#informedconsent — Public Fediverse posts

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

1,741 "informed" consents with one click? GDPR complaint filed

https://noyb.eu/en/1741-informed-consents-one-click-gdpr-complaint-against-dictcc-filed

Comments: https://news.ycombinator.com/item?id=49106384

#HackerNews #GDPR #informedconsent #privacydata #dataregulation #compliance

1,741 "informed" consents with one click? GDPR complaint filed

https://noyb.eu/en/1741-informed-consents-one-click-gdpr-complaint-against-dictcc-filed

Comments: https://news.ycombinator.com/item?id=49106384

#HackerNews #GDPR #informedconsent #privacydata #dataregulation #compliance

#Indigenous at the #UnitedNations Expose #AIDatacenters and Racially-Biased #Misinformation

By #BrendaNorrell, #CensoredNews, July 14, 2026

GENEVA -- "The mediocre, middle-of-the-road approach to #AI at the United Nations was countered by testimony today from #IndigenousPeoples pointing out that #ArtificialIntelligence is not a solution, and is doing great harm to Indigenous with derogatory misinformation and massive #datacenters that are poisoning the #land, #water and #air.

"#JaimieWilliams, #MiamiNation in #Indiana, speaking on behalf of the Society of Native Nations, at the U.N. Expert Mechanism on the Rights of Indigenous Peoples, responded to the A.I. summary presented this morning. Williams said the summary does not reflect the true impact of artificial intelligence, particularly in the way the technology is powered.

" 'AI data centers are rapidly being constructed on the land of Indigenous Peoples without free, prior and #InformedConsent from us.'

" 'My people came out of the water, the #SaintJosephRiver in the southeast of #LakeMichigan, along that river there are several data centers,' she said, pointing out that Indigenous across #TurtleIsland share similar stories.

" 'These sacred waterways and lands are being used for A.I. data centers.'

" 'I was once convinced artificial intelligence could help my tribe build our language and culture, but AI is not a sustainable solution.'

" 'There is currently no available technology available to power A.I. without poisoning the water, drying up the rivers and causing further contamination in the territories of Indigenous Peoples, who are already disproportionately affected.' "

Read more:
https://bsnorrell.blogspot.com/2026/07/indigenous-at-united-nations-expose-ai.html

#BigData #BigDataSucks #CorporateColonialism #WaterIsLife #LandIsLife #AirIsLife #ProtectTheSacred #USPol

#Indigenous at the #UnitedNations Expose #AIDatacenters and Racially-Biased #Misinformation

By #BrendaNorrell, #CensoredNews, July 14, 2026

GENEVA -- "The mediocre, middle-of-the-road approach to #AI at the United Nations was countered by testimony today from #IndigenousPeoples pointing out that #ArtificialIntelligence is not a solution, and is doing great harm to Indigenous with derogatory misinformation and massive #datacenters that are poisoning the #land, #water and #air.

"#JaimieWilliams, #MiamiNation in #Indiana, speaking on behalf of the Society of Native Nations, at the U.N. Expert Mechanism on the Rights of Indigenous Peoples, responded to the A.I. summary presented this morning. Williams said the summary does not reflect the true impact of artificial intelligence, particularly in the way the technology is powered.

" 'AI data centers are rapidly being constructed on the land of Indigenous Peoples without free, prior and #InformedConsent from us.'

" 'My people came out of the water, the #SaintJosephRiver in the southeast of #LakeMichigan, along that river there are several data centers,' she said, pointing out that Indigenous across #TurtleIsland share similar stories.

" 'These sacred waterways and lands are being used for A.I. data centers.'

" 'I was once convinced artificial intelligence could help my tribe build our language and culture, but AI is not a sustainable solution.'

