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#hgp — Public Fediverse posts

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  1. Do you remember #HumanGenomeProject? I’m not sure Trump admin wants you to
    It was one of the top #science, technology, and #medicine stories of the 1990s and early 2000s; at the time, the press often compared it to the 1969 Apollo moon landing.
    He used to maintain the #NIH’s #HGP archives. Now he doesn’t know what will happen to them. arAhival records detailing much of these events are under threat due to efforts by the Trump administration.
    statnews.com/2025/06/05/nih-na
    archive.ph/90AGt

  2. "Do you remember the Human Genome Project? I’m not sure the Trump administration wants you to."
    statnews.com/2025/06/05/nih-na
    (#paywalled)

    "My job was to preserve and provide access to the records of the Human Genome Project [#HGP]...All of that work, like so much else at #NIH, is currently being dismantled...The digital archival records my colleagues and I maintained are currently inaccessible. I worry that they might be gone altogether, either now or sometime in the future."

    #DefendResearch #Medicine #OpenData #Preservation #Takedowns #Trump #TrumpVResearch #USPol #USPolitics

  3. #AI #GenerativeAI #AIRegulation #HumanGenome #HGP: "Today with generative AI, we are face similar unknowns and anxieties. We have reached a level of scientific breakthrough that points to immense promise—and risk should it fall into the wrong hands. Through the Human Genome Project, humanity chose to rally a multi-disciplinary set of global stakeholders to co-develop the technology and share it out for the betterment of society, and that paid off significantly in scientific and economic ways—we should follow this instinct again.

    The HGP provides a playbook for developing successful co-governance mechanisms and public policy that fosters cooperation from governments; productive innovation across industries; and investments in ethical, legal, and social safeguards. At a moment when governments are trying varying approaches to AI without much ability to get concrete and consistent governing rules in place, the HGP points to specific steps to take."

    ssir.org/articles/entry/human-

  4. It's been a couple of stressful & busy weeks, so last Friday April 14th I forgot to tweet/toot about the 20th anniversary of the finishing of the Human Genome Project #HGP 🎉
    The HGP was a major influence for me as a high school student thinking about a career in science.
    Friday I celebrated by talking to Medical students about Genomics of Rare Diseases, but as a belated celebration, I'd like to share a short article I wrote on "The Human Genome".
    Happy #HGPday!
    sciencedirect.com/science/arti