#eurordis — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #eurordis, aggregated by home.social.
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An exciting first day at the #iDR26 meeting in Brussels on drug #repurposing.
Academics, company representatives, funders, policy makers, patients and others, all gathered to discuss how to help #repurpose #medicines for the many #diseases still with unmet medical needs, including #vascular #anomalies.
#IDR26 #VASCERN #VASCAPA #RADIORG #HEVAS #CMTC #Eurordis #WELRI #de Duve Institute #uclouvain #FNRS #ISSVA #REVAMP #Leducq
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Fabian’s great work on Volumetric perfusion fraction change in MR angiography for monitoring sclerotherapy-related changes in peripheral venous malformations is now published. Elsevier gives access 50 days' free access to the article, until June 13, 2026. The link to the final version of the article on ScienceDirect, which you are welcome to read or download. No sign up.https://authors.elsevier.com/c/1m~tx,GNpk4tED
#VASCERN #VASCAPA #RADIORG #HEVAS #CMTC #Eurordis #Welbio #deDuveInstitute #uclouvain #FNRS #ISSVA -
What a beautiful, heartfelt day of remembrance in honour of Dr. John B. Mulliken. Colleagues, patients, and friends came together to share their treasured memories of our dearly loved JBM. In tribute, Harvard Medical School lowered its flag at the Medical Quad to half-mast, a touching gesture reflecting the profound impact he had on so many lives.
#VASCERN #VASCAPA #RADIORG #HEVAS #CMTC #Eurordis #Welbio #de Duve Institute #uclouvain #FNRS -
What a great #ESVM (#European Society of Vascular Medicine) and #VASCERN session in Lausanne. Interesting discussions with colleagues including Guillaume Jondeau, Isabelle Quéré, and Tristan Mirault, and Julie Hallac and Roberta Armignacco from the coordination team. And for networking, a visit to the #Olympic Museum. Looking forward to follow-up all the action points. VASCAPA.asbl #hevas Lex Heijden Cmtc-ovm #radiorg #EURORDIS de Duve Institute #uclouvain #ISSVA
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Our latest review, 'Current and Emerging Pharmacotherapies for Vascular Malformations', is online. First 50 can download the PDF for free via the link. Thank you, Emmanuel Seront, for putting it together! #VASCAPA #HEVAS #CMTC #VASCERN #RADIOORG #EURORDIS #EVBO #WELRI
https://www.tandfonline.com/eprint/QGPRVVUI8GUT6FQEJFQI/full?target=10.1080/17512433.2026.2641807 -
What a great #VASCERN-VASCA meeting. Thank you Roberta, Thi-Mai et Treasure for the organisation. And all those having presented the steps made forward in the various task forces. Looking forward to the follow-up of all the action points. #vascapa #hevas #cmtc #vascern #radiorg #eurordis
https://www.facebook.com/100069557370933/videos/pcb.1250340800627821/27316982817890243
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Der #Tag_der_seltenen_Erkrankungen findet am letzten Tag im Februar statt. Der Tag wurde 2008 von #EURORDIS ins Leben gerufen und nach dem beitritt der USA im Jahre 2009 wurde er langsam zu einem #internationalen Tag mit aktuell über 80 teilnehmenden Ländern.
https://welcher-tag-ist-heute.org/aktionstage/tag-der-seltenen-erkrankungen
https://www.achse-online.de/achse-aktiviert/aktionen-kampagnen/tag-der-seltenen-erkrankungen-2026 -
It was a great annual #Crick #Rare Disease Conference 2026. Learned so much new, made novel contacts, and of course, discussed #precision #therapies for #vascular, and more specifically, #lymphatic anomalies. Organised by @Veronica K. #VASCERN #vascapa #hevas #eurordis #CMTC
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Congratulations, Emmanuel, on this online publication showing how #sirolimus treatment can be adapted to patients' needs. Most #patients with #slow-#flow #vascular #malformations benefit to some extent, and many experience significant #symptom reduction even with #intermittent dosing. This is a big step forward in the #multimodal management of vascular malformations. #VASCERN #VASCAPA #CMTC #HEVAS #WELRI #ISSVA #EVDays #deduveinstitute #Leducq #Radiorg #Eurordis #Lymph
https://link.springer.com/article/10.1186/s13023-025-04151-y
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The virtual #European #Angiology Days (EADays) 2025 are just over. Great presentations and discussions. And easy access - no travel !! Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO
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Congratulations to all three young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days (EADays) 2025 event: Dr #Annegret Holm , Dr Jennilyn Mangulabnan, and Dr Julie Anne Miralles-Amora. Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO
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Congratulations to all three young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days (EADays) 2025 event: Dr #Annegret Holm , Dr Jennilyn Mangulabnan, and Dr Julie Anne Miralles-Amora. Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO
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Congratulations to all three young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days (EADays) 2025 event: Dr #Annegret Holm , Dr Jennilyn Mangulabnan, and Dr Julie Anne Miralles-Amora. Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO
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Congratulations to all three young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days (EADays) 2025 event: Dr #Annegret Holm , Dr Jennilyn Mangulabnan, and Dr Julie Anne Miralles-Amora. Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO
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So great 2 days at the #French Society of #Lymphology 2025 in Toulouse on lymphatic malformations, lymphoedema and lipedema. Illustrative presentations, pertinent questions and collegial discussions. The field is moving along faster than ever. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #Radiorg #lymph #LM #ISSVA