" 'There is currently no available technology available to power A.I. without poisoning the water, drying up the rivers and causing further contamination in the territories of Indigenous Peoples, who are already disproportionately affected.' "

Read more:
https://bsnorrell.blogspot.com/2026/07/indigenous-at-united-nations-expose-ai.html

#BigData #BigDataSucks #CorporateColonialism #WaterIsLife #LandIsLife #AirIsLife #ProtectTheSacred #USPol

#IndigenousKnowledge is crucial in the fight against #ClimateChange – here’s why

Explainers
July 31, 2024

Summary

- Indigenous Peoples are custodians of unique knowledge and practices that emphasize the balance between humans and the natural world.
- Many Indigenous traditional practices offer effective climate solutions, such as sustainable agriculture systems and climate-resilient water management.
- By safeguarding key ecosystems that act as carbon sinks and protect #biodiversity, #IndigenousPeoples provide an environmental service to the rest of the world. However, they are frequently excluded from decision-making processes and their rights to lands and resources are not always respected.
- It is impossible to achieve the goals of the #ParisAgreement without full and effective participation of Indigenous Peoples and their free, prior and #InformedConsent.
- Governments must fully recognize the rights of Indigenous Peoples, provide them with direct access to climate finance and capacity building, and integrate Indigenous knowledge into climate policy."

Read more:
https://climatepromise.undp.org/news-and-stories/indigenous-knowledge-crucial-fight-against-climate-change-heres-why

#SolarPunkSunday #LandBack #Conservation #Biodiversity
#CommunityMonitoring #Stewardship
#TEK #TraditionalEcologicalKnowledge

#IndigenousKnowledge is crucial in the fight against #ClimateChange – here’s why

Explainers
July 31, 2024

Summary

- Indigenous Peoples are custodians of unique knowledge and practices that emphasize the balance between humans and the natural world.
- Many Indigenous traditional practices offer effective climate solutions, such as sustainable agriculture systems and climate-resilient water management.
- By safeguarding key ecosystems that act as carbon sinks and protect #biodiversity, #IndigenousPeoples provide an environmental service to the rest of the world. However, they are frequently excluded from decision-making processes and their rights to lands and resources are not always respected.
- It is impossible to achieve the goals of the #ParisAgreement without full and effective participation of Indigenous Peoples and their free, prior and #InformedConsent.
- Governments must fully recognize the rights of Indigenous Peoples, provide them with direct access to climate finance and capacity building, and integrate Indigenous knowledge into climate policy."

Read more:
https://climatepromise.undp.org/news-and-stories/indigenous-knowledge-crucial-fight-against-climate-change-heres-why

#SolarPunkSunday #LandBack #Conservation #Biodiversity
#CommunityMonitoring #Stewardship
#TEK #TraditionalEcologicalKnowledge

Speaking of #informedConsent problems, I visited IMDB to look up a random movie tonight, and suddenly I had an email thanking me for creating an IMDB account. Turns out if you're logged into Amazon, it'll automatically create and IMDB account for you. No prompt, no question, just boom, account created.

#enshittification #Amazon #IMDB

Speaking of #informedConsent problems, I visited IMDB to look up a random movie tonight, and suddenly I had an email thanking me for creating an IMDB account. Turns out if you're logged into Amazon, it'll automatically create and IMDB account for you. No prompt, no question, just boom, account created.

#enshittification #Amazon #IMDB

Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.

https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous

#facilitation #GroupWork #consensus #InformedConsent #RomanVoting

Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.

https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous

#facilitation #GroupWork #consensus #InformedConsent #RomanVoting

Lees tip -> IGJ: Medisch Centrum Kinderwens week jarenlang af van donornorm | Door te sturen op gezinnen in plaats van kinderen kregen 36 donoren meer dan 25 nakomelingen. Ouders en donoren werden daarover onvoldoende geïnformeerd. | #Leiderdorp #donorkinderen #informedconsent #donorconceptie #vruchtbaarheidskliniek #IGJ #spermadonor #MedischCentrumKinderwens #Wdkb |

https://hbpmedia.nl/igj-medisch-centrum-kinderwens-week-jarenlang-af-van-donornorm/

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

@Vistl @deersyrup shouldn't users be empowered to make their own decisions?

#InformedConsent

The Persistent Echo of Henrietta Lacks: Immortal Cells, Human Cost

Henrietta Lacks's cells, taken without consent in 1951, fueled medical research but her family was not recognized for decades. Learn about the ethical issues.

