#hippaviolations — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #hippaviolations, aggregated by home.social.
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Ummm.... @actuallyautistic
Here’s the data the #NIH can collect from your medical history for its ‘#autism database’
Story by Julia Musto, 4/23/2025
Excerpt: "While it remains unclear exactly what data will be collected, under the presented platform NIH researchers could have access to:
- Americans’ #prescription information, including the type of medication and how they are prescribed
- Data collected during medical studies in a multitude of areas and from public and private institutions
- Data collected from peoples’ #smartwatches, which can range from heart health to sleep patterns
- #Claims from private insurers that can cover items such as lengthy hospital stays, #screening and testing
- Data from the Centers for #Medicare and #Medicaid Services, which includes #referrals to specialists, enrollment, #diagnoses, and more " -
Tagging @actuallyautistic
@PattyHanson "For those who always cry HIPPA violation, this is a #HIPPA violation.
I worked in the med community for 20 yrs. A patient's records can only be used to facilitate trmt & to seek insurance reimbursement, and even then, there are limitations on who has access to the records.
I've also participated in med studies as the researcher & as a participant. Names & other personal information must be redacted & consent must be obtained, even with HHS.
Contact your providers & say 'no'."
https://www.cbsnews.com/news/rfk-jr-autism-study-medical-records/