#eskd — Public Fediverse posts

Today, June 18, marks 3 years since I started dialysis while waiting for a kidney transplant.

Dialysis keeps me alive, but it isn’t a cure. I’m still waiting for the call that a matching kidney has been found.

If you’d like to learn more about living kidney donation or paired donation, please visit and share my page:

https://nkr.org/PZG643

#KidneyTransplant #LivingDonor #KidneyDonation #DialysisLife #ESKD #OrganDonation

June 18 marks 3 years on dialysis while waiting for a kidney transplant. Dialysis keeps me alive, but it isn’t a cure, and I’m still hoping for a donor.

If you’d like to learn more about my story or kidney donation through the National Kidney Registry, please visit and share:

https://nkr.org/PZG643

#KidneyTransplant #KidneyDonation #LivingDonor #Dialysis #ESKD

A personal update: I stepped back from writing for much of last year to avoid burnout. I’m hoping to return to it soon, but my priority right now is helping my partner, their son, and their puppy rebuild their lives after escaping a manipulative and abusive situation.

Life remains complicated on my end as well, and I’m still searching for a living kidney donor while continuing dialysis.

Thank you to everyone who continues to support us.

#Writing #AuthorLife #KidneyDisease #KidneyDonor #ESKD

Some thoughts about replicating the PISCES trial of #fishoils in individuals with #ESKD receiving #hemodialysis #nephrology #cardiology #nutrition www.linkedin.com/posts/chrisa...

The PISCES trial creates some ...

Some thoughts about replicating the PISCES trial of #fishoils in individuals with #ESKD receiving #hemodialysis
#nephrology #cardiology #nutrition

https://www.linkedin.com/posts/chrisarg_the-pisces-trial-creates-some-a-interesting-activity-7416858076605075456-0rvI

Happy Thördæg! Be merry and well, friends. May your tables overflow with good food, your company be warm, and your soundtrack badass. Offerings: a good drink, a comfy seat, shared meals, loud laughter, and companions worth keeping. And blessings to everyone on dialysis or waiting for a transplant.
https://nkr.org/PZG643
#Thordæg #AltThanks #NKR #ESKD #CommunityCare

I’m still searching for a kidney donor so I can have the chance to live a more normal life again. 💚 Every share truly helps spread the word and brings me one step closer to that hope.

Please take a moment to read my story and share it if you can — it means the world to me. Thank you for your kindness and support. 🙏

🔗 https://nkr.org/PZG643

#KidneyTransplant #OrganDonation #DonateLife #TransplantHope #ChronicIllness #DisabilityAwareness #ESKD #KidneyDisease #KindnessMatters #HopeLivesHere

I’m in urgent need of a living kidney donor. Sharing this post could help save my life. Even if you’re not able to donate, just passing this along can connect me with someone who might be my match. 💚

Learn more here: https://nkr.org/PZG643
#KidneyDonation #LivingDonor #OrganDonation #ESKD #ChronicIllness #DonateLife

I’m still here. For now. I’m at end-stage kidney failure, and dialysis keeps me alive but isn’t a cure. A kidney transplant is my only hope for a longer, healthier life. If you’re blood type O, A, or B and in good health, you might be able to help—even paired donation is possible. Please consider becoming a living donor. Visit my donor page to learn more or see if you’re a match: https://nkr.org/PZG643 Sharing this post could save a life. Thanks!
#DonateLife #LivingDonor #ESKD #KidneyDisease

My live donor just backed out, and I’m heartbroken—but not giving up. I’m still searching for a living or deceased kidney donor. I’m registered with the National Kidney Registry and praying for a second chance at life. Please consider sharing my story or registering to donate: 👉 https://www.nkr.org/PZG643 💜
#KidneyDonation #DonateLife #ShareYourSpare #ChronicIllness #OrganDonation #ESRD #ESKD

I’m astounded by the compassion people show on this platform. It means so much.

I’m 37, living in Oregon with end-stage kidney disease, and urgently need a living kidney donor. My blood type is A+. NKR covers all donor costs—travel, lodging, medical, and time off work across the US.

Learn more: https://www.nkr.org/PZG643
#KidneyDonation #OrganDonation #ESKD #DonateLife #GiveLife #ShareYourSpare #BeADonor #Transplant #MedicalMiracle

A failing body, but a heart still burning. I’m Michael—blind, in kidney failure, and in need of a living donor. Hope is a fragile light, and you can help keep it glowing. Share, test, or learn more:

🔗 https://www.nkr.org/PZG643
#KidneyDonor #ESKD #LivingDonor #ShareYourSpare #DisabilityAwareness

Hi, I’m Michael Maattanen and I need a kidney donor. Learn more, get tested, or share my story at: www.nkr.org/PZG643
Please help spread the word!
#KidneyDonor #ShareYourSpare #KidneyTransplant #ESKD #OrganDonation #LivingDonor #DisabilityAwareness

Hi, I’m Michael Maattanen and I need a kidney donor. Learn more, get tested, or share my story at: https://www.nkr.org/PZG643
Please help spread the word!
#KidneyDonor #ShareYourSpare #KidneyTransplant #ESKD #OrganDonation #LivingDonor #DisabilityAwareness

I’m 37 years old and living with end-stage kidney disease. I urgently need a living kidney donor. If you or someone you know is willing to help, please visit https://www.nkr.org/PZG643 to learn more. Even if you can’t donate, sharing this post could help me find a match. Every share brings me closer to a second chance at life! #KidneyDonation #OrganDonation #ESKD #DonateLife #GiveLife #ShareYourSpare #BeADonor #Transplant #Hope #MedicalMiracle

I’m 37 years old and living with end-stage kidney disease in Oregon. I urgently need a living kidney donor. My blood type is A+. NKR covers all costs—travel, lodging, medical, and time off work.

Please visit https://www.nkr.org/PZG643 to learn more. Even if you can’t donate, sharing this post could help me find a match. #KidneyDonation #OrganDonation #ESKD #DonateLife #GiveLife #ShareYourSpare #BeADonor #Transplant #MedicalMiracle

My kidney donation journey has officially begun! My page is live, and while it will take about a week for my full story to be shared, you can explore the basic site now: http://www.nkr.org/PZG643. Every story shared brings us closer to raising awareness and saving lives. I’m committed to making a difference, and I hope my story inspires others to consider becoming a donor. #KidneyDonation #OrganDonation #ESKD #DonateLife #GiveLife

Which interventions help ameliorate one of the most frequent symptoms that people with #ESKD suffer from?

Cochrane gives some answers.

Next step: ask yourself if they play a role in our current every-day #dialysis practice?

#nephrology

https://pubmed.ncbi.nlm.nih.gov/37651553/?utm_source=Feedly&utm_medium=rss&utm_campaign=pubmed-2&utm_content=1pI-dJWZS72CjIsQ5ZrG85rNE4CJbm5Bd2UH-C8wYrf9XNWkIF&fc=20230515214735&ff=20230831195830&v=2.17.9.post6+86293ac

Brillian text on #PROM in #CKD and #ESKD.

My bet on #swift outcomes: 1) QoL-complaints will be high.
2) Interventions won‘t show any effect, because having ignored PROMS for 30+ years means we have little or no tools at all to adress these issues in current SoC.
3) such tools are rehab, exercise, psychological support, social support and transplant - and they are all heavily under-utilised.

#NephJC

http://www.nephjc.com/news/swifttrial