#disabilitymatters — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #disabilitymatters, aggregated by home.social.
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THE NURSING HOME CONFESSIONAL
Day-to-day nursing home reality is alien territory for most folks. The early days “on the inside” are a particularly disjointed time.
The new “resident” has just come through a medical crisis that spit them out into this strange new land. The psychological vertigo is very real, inviting deep reflection.
Maybe that’s why there can be the phenomenon of a “confessional”
https://theicarian.substack.com/p/the-nursing-home-confessional-a-nursing
#NursingHome #HealthCare #DisabilityMatters #LongTermCare #Health -
THE NURSING HOME CONFESSIONAL
Day-to-day nursing home reality is alien territory for most folks. The early days “on the inside” are a particularly disjointed time.
The new “resident” has just come through a medical crisis that spit them out into this strange new land. The psychological vertigo is very real, inviting deep reflection.
Maybe that’s why there can be the phenomenon of a “confessional”
https://theicarian.substack.com/p/the-nursing-home-confessional-a-nursing
#NursingHome #HealthCare #DisabilityMatters #LongTermCare #Health -
📰 New Foundations: Mining Personal Experience for Authentic Fiction
Three approaches to "write what you know" when you aren't writing memoir.
✨ Writing from fear vs. just experience
✨ 3-layer research model (Technical/Emotional/Systemic)
✨ Avoiding the "savior narrative" trap
✨ Vulnerability Mapping exerciseCase study: using Type 2 diabetes in an apocalyptic story.
Read & subscribe: http://jhrln.link/signup
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CW: Death of fedi friend
Sad to report that @KarenStrickholm has died. It was 2 months ago, but I just found out. I found her FB page and saw her relatives’ posts.
Some of the hashtags she used. Maybe some of you knew her.
#disability
#DisabilityMatters
#ChronicPain
#LongHauler
#knitting -
CW: Death of fedi friend
Sad to report that @KarenStrickholm has died. It was 2 months ago, but I just found out. I found her FB page and saw her relatives’ posts.
Some of the hashtags she used. Maybe some of you knew her.
#disability
#DisabilityMatters
#ChronicPain
#LongHauler
#knitting -
🐑⚓️🐑 NAVAJO CHURRO SHEEP 🐑⚓️🐑
"Across high seas in wooden galleons, each introduced a genetically distinct breed with origins in various regions of Old Spain. Together, these four distinct breed lines merged to become the renowned Navajo Churro of the southwest."
#DisabilityMatters #Navajo #Diné #GoFundMe #Healthcare #Law #Knitting @Knitting #Knitstodon #FiberArts #FibreArts #NeedleArts #Maker #Creator @Crafters #Crafts #HandMade #SurfFeeds
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🐑⚓️🐑 NAVAJO CHURRO SHEEP 🐑⚓️🐑
"Across high seas in wooden galleons, each introduced a genetically distinct breed with origins in various regions of Old Spain. Together, these four distinct breed lines merged to become the renowned Navajo Churro of the southwest."
#DisabilityMatters #Navajo #Diné #GoFundMe #Healthcare #Law #Knitting @Knitting #Knitstodon #FiberArts #FibreArts #NeedleArts #Maker #Creator @Crafters #Crafts #HandMade #SurfFeeds
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🏫🏫🏫 Navajo Boarding Schools, some notes.
"When it was time to eat, all the kids (Navajo plus other tribes) had to form a single long line. Each child was identified not by their name, but by a number. Manny was number 59. When called, it meant she was to step forward to take her meal tray..."
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🏫🏫🏫 Navajo Boarding Schools, some notes.
"When it was time to eat, all the kids (Navajo plus other tribes) had to form a single long line. Each child was identified not by their name, but by a number. Manny was number 59. When called, it meant she was to step forward to take her meal tray..."
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"Navajo culture - aka Diné - is rich, sophisticated, robust, ancient. As a lily-white woman from northern New Jersey, this nursing home, with its many Navajo employees from the nearby reservation, is the closest I’ve ever been to the Diné world. It's been an honor and a privilege..."
#DisabilityMatters #Navajo #Diné #GoFundMe # Healthcare
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"Navajo culture - aka Diné - is rich, sophisticated, robust, ancient. As a lily-white woman from northern New Jersey, this nursing home, with its many Navajo employees from the nearby reservation, is the closest I’ve ever been to the Diné world. It's been an honor and a privilege..."
#DisabilityMatters #Navajo #Diné #GoFundMe # Healthcare
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The nursing home I'm in. I call it McHealthcare...
