#ibdawareness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #ibdawareness, aggregated by home.social.
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IBD research has never felt more promising — or more overwhelming. Dual-pathway biologics, spatial transcriptomics, gut-brain connections. When the field advances faster than patients can process, what's the right way to engage?
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Seven IBD research updates from May 25-31: iron deficiency markers, the gut-brain connection, Mayo Clinic on treatment resistance, and early GLP-1 data. Covers a lot — none of it changes treatment tomorrow.
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In remission but wondering if coffee, a beer, or Diet Coke is off the table?
After 24 years with Crohn's, here's my honest answer — including what I actually drink and why. The answer is more nuanced than most people want to hear.
https://ibdmovement.com/coffee-alcohol-and-carbonated-drinks-in-ibd-remission-my-experience/?utm_source=mastodon #CrohnsDisease #IBD #ChronicIllness #IBDAwareness
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"Breakthrough treatment for Crohn's!" — I've been reading those headlines since 2002.
IBD Movement is where I break down what the research actually means for patients — from someone who's lived it for 23 years.
ibdmovement.com/?utm_source=mastodon
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Together we can make our voices heard. Let's not be satisfied with current #crohns treatments, which never work at all for some patients and eventually fail many. We urgently need to find the causes of #crohnsdisease rather than developing more band-aid-like medications. A cure for Crohn's IS possible if we make it the priority.
#ibd #crohnswarrior #ibdwarrior #CrohnsColitis #crohnsandcolitis #crohnsawareness #ibdawareness #crohnsfighter #crohnssucks -
Welcome to... my guts! #uoaa2023 #ibdawareness #nocolonstillrollin #ostomy