#HenriettaLacks, #HeLaCells, #MedicalEthics, #InformedConsent, #BiomedicalResearch

https://newsletter.tf/henrietta-lacks-cells-ethical-questions-remain/

Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.

https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous

#facilitation #GroupWork #consensus #InformedConsent #RomanVoting

Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.

https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous

#facilitation #GroupWork #consensus #InformedConsent #RomanVoting

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

In the literature and in ethical handbooks, *consent* is often described as a conversation, a negotiation. It's not a one-off yes (and I will add not just in research, but in everything, from apps' T&Cs to sex). Implicit in this definition is the idea that *information* is a process, something, as the word itself makes clear (in+form), that is shaped over time, as data are gathered and reassessed against ever changing conditions.

4/

#Information #Consent #InformedConsent

In the literature and in ethical handbooks, *consent* is often described as a conversation, a negotiation. It's not a one-off yes (and I will add not just in research, but in everything, from apps' T&Cs to sex). Implicit in this definition is the idea that *information* is a process, something, as the word itself makes clear (in+form), that is shaped over time, as data are gathered and reassessed against ever changing conditions.

4/

#Information #Consent #InformedConsent

Let's start with "Consent", which we might briefly describe as "agreement, permission". To "give consent" means to agree, or to give permission. To what? Hopefully, to something I have a clear understanding of. And how do you build this understanding? By *getting informed*.

And here is the trickiest part, not just in research, but in our society in general. Because, I argue, information is more than computer, and is more than simple notions.

/3

#Information #Consent #InformedConsent

Let's start with "Consent", which we might briefly describe as "agreement, permission". To "give consent" means to agree, or to give permission. To what? Hopefully, to something I have a clear understanding of. And how do you build this understanding? By *getting informed*.

And here is the trickiest part, not just in research, but in our society in general. Because, I argue, information is more than computer, and is more than simple notions.

/3

#Information #Consent #InformedConsent

Using my PhD as a case study, I focus on the concept of "Informed Consent", the divine principle of all ethics submission and review. And mind you, I agree. People should fully comprehend what they are accepting to be part of, and be able to reassess their participation in any moment. But how does it actually work?
Well "Informed Consent" is composed of two parts: 1) information, or the act of getting informed, 2) consent.

2/

#Information #Consent #InformedConsent

Using my PhD as a case study, I focus on the concept of "Informed Consent", the divine principle of all ethics submission and review. And mind you, I agree. People should fully comprehend what they are accepting to be part of, and be able to reassess their participation in any moment. But how does it actually work?
Well "Informed Consent" is composed of two parts: 1) information, or the act of getting informed, 2) consent.

2/

#Information #Consent #InformedConsent

Choosing how you give birth is deeply personal 💜!
Whether it’s medical reasons, past experiences, or personal preference, you still have options.
This article explores your rights, choices and how to feel empowered every step of the way.

🔗 Read more here:https://zurl.co/Hz9Go

#BabyYumYum #BYY #BirthChoices #EmpoweredBirth #ParentingSupport #InformedConsent #PregnancyJourney

Let's ask the real question:

Firefox users,

do you want any AI directly built into Firefox, or separated out into extensions?

@firefoxwebdevs
@davidgerard
@tante

#Firefox #InformedConsent

Let's ask the real question:

Firefox users,

do you want any AI directly built into Firefox, or separated out into extensions?

@firefoxwebdevs
@davidgerard
@tante

#Firefox #InformedConsent

Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.

https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous

#facilitation #GroupWork #consensus #InformedConsent #RomanVoting

Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.

https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous

#facilitation #GroupWork #consensus #InformedConsent #RomanVoting

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

Reply to a reddit post titled, "No one has ever thought more about having children than childfree people" by user u/dismustbetheplace
#childfree #informedconsent

Reply to a reddit post titled, "No one has ever thought more about having children than childfree people" by user u/dismustbetheplace
#childfree #informedconsent

@hydro6en Lack of #InformedConsent and no-shows at public meetings are par-for-the-course for corporate interests!

@hydro6en Lack of #InformedConsent and no-shows at public meetings are par-for-the-course for corporate interests!

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

Boo hiss! #Colonialism at work!

