#hlh — Public Fediverse posts

I’ve been feeling a lot of grief this weekend after reading about Professor Amit Patel - a nationally recognized doctor & expert in the rare disease HLH - who died in hospital when medical staff refused to acknowledge his expertise in his own condition.

Many disabled and chronically ill individuals know how dangerous hospitals can be - but reading about a doctor (who had a spouse who was also a physician advocating for him) being unable to get the care he needed to stay alive? It’s terrifying.

I wrote about his death, my own experiences with medical trauma and the need for a safer system for all.

https://open.substack.com/pub/disabledginger/p/prof-amit-patel-death?r=19dk2e&utm_medium=ios

#Disability #ChronicIllness #RareDisease #Spoonies #Ableism #gaslighting #HLH #MedicalTrauma #MedicalGaslighting #Discrimination #DisabilityRights #CovidIsNotOver #CovidCaution

Interested in TB? Interested in HLH?

Then check out our systematic review & meta-analysis on TB-associated cases of HLH.

Fab collaboration BETWEEN clinical research teams at UCL & @Radboud_uni

#medicine #infectiousdiseases #IDMastodon #HLH #inflammation #TB #tuberculosis

So what did we find?🧵👇

https://academic.oup.com/ofid/advance-article/doi/10.1093/ofid/ofad697/7516258?utm_source=advanceaccess&utm_campaign=ofid&utm_medium=email 1/6

Our meta-analysis of TB-associated HLH looking at diagnostics & outcome will be presented by Lisa Kurver at #TBScience e-poster @UnionConference #UnionConf2023 4pm Salle Maillot 5. Preprint 👇
https://www.medrxiv.org/content/10.1101/2023.11.14.23298501v1
#TB #tuberculosis #HLH #IDMastodon #infectiousdiseases #medicine

Our meta-analysis of TB-associated HLH looking at diagnostics & outcome will be presented by Lisa Kurver at #TBScience e-poster @UnionConference #UnionConf2023 4pm Salle Maillot 5. Preprint 👇
https://www.medrxiv.org/content/10.1101/2023.11.14.23298501v1
#TB #tuberculosis #HLH #IDMastodon #infectiousdiseases #medicine

Our meta-analysis of TB-associated HLH looking at diagnostics & outcome will be presented by Lisa Kurver at #TBScience e-poster @UnionConference #UnionConf2023 4pm Salle Maillot 5. Preprint 👇
https://www.medrxiv.org/content/10.1101/2023.11.14.23298501v1
#TB #tuberculosis #HLH #IDMastodon #infectiousdiseases #medicine

Our meta-analysis of TB-associated HLH looking at diagnostics & outcome will be presented by Lisa Kurver at #TBScience e-poster @UnionConference #UnionConf2023 4pm Salle Maillot 5. Preprint 👇
https://www.medrxiv.org/content/10.1101/2023.11.14.23298501v1
#TB #tuberculosis #HLH #IDMastodon #infectiousdiseases #medicine

Our meta-analysis of TB-associated HLH looking at diagnostics & outcome will be presented by Lisa Kurver at #TBScience e-poster @UnionConference #UnionConf2023 4pm Salle Maillot 5. Preprint 👇
https://www.medrxiv.org/content/10.1101/2023.11.14.23298501v1
#TB #tuberculosis #HLH #IDMastodon #infectiousdiseases #medicine

Some evidence of a genetic predisposition for hyperinflammation to convert to HLH
#IDMastodon #MedMastodon #immunology #infectiousdisease #HLH #HIV #IRIS #medicine

https://academic.oup.com/jid/article/228/2/111/7114708

The Lia Radiological Accident - Nuclear Bonfire - YouTube
#KyleHill #TheFacility #HLH #HalfLifeHistories
https://www.youtube.com/watch?v=e3GYg7Y_W7s&ab_channel=KyleHill