A useful step in understanding.
But given the symptom overlaps why not include fibromyalgia?
#energylimitingconditions — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #energylimitingconditions, aggregated by home.social.
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The big question of the day is
do I get up to continue working on the urgent to do list
or do I remind myself that I spent over three hours talking to what felt like endless small groups of year 9 students, for over three hours, travelling in extreme heat to get there and back and I am tiredEven after years living with #EnergyLimitingConditions my brain thinks I 'should' do more.
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2/
Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concepthttps://www.scienceopen.com/hosted-document?doi=10.13169/intljofdissocjus.5.2.0001
Screenshot from latest Science for ME weekly update
#EnergyLimitingConditions #Spoonie #chronicillness #Spoonies #ELCI #MEcfs #LongCovid #ChronicFatigue @mecfs @longcovid @pots
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New:
Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment ConceptFree
https://www.scienceopen.com/hosted-document?doi=10.13169/intljofdissocjus.5.2.0001Sympathetic exploration of topic
#EnergyLimitingConditions #Spoonie #Fatigue #chronicillness #Spoonies #ELCI @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid @longcovid #POTS @pots -
Overloaded week continues to be overloaded.
And I'm dreading next week as it should have been preceded by plenty of rest this week.
It's unlikely I'll escape a fibromyalgia flare but I'm hoping I have enough coffee to get through the 'really must do' events first. Those are the workshops, panels and critical meetings.My urgent to do list is in hold ...
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It's been a long time since I had two consecutive days with no online meetings or in-person contact. Tomorrow will make it three days unless something changes.
It even rained so I didn't need to get dressed to water the tubs on the patio.
After a busy few weeks this is much needed off time. -
My #spoonie pals on Mastodon, I've gotten a bit of flak for using this term here, from presumably able-bodied folks. I'm interested in talking to people with #LongCovid #ME #fibromyalgia and other #ChronicIlnnesses and #EnergyLimitingConditions--originally I was talking about gardening, too. Do you use spoon theory or another metaphor? [What I live with isn't just 'old age' or 'sickness'--its #ableism to imply that we are just one thing or another to fit a convenient, received notion.]
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3 weeks into my 'month off' and I felt like working on my business today, I did 45 minutes client work this morning, had a rest, walked the dogs with my daughter, had another rest, and did 45 minutes work on my business this afternoon. Now I'm ready for bed and it's only 6pm. 🥱
#MEcfs #ChronicIllness #EnergyLimitingConditions #PEM #VirtualAssistantUK
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The only people who truly 'get' what it's like to live with chronic illness are those who also live with chronic illness.
#ChronicIllness #InvisibleIllness #ChronicPain #MEcfs #MEcfsAwareness #EnergyLimitingConditions
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So this is what I have 'planned' today:
📖 Read my true crime magazine
🐕 Take the dog for a stroll in the sunshine
🧘♀️ Guided relaxation
🎨 Do some foil scratch art
📚 Read my non-fiction book
📺 Watch a documentaryTomorrow will be more of the same, plus I'll be visiting my dad because I haven't seen him since Friday, and hopefully meeting up with my daughter in her lunchbreak to walk our dogs together 💙
#MEcfs #MEawareness #EnergyLimitingConditions #chronicillness
#invisibleillness -
Having a much-needed 'Bed Day' today.
Brain is generally a little fuzzy but insisting on trying to work - yet I can't focus long enough to work my way through the 3 sets of legal/finance docs waiting for me. I need to ignore them rather than mess up.
#ELC
#EnergyLimitingConditions -
#LongCovid #EnergyLimitingConditions
I hope they will find funding to extend this research to long covid's poor relations - fibromyalgia and CFS/ME.
If they find the same issues with mitochondria this would throw out any lingering tendencies for health professionals to revert to telling us to do a bit more each time/pushing ourselves more each time (GET) - not pacing to use our limited energy carefully.
Or, as the last physiotherapist told me, 'conditioning'. -
#ELC #EnergyLimitingConditions
I was finally diagnosed with 2 ELCs a few years ago.
Even diagnosing physical illnesses that could be 'seen' by tests or examinations took years.
So my medical file is full of false diagnoses of mental illnesses that influence every medical professional I see and explain my reluctance to get any new illness or group of symptoms seen to.
I 'joke' I only feel OK going to my GP or the hospital if I can see a bone sticking out after a fall.https://www.youtube.com/watch?v=AtdpgiNs_xg&t=0s&ab_channel=ChallengingDisbeliefandDisregard
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Man Utd languishes mid-table in terms of disability access
https://www.thecanary.co/uk/2023/06/26/man-utds-poor-performance-disability-access-hides-deeper-issue/#Disabled
#ManUtd
#OakTreeMobility
#OakTree
#Accessibility
#Accessibility
#WheelchairAccessibility
#AudioDescription
#BlueBadge
#SensoryRoom
#ChronicIllness
#ChronicallyIll
#AccessibleStadiaGuide
#AccessibilityLeague
#EnergyLimitingConditions
#ELC
#PremierLeague
#POTS
#Poverty
#Classism