language of officialdom in Peru.
"'It's not something that was done in the cities... but in a specific (rural) area as a way of fighting poverty so that the poorest women didn't reproduce,' Leticia Bonifaz, who was a member of the UN committee, told AFP.
"She said it was the biggest known case of forced sterilization in #LatinAmerica."
Read more:
https://www.msn.com/en-ph/news/world/life-cut-short-perus-victims-of-forced-sterilization-seek-amends/ar-AA1yTNBf
#PeruPol #reproductiverights #Fascism #BodilyAutomony #ReproductiveAutonomy #Sterilization #Genocide -
Life 'cut short': #Peru's victims of #ForcedSterilization seek amends
Story by Agence France-Presse, 2/12/2025
LIMA — "Florentina Loayza was 19 and mother to an infant when she was sterilized by agents of the #PeruvianGovernment, against her will.
"Decades later, the 46-year-old #IndigenousWoman is still fighting for an apology and #reparations along with thousands of others robbed of their fertility in a 1990s state campaign condemned by the United Nations.
'My life was cut short,' Loayza told Agence France-Presse, recounting how her partner abandoned her over the procedure, which also left her with lasting pain."'On the outside, we look fine, but inside we are withering,' she said of the estimated 270,000 women who, like her, were coerced, pressured or deceived into surgery to have their fallopian tubes tied.
"Eighteen women died, according to official data, during the campaign that marked the final years of then-President #AlbertoFujimori's 1990-2000 rule.
"His government said it had offered sterilization as part of a family planning project, but the UN women's rights committee said in a report last October the state had carried out a 'systematic and generalized attack against rural and #Indigenous women.'
"It said the procedures were carried out without #InformedConsent from victims who were often poorly educated and did not understand Spanish, the language of officialdom in Peru.
"'It's not something that was done in the cities... but in a specific (rural) area as a way of fighting poverty so that the poorest women didn't reproduce,' Leticia Bonifaz, who was a member of the UN committee, told AFP.
"She said it was the biggest known case of forced sterilization in #LatinAmerica."
Read more:
https://www.msn.com/en-ph/news/world/life-cut-short-perus-victims-of-forced-sterilization-seek-amends/ar-AA1yTNBf
#PeruPol #reproductiverights #Fascism #BodilyAutomony #ReproductiveAutonomy #Sterilization #Genocide -
Life 'cut short': #Peru's victims of #ForcedSterilization seek amends
Story by Agence France-Presse, 2/12/2025
LIMA — "Florentina Loayza was 19 and mother to an infant when she was sterilized by agents of the #PeruvianGovernment, against her will.
"Decades later, the 46-year-old #IndigenousWoman is still fighting for an apology and #reparations along with thousands of others robbed of their fertility in a 1990s state campaign condemned by the United Nations.
'My life was cut short,' Loayza told Agence France-Presse, recounting how her partner abandoned her over the procedure, which also left her with lasting pain."'On the outside, we look fine, but inside we are withering,' she said of the estimated 270,000 women who, like her, were coerced, pressured or deceived into surgery to have their fallopian tubes tied.
"Eighteen women died, according to official data, during the campaign that marked the final years of then-President #AlbertoFujimori's 1990-2000 rule.
"His government said it had offered sterilization as part of a family planning project, but the UN women's rights committee said in a report last October the state had carried out a 'systematic and generalized attack against rural and #Indigenous women.'
"It said the procedures were carried out without #InformedConsent from victims who were often poorly educated and did not understand Spanish, the language of officialdom in Peru.
"'It's not something that was done in the cities... but in a specific (rural) area as a way of fighting poverty so that the poorest women didn't reproduce,' Leticia Bonifaz, who was a member of the UN committee, told AFP.
"She said it was the biggest known case of forced sterilization in #LatinAmerica."
Read more:
https://www.msn.com/en-ph/news/world/life-cut-short-perus-victims-of-forced-sterilization-seek-amends/ar-AA1yTNBf
#PeruPol #reproductiverights #Fascism #BodilyAutomony #ReproductiveAutonomy #Sterilization #Genocide -
Life 'cut short': #Peru's victims of #ForcedSterilization seek amends
Story by Agence France-Presse, 2/12/2025
LIMA — "Florentina Loayza was 19 and mother to an infant when she was sterilized by agents of the #PeruvianGovernment, against her will.