Senator Warren - whose specialty is bankruptcy law - now has Genesis in her sights. Expect Congressional hearings out of this. She has a statement up on her website, and now these YouTubes.
VIDEO
https://youtube.com/shorts/Bc6sMzf4TN0?si=wWLFilrnQCdKhCaP -
The nursing home I'm in. I call it McHealthcare...
Senator Warren - whose specialty is bankruptcy law - now has Genesis in her sights. Expect Congressional hearings out of this. She has a statement up on her website, and now these YouTubes.
VIDEO
https://youtube.com/shorts/Bc6sMzf4TN0?si=wWLFilrnQCdKhCaP -
🙈😭🙈 HIDING 🙈😭🙈
I'm usually a major stoic when having a medically bad day. Why? In part, a Nordic upbringing. But there's more.
Years, hiding out in the "Disability Closet." It's primal, this instinct to mask our weaknesses. Over 20+ years, I fine-honed masking, fearing loss of family, friends, business, independence. Who wants to hear about pain? Soul-crushing fatigue? Costly specialists? No one, not really.
❓️❓️❓️ #Spoonies, ever felt this way? ❓️❓️❓️
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🙈😭🙈 HIDING 🙈😭🙈
I'm usually a major stoic when having a medically bad day. Why? In part, a Nordic upbringing. But there's more.
Years, hiding out in the "Disability Closet." It's primal, this instinct to mask our weaknesses. Over 20+ years, I fine-honed masking, fearing loss of family, friends, business, independence. Who wants to hear about pain? Soul-crushing fatigue? Costly specialists? No one, not really.
❓️❓️❓️ #Spoonies, ever felt this way? ❓️❓️❓️
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Yet another vile meal at the nursing home. Mystery meat. Peas. Fake ice cream. Mystery beverage...
👉 Low quality everything
👉 Bland, dry, tasteless
👉 Empty calories -
Yet another vile meal at the nursing home. Mystery meat. Peas. Fake ice cream. Mystery beverage...
👉 Low quality everything
👉 Bland, dry, tasteless
👉 Empty calories -
👉👉👉 Another absolutely disgusting dinner here at the nursing home...
*Supposedly* it's lasagne. And that is a heap of very distressed lettuce to the side - old, limp, browning. No salad dressing either. Just UGH.
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👉👉👉 Another absolutely disgusting dinner here at the nursing home...
*Supposedly* it's lasagne. And that is a heap of very distressed lettuce to the side - old, limp, browning. No salad dressing either. Just UGH.
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🍁🍁🍁Autumn has arrived in the nursing home courtyard.
A bit dismal at eye level, what with the dead plants, garden detritus and all.
But then there it is - A brilliant autumn yellow against a late afternoon New Mexico blue sky. Nippy winter biting at my ears. A hot coffee in my hand.
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🍁🍁🍁Autumn has arrived in the nursing home courtyard.
A bit dismal at eye level, what with the dead plants, garden detritus and all.
But then there it is - A brilliant autumn yellow against a late afternoon New Mexico blue sky. Nippy winter biting at my ears. A hot coffee in my hand.
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😨😨😨 Disgusting dinner tonight here at the nursing home - small portion overcooked spaghetti, pile of wet croutons, scoop of rotten lettuce, dripping with... something. Seriously awful.
#DisabilityMatters #Healthcare #Food #Nutrition #NotNutrition
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😨😨😨 Disgusting dinner tonight here at the nursing home - small portion overcooked spaghetti, pile of wet croutons, scoop of rotten lettuce, dripping with... something. Seriously awful.
#DisabilityMatters #Healthcare #Food #Nutrition #NotNutrition
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✈️✈️✈️ TRAVEL TIPS ✈️✈️✈️
Flying After 60, or dealing with any form of disability? These tips are hugely worth bookmarking and sharing. I didn't know about these services, which are mostly rights mandated by law. Please share!
"Unlock 10 Airport Rights Most People Miss!"
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✈️✈️✈️ TRAVEL TIPS ✈️✈️✈️
Flying After 60, or dealing with any form of disability? These tips are hugely worth bookmarking and sharing. I didn't know about these services, which are mostly rights mandated by law. Please share!
"Unlock 10 Airport Rights Most People Miss!"
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What happens when private equity owns America's healthcare... Genesis Healthcare files for bankruptcy.