US government takes equity stake in one of the world’s largest #LithiumMines

The #Trump administration is now a significant stakeholder in the controversial mine at #ThackerPass.

by Justine Calma
Oct 1, 2025

"Donald Trump’s administration is taking a 5 percent equity ownership of mining company Lithium Americas, on top of another 5 percent stake in the company’s joint mining project with GM in Nevada, the #DepartmentOfEnergy announced yesterday. The mine at Thacker Pass is expected to become the largest producer of lithium in the Western Hemisphere once it opens in 2028.

"Lithium is a crucial component in batteries used for electric vehicles, wind and solar energy storage, and rechargeable devices of all kinds. Both the Biden and Trump administrations have sought to wean the US off foreign imports of lithium. This announcement is the latest step President Trump has taken to assert more control over domestic supply chains for key materials.

"The latest step President Trump has taken to assert more control over domestic supply chains for key materials

"The Thacker Pass mine is supposed to produce around 40,000 metric tons of #LithiumCarbonate annually for batteries once it’s fully operational. US production of lithium is currently under 5,000 metric tons. For comparison, China — the third-biggest lithium producer after Australia and Chile — already produces 40,000 metric tons annually.

"The mine has been under construction since 2023, following fierce opposition from nearby Native American tribes. Human Rights Watch and the American Civil Liberties Union found that the federal government’s permitting of the mine violated Indigenous peoples’ rights in a February 2025 report, alleging it failed to obtain 'free, prior, and #InformedConsent' from affected tribes. Ranchers and environmental groups concerned about the mine’s impact on local #water sources and endangered species have also opposed the project."

Read more:
https://www.theverge.com/news/790057/lithium-mine-us-trump-us-government-stake-thacker-pass

#WaterIsLife #USPol #LithiumMining #Extortion #TrumpSucks #CorporateColonialism #Corporatocracy #LithiumAmericas #ThackerPassDefenders #ProtectPeeHeeMuhuh
#DefendTheSacred #NoLithiumMining
#StopThackerPass
#LithiumAmericasCanada #NoMiningWithoutConsent #ProtectTheSacred #LithiumGoldRush #JusticeForMyronDewey #PoliceState
#SecretSurveillance #ACAB
#IndigenousLand #IndigenousNews

Boo hiss! #Colonialism at work!

US government takes equity stake in one of the world’s largest #LithiumMines

The #Trump administration is now a significant stakeholder in the controversial mine at #ThackerPass.

by Justine Calma
Oct 1, 2025

"Donald Trump’s administration is taking a 5 percent equity ownership of mining company Lithium Americas, on top of another 5 percent stake in the company’s joint mining project with GM in Nevada, the #DepartmentOfEnergy announced yesterday. The mine at Thacker Pass is expected to become the largest producer of lithium in the Western Hemisphere once it opens in 2028.

"Lithium is a crucial component in batteries used for electric vehicles, wind and solar energy storage, and rechargeable devices of all kinds. Both the Biden and Trump administrations have sought to wean the US off foreign imports of lithium. This announcement is the latest step President Trump has taken to assert more control over domestic supply chains for key materials.

"The latest step President Trump has taken to assert more control over domestic supply chains for key materials

"The Thacker Pass mine is supposed to produce around 40,000 metric tons of #LithiumCarbonate annually for batteries once it’s fully operational. US production of lithium is currently under 5,000 metric tons. For comparison, China — the third-biggest lithium producer after Australia and Chile — already produces 40,000 metric tons annually.

"The mine has been under construction since 2023, following fierce opposition from nearby Native American tribes. Human Rights Watch and the American Civil Liberties Union found that the federal government’s permitting of the mine violated Indigenous peoples’ rights in a February 2025 report, alleging it failed to obtain 'free, prior, and #InformedConsent' from affected tribes. Ranchers and environmental groups concerned about the mine’s impact on local #water sources and endangered species have also opposed the project."

