#familyperspectives — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #familyperspectives, aggregated by home.social.
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Check out the #Roundup of our #RareDiseaseDay campaign here:
https://medipace.com/2023/02/22/rare-disease-day-2023/Topics include:
- #FamilyPerspectives & #PatientStories
- #PatientEngagement
- #OvercomingChallengesSpecial thanks to our network, colleagues and Ines and Nick for sharing your thoughts!
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Are you interested in reading more about the #experiences of people living with #RareConditions?
Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
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Why Advocacy Matters: Chris’ story
A rare condition doesn’t only affect the person living with it, but the family too. We found Chris’ story so insightful. Thanks to Chris and MD Group for sharing.
What’s your experience as a family member of someone living with a rare condition?
https://mdgroup.com/blog/why-patient-advocacy-matters-chriss-story/
#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe