#erns — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #erns, aggregated by home.social.
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Right now, chamber music from #Queenstown: #Fauré #Ysaÿe #Beethoven #Erns #Ravel #Waxman and #Norris https://buff.ly/3t071Z3 #wch
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In 20 minutes, chamber music from #Queenstown: #Fauré #Ysaÿe #Beethoven #Erns #Ravel #Waxman and #Norris https://buff.ly/3t071Z3 #wch
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@EU_Commission @EpiCARE_ERN And we are working towards a stronger EU response to #RareDiseases
The European Reference Networks (#ERNs) are an essential part of the European #raredisease community and a vital part of the 🇪🇺#HealthUnion
More: https://health.ec.europa.eu/european-reference-networks_en
🐦🔗: https://n.respublicae.eu/EU_Health/status/1639934963003817984
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We are strengthening the 24 European Reference Networks, including with:
🔸Targeted support for more ambitious goals for registries, international expert panels & professional training
🔸Supporting national actions with EU Member States
🐦🔗: https://n.respublicae.eu/EU_Health/status/1630499382285029377
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🟡#H2020 project @erica_rd_eu is a platform that integrates the research on #rarediseases from all #ERNs. The ultimate aim is to ensure efficient access and safe therapies for the benefit of patients.
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487293050904576
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🟠#H2020 project @solve_rd aims to solve the unsolved #rarediseases by delivering new tests to improve the diagnostics of patients.
The project is closely collaborating with #ERNs @ERN_RND @euro_nmd @ERNIthaca #ERNGENTURIS
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487290874064898
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The European Reference Networks #ERNs facilitate the sharing of knowledge on complex and #rarediseases that require specialised treatments and resources.
Find out more ➡ https://hadea.ec.europa.eu/news/tackling-rare-diseases-through-european-reference-networks-erns-2023-02-28_en
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487284972699648