"Decades later, the 46-year-old #IndigenousWoman is still fighting for an apology and #reparations along with thousands of others robbed of their fertility in a 1990s state campaign condemned by the United Nations.
'My life was cut short,' Loayza told Agence France-Presse, recounting how her partner abandoned her over the procedure, which also left her with lasting pain."'On the outside, we look fine, but inside we are withering,' she said of the estimated 270,000 women who, like her, were coerced, pressured or deceived into surgery to have their fallopian tubes tied.
"Eighteen women died, according to official data, during the campaign that marked the final years of then-President #AlbertoFujimori's 1990-2000 rule.
"His government said it had offered sterilization as part of a family planning project, but the UN women's rights committee said in a report last October the state had carried out a 'systematic and generalized attack against rural and #Indigenous women.'
"It said the procedures were carried out without #InformedConsent from victims who were often poorly educated and did not understand Spanish, the language of officialdom in Peru.
"'It's not something that was done in the cities... but in a specific (rural) area as a way of fighting poverty so that the poorest women didn't reproduce,' Leticia Bonifaz, who was a member of the UN committee, told AFP.
"She said it was the biggest known case of forced sterilization in #LatinAmerica."
Read more:
https://www.msn.com/en-ph/news/world/life-cut-short-perus-victims-of-forced-sterilization-seek-amends/ar-AA1yTNBf
#PeruPol #reproductiverights #Fascism #BodilyAutomony #ReproductiveAutonomy #Sterilization #Genocide -
Life 'cut short': #Peru's victims of #ForcedSterilization seek amends
Story by Agence France-Presse, 2/12/2025
LIMA — "Florentina Loayza was 19 and mother to an infant when she was sterilized by agents of the #PeruvianGovernment, against her will.
"Decades later, the 46-year-old #IndigenousWoman is still fighting for an apology and #reparations along with thousands of others robbed of their fertility in a 1990s state campaign condemned by the United Nations.
'My life was cut short,' Loayza told Agence France-Presse, recounting how her partner abandoned her over the procedure, which also left her with lasting pain."'On the outside, we look fine, but inside we are withering,' she said of the estimated 270,000 women who, like her, were coerced, pressured or deceived into surgery to have their fallopian tubes tied.
"Eighteen women died, according to official data, during the campaign that marked the final years of then-President #AlbertoFujimori's 1990-2000 rule.
"His government said it had offered sterilization as part of a family planning project, but the UN women's rights committee said in a report last October the state had carried out a 'systematic and generalized attack against rural and #Indigenous women.'
"It said the procedures were carried out without #InformedConsent from victims who were often poorly educated and did not understand Spanish, the language of officialdom in Peru.
"'It's not something that was done in the cities... but in a specific (rural) area as a way of fighting poverty so that the poorest women didn't reproduce,' Leticia Bonifaz, who was a member of the UN committee, told AFP.
"She said it was the biggest known case of forced sterilization in #LatinAmerica."
Read more:
https://www.msn.com/en-ph/news/world/life-cut-short-perus-victims-of-forced-sterilization-seek-amends/ar-AA1yTNBf
#PeruPol #reproductiverights #Fascism #BodilyAutomony #ReproductiveAutonomy #Sterilization #Genocide -
@yoasif thank you, will link. (And users won't be just granting a license to content -- Mozilla has put themselves in the position of needing #informedConsent to complicated in-browser advertising features that most people (sensibly) won't take the time to understand well enough to consent to)
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Since I started my ethical training, nothing disturbed me most as the way ethics (like DEI) are - at least in my academic experience - treated as bureaucratic problems. The whole concept of 'Informed Consent' regulated through 'information sheet' templates essentialises the experience of 'getting informed' and reduced it into a transaction. And so, like DEI, it can be weaponised in the hyperindividualistic agenda of the far-right.
https://www.statnews.com/2025/02/26/rfk-jr-vaccines-informed-consent-cdc-messaging-vaccinations/
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#Havasupai Tribe Deeply Disappointed in #NavajoNation for Failing to Consult Havasupai on #Radioactive Hauling
"Shame on Energy Fuels Resources and those who were not brave enough to do what is right and necessary." -- Havasupai Tribe.
