#ibdawareness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #ibdawareness, aggregated by home.social.
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IBD research has never felt more promising — or more overwhelming. Dual-pathway biologics, spatial transcriptomics, gut-brain connections. When the field advances faster than patients can process, what's the right way to engage?
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IBD research has never felt more promising — or more overwhelming. Dual-pathway biologics, spatial transcriptomics, gut-brain connections. When the field advances faster than patients can process, what's the right way to engage?
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Seven IBD research updates from May 25-31: iron deficiency markers, the gut-brain connection, Mayo Clinic on treatment resistance, and early GLP-1 data. Covers a lot — none of it changes treatment tomorrow.
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Seven IBD research updates from May 25-31: iron deficiency markers, the gut-brain connection, Mayo Clinic on treatment resistance, and early GLP-1 data. Covers a lot — none of it changes treatment tomorrow.
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This week in IBD research: biologic switching patterns from Brazil (38% switch rate), a systematic review on vaping that actually acknowledges its limits, plus preclinical work on black licorice compounds.
None of it changes my treatment tomorrow — but useful context for ongoing conversations.
#CrohnsDisease #IBD #IBDAwareness
https://ibdmovement.com/week-of-may-11-17-2026-seven-ibd-research-stories-worth-your-attention/?utm_source=mastodon -
Today is World IBD Day 🎗️
If you're living with Crohn's or UC, this one's for you. More than 10 million people worldwide share this diagnosis — and every one of them deserves to know they're not alone.
Read more at ibdmovement.com
https://ibdmovement.com/world-ibd-day-you-are-not-alone/?utm_source=mastodon#WorldIBDDay #IBD #CrohnsDisease #UlcerativeColitis #IBDAwareness
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Seven IBD research stories from May 11-17: real-world biologic switching data (38% switching rate in Brazilian UC patients), a vaping/IBD systematic review with honest acknowledgment of its limits, and early preclinical findings on treatment-resistant IBD. Worth knowing, not practice-changing. #CrohnsDisease #IBD #IBDAwareness https://ibdmovement.com/week-of-may-11-17-2026-seven-ibd-research-stories-worth-your-attention/?utm_source=mastodon
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World IBD Day
Many people living with IBD manage symptoms others never see.
Crohn’s disease and ulcerative colitis can affect daily life through fatigue, pain, unpredictability, and stress, even when someone appears completely well externally.
Insights shared through My Patient Advice often highlight how awareness and supportive communication help people feel less isolated while managing chronic conditions.
#WorldIBDDay #IBDawareness #CrohnsDisease #UlcerativeColitis #InvisibleIllness
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In remission but wondering if coffee, a beer, or Diet Coke is off the table?
After 24 years with Crohn's, here's my honest answer — including what I actually drink and why. The answer is more nuanced than most people want to hear.
https://ibdmovement.com/coffee-alcohol-and-carbonated-drinks-in-ibd-remission-my-experience/?utm_source=mastodon #CrohnsDisease #IBD #ChronicIllness #IBDAwareness
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In remission but wondering if coffee, a beer, or Diet Coke is off the table?
After 24 years with Crohn's, here's my honest answer — including what I actually drink and why. The answer is more nuanced than most people want to hear.
https://ibdmovement.com/coffee-alcohol-and-carbonated-drinks-in-ibd-remission-my-experience/?utm_source=mastodon #CrohnsDisease #IBD #ChronicIllness #IBDAwareness
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"Breakthrough treatment for Crohn's!" — I've been reading those headlines since 2002.
IBD Movement is where I break down what the research actually means for patients — from someone who's lived it for 23 years.
ibdmovement.com/?utm_source=mastodon
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"Breakthrough treatment for Crohn's!" — I've been reading those headlines since 2002.
IBD Movement is where I break down what the research actually means for patients — from someone who's lived it for 23 years.
ibdmovement.com/?utm_source=mastodon
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Together we can make our voices heard. Let's not be satisfied with current #crohns treatments, which never work at all for some patients and eventually fail many. We urgently need to find the causes of #crohnsdisease rather than developing more band-aid-like medications. A cure for Crohn's IS possible if we make it the priority.
#ibd #crohnswarrior #ibdwarrior #CrohnsColitis #crohnsandcolitis #crohnsawareness #ibdawareness #crohnsfighter #crohnssucks -
Together we can make our voices heard. Let's not be satisfied with current #crohns treatments, which never work at all for some patients and eventually fail many. We urgently need to find the causes of #crohnsdisease rather than developing more band-aid-like medications. A cure for Crohn's IS possible if we make it the priority.
#ibd #crohnswarrior #ibdwarrior #CrohnsColitis #crohnsandcolitis #crohnsawareness #ibdawareness #crohnsfighter #crohnssucks -
Together we can make our voices heard. Let's not be satisfied with current #crohns treatments, which never work at all for some patients and eventually fail many. We urgently need to find the causes of #crohnsdisease rather than developing more band-aid-like medications. A cure for Crohn's IS possible if we make it the priority.
#ibd #crohnswarrior #ibdwarrior #CrohnsColitis #crohnsandcolitis #crohnsawareness #ibdawareness #crohnsfighter #crohnssucks -
Together we can make our voices heard. Let's not be satisfied with current #crohns treatments, which never work at all for some patients and eventually fail many. We urgently need to find the causes of #crohnsdisease rather than developing more band-aid-like medications. A cure for Crohn's IS possible if we make it the priority.
#ibd #crohnswarrior #ibdwarrior #CrohnsColitis #crohnsandcolitis #crohnsawareness #ibdawareness #crohnsfighter #crohnssucks -
Welcome to... my guts! #uoaa2023 #ibdawareness #nocolonstillrollin #ostomy
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Welcome to... my guts! #uoaa2023 #ibdawareness #nocolonstillrollin #ostomy
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Welcome to... my guts! #uoaa2023 #ibdawareness #nocolonstillrollin #ostomy
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Welcome to... my guts! #uoaa2023 #ibdawareness #nocolonstillrollin #ostomy
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Welcome to... my guts! #uoaa2023 #ibdawareness #nocolonstillrollin #ostomy