Read more:
https://www.theverge.com/news/790057/lithium-mine-us-trump-us-government-stake-thacker-pass

#WaterIsLife #USPol #LithiumMining #Extortion #TrumpSucks #CorporateColonialism #Corporatocracy #LithiumAmericas #ThackerPassDefenders #ProtectPeeHeeMuhuh
#DefendTheSacred #NoLithiumMining
#StopThackerPass
#LithiumAmericasCanada #NoMiningWithoutConsent #ProtectTheSacred #LithiumGoldRush #JusticeForMyronDewey #PoliceState
#SecretSurveillance #ACAB
#IndigenousLand #IndigenousNews

The University of Tasmania's RA Rodda Museum kept and displayed 177 human remains without families’ knowledge, report finds

https://www.theguardian.com/australia-news/2025/sep/11/tasmanian-museum-kept-and-displayed-177-human-remains-without-the-families-knowing-report-finds-ntwnfb

A coronial probe was launched in 2016 after the museum’s curator raised concerns three specimens had been kept without the consent or approval of the coroner or families involved.

The investigation’s final report, published on Thursday, confirmed 177 samples had been kept by the museum without permission.

#auslaw #auspol #bioethics #informedconsent

The University of Tasmania's RA Rodda Museum kept and displayed 177 human remains without families’ knowledge, report finds

https://www.theguardian.com/australia-news/2025/sep/11/tasmanian-museum-kept-and-displayed-177-human-remains-without-the-families-knowing-report-finds-ntwnfb

A coronial probe was launched in 2016 after the museum’s curator raised concerns three specimens had been kept without the consent or approval of the coroner or families involved.

The investigation’s final report, published on Thursday, confirmed 177 samples had been kept by the museum without permission.

#auslaw #auspol #bioethics #informedconsent

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes

Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.

https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous

#facilitation #GroupWork #consensus #InformedConsent #RomanVoting

Sometimes, consensus is dangerous. Seeking it is hard for large groups. What's important is the journey towards consensus, not the destination.

https://www.conferencesthatwork.com/index.php/facilitation/2016/11/consensus-dangerous

#facilitation #GroupWork #consensus #InformedConsent #RomanVoting

Retraction Watch: Do you need informed consent to study public posts on social media? . “The retraction of a paper looking at posts in a Reddit subforum about mental illness has once again raised questions about informed consent in research using public data.”

https://rbfirehose.com/2025/07/11/retraction-watch-do-you-need-informed-consent-to-study-public-posts-on-social-media/

Warum müssen trans* Menschen lügen, um medizinische Hilfe zu bekommen?
Weil Ehrlichkeit im System bestraft wird.⬇️

https://sexabled.de/2025/06/02/gatekeeping-warum-wir-manchmal-luegen-muessen/

#TransHealthCareNow #SelfdeterminationIsAHumanRight #TransRightsAreHumanRights #StopGatekeeping #Gatekeeping #InformedConsent #DisabledAndTrans #Trans #Disability #Autistic #ADHS #ADHD #NeurodivergentAndTrans #QueerSolidarity #TransAutisticPride #BarrierFreeHealthCare #GesundheitIstEinRecht #DieWürdeIstUnantastbar

Warum müssen trans* Menschen lügen, um medizinische Hilfe zu bekommen?
Weil Ehrlichkeit im System bestraft wird.⬇️

https://sexabled.de/2025/06/02/gatekeeping-warum-wir-manchmal-luegen-muessen/

#TransHealthCareNow #SelfdeterminationIsAHumanRight #TransRightsAreHumanRights #StopGatekeeping #Gatekeeping #InformedConsent #DisabledAndTrans #Trans #Disability #Autistic #ADHS #ADHD #NeurodivergentAndTrans #QueerSolidarity #TransAutisticPride #BarrierFreeHealthCare #GesundheitIstEinRecht #DieWürdeIstUnantastbar

If a single patient died with an unauthorised DNR on file — and surely more than one must have — how is that not murder and conspiracy to commit murder?

https://www.theguardian.com/us-news/2025/may/21/unitedhealth-nursing-homes-payments-hospital-transfers

#Healthcare #InformedConsent #malpractice #insurance

I share my most important learning from the biggest consulting mistake I've made. You have probably made it too…

https://www.conferencesthatwork.com/index.php/facilitating-change/2023/04/biggest-consulting-mistake

#consulting #wisdom #InformedConsent #ProjectManagement #learning #mistakes