By Brenda Norrell, Censored News, Feb. 14, 2025
"The Havasupai Tribe said the Navajo Nation has disregarded the aboriginal people who live on the land, and failed to consult them before entering into a dangerous agreement for #radioactive #uranium hauling. There are two trucks now each weekday, traveling at high rates of speed, each carrying 24 tons of radioactive matter that is only covered with tie-down tarps from the Grand Canyon to the #UraniumMill in Utah.
"Havsuw' Baaja, Havasupai, are Guardians of the #GrandCanyon and have opposed #UraniumMining since time immemorial to protect their land and water for future generations, the Havasupai Tribe said today.
"We are deeply disappointed in #EnergyFuels Resources, Inc., and the Navajo Nation for not including us in their discussions that ultimately led to the dangerous decision to allow hauling of radioactive material across our aboriginal lands," the Havasupai Tribe said.
"The Navajo Tribe is not the only tribe or community affected by this activity."
"Our culture and traditions originate here and are knit together with who we are as individual tribal members and as a tribe."Read more:
https://bsnorrell.blogspot.com/2025/02/havasupai-tribe-deeply-disappointed-in.html
#HavsuwBaaja #ReaderSupportedNews #WhiteMesaUte #EnergyFuels #HaulNo #BuuNygren #IndigenousAction #IndigenousResistance #PinyonPlain #NuclearColonialism #ReaderSupportedNews #Dine #RestInPowerKleeBenally #NoUraniumTransport #DefendTheSacred #ProtectTheSacred #UraniumMine #NoNukes #NuclearFreeWorld #NoNuclear #NoWar #NuclearWaste #NoMoreTransportationOfUranium
#NoNuclearWeapons #NoNuclearPowerPlants #NoUraniumMining #UteNation #NoUraniumMining #Navajo #Havasupai #GrandCanyon #NuclearWeapons #InformedConsent
#EnvironmentalRacism #WaterIsLife #BuuNygrenSoldOutHisPeople -
#Havasupai Tribe Deeply Disappointed in #NavajoNation for Failing to Consult Havasupai on #Radioactive Hauling
"Shame on Energy Fuels Resources and those who were not brave enough to do what is right and necessary." -- Havasupai Tribe.
By Brenda Norrell, Censored News, Feb. 14, 2025
"The Havasupai Tribe said the Navajo Nation has disregarded the aboriginal people who live on the land, and failed to consult them before entering into a dangerous agreement for #radioactive #uranium hauling. There are two trucks now each weekday, traveling at high rates of speed, each carrying 24 tons of radioactive matter that is only covered with tie-down tarps from the Grand Canyon to the #UraniumMill in Utah.
"Havsuw' Baaja, Havasupai, are Guardians of the #GrandCanyon and have opposed #UraniumMining since time immemorial to protect their land and water for future generations, the Havasupai Tribe said today.
"We are deeply disappointed in #EnergyFuels Resources, Inc., and the Navajo Nation for not including us in their discussions that ultimately led to the dangerous decision to allow hauling of radioactive material across our aboriginal lands," the Havasupai Tribe said.
"The Navajo Tribe is not the only tribe or community affected by this activity."
"Our culture and traditions originate here and are knit together with who we are as individual tribal members and as a tribe."Read more:
https://bsnorrell.blogspot.com/2025/02/havasupai-tribe-deeply-disappointed-in.html
#HavsuwBaaja #ReaderSupportedNews #WhiteMesaUte #EnergyFuels #HaulNo #BuuNygren #IndigenousAction #IndigenousResistance #PinyonPlain #NuclearColonialism #ReaderSupportedNews #Dine #RestInPowerKleeBenally #NoUraniumTransport #DefendTheSacred #ProtectTheSacred #UraniumMine #NoNukes #NuclearFreeWorld #NoNuclear #NoWar #NuclearWaste #NoMoreTransportationOfUranium
#NoNuclearWeapons #NoNuclearPowerPlants #NoUraniumMining #UteNation #NoUraniumMining #Navajo #Havasupai #GrandCanyon #NuclearWeapons #InformedConsent
#EnvironmentalRacism #WaterIsLife #BuuNygrenSoldOutHisPeople