"Genesis’s financial decline has been accompanied by inadequate care, regulatory scrutiny, and legal settlements. Across multiple states, inspections and lawsuits documented persistent problems with staffing, safety, and basic oversight."
https://pestakeholder.org/news/genesis-healthcare-files-for-bankruptcy/
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What happens when private equity owns America's healthcare... Genesis Healthcare files for bankruptcy.
"Genesis’s financial decline has been accompanied by inadequate care, regulatory scrutiny, and legal settlements. Across multiple states, inspections and lawsuits documented persistent problems with staffing, safety, and basic oversight."
https://pestakeholder.org/news/genesis-healthcare-files-for-bankruptcy/
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🙏📢🙏 THANK YOU THANK YOU THANK YOU!!! A plea for your help! Gotta purchase critical supplies (ex. prescribed-but-not-covered lidocaine, electrolytes, wound care), and save the last of my worldly possessions from auctioneer. Also, some fresh food. Can you contribute? See link below, green box. Its so uncomfortable to have to ask, but I must. Thank you so much, it truly makes a world of difference! 🙏🥰🙏
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🙏📢🙏 THANK YOU THANK YOU THANK YOU!!! A plea for your help! Gotta purchase critical supplies (ex. prescribed-but-not-covered lidocaine, electrolytes, wound care), and save the last of my worldly possessions from auctioneer. Also, some fresh food. Can you contribute? See link below, green box. Its so uncomfortable to have to ask, but I must. Thank you so much, it truly makes a world of difference! 🙏🥰🙏
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⚕️♥️⚕️ Hello folks! Please make a donation to help with medical needs as I recover from that brain tumor. Not covered but necessary... lidocaine for pain management, a special soap for my infection-prone skin, electrolytes for heart rhythm, stuff like that. Also some fresh food - meals here are prison fare ugh (basically, slop). I need help now badly.
Thank you soooo much! 🙏♥️🙏 Read about it, links to contribute here - https://mailchi.mp/99065d8be764/chapterthree
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⚕️♥️⚕️ Hello folks! Please make a donation to help with medical needs as I recover from that brain tumor. Not covered but necessary... lidocaine for pain management, a special soap for my infection-prone skin, electrolytes for heart rhythm, stuff like that. Also some fresh food - meals here are prison fare ugh (basically, slop). I need help now badly.
Thank you soooo much! 🙏♥️🙏 Read about it, links to contribute here - https://mailchi.mp/99065d8be764/chapterthree
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🙏📢🙏 A plea for your help! Gotta purchase critical supplies (ex. prescribed-but-not-covered lidocaine, electrolytes, wound care), and save the last of my worldly possessions from auctioneer. Also, some fresh food. Can you contribute? See link below, green box. Its so uncomfortable to have to ask, but I must. Thank you so much, it truly makes a world of difference! 🙏🥰🙏
PS: Posting here 2 reach my fiber peeps!
https://mailchi.mp/99065d8be764/chapterthree
#DisabilityMatters #Healthcare #Recovery #Knitting @Knitting
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🙏📢🙏 A plea for your help! Gotta purchase critical supplies (ex. prescribed-but-not-covered lidocaine, electrolytes, wound care), and save the last of my worldly possessions from auctioneer. Also, some fresh food. Can you contribute? See link below, green box. Its so uncomfortable to have to ask, but I must. Thank you so much, it truly makes a world of difference! 🙏🥰🙏
PS: Posting here 2 reach my fiber peeps!
https://mailchi.mp/99065d8be764/chapterthree
#DisabilityMatters #Healthcare #Recovery #Knitting @Knitting
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🙏📢🙏 A plea for your help! Gotta purchase critical supplies (ex. prescribed-but-not-covered lidocaine, electrolytes, wound care), and save the last of my worldly possessions from auctioneer. Also, some fresh food. Can you contribute? See link below, green box. Its so uncomfortable to have to ask, but I must. Thank you so much, it truly makes a world of difference! 🙏🥰🙏
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🙏📢🙏 A plea for your help! Gotta purchase critical supplies (ex. prescribed-but-not-covered lidocaine, electrolytes, wound care), and save the last of my worldly possessions from auctioneer. Also, some fresh food. Can you contribute? See link below, green box. Its so uncomfortable to have to ask, but I must. Thank you so much, it truly makes a world of difference! 🙏🥰🙏
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👉👉👉 (Repost, forgot link!) Got it together to write an update! Seems I had one more trip to the hospital, took a few months to recover, so it's been a while. Coming out of a quasi-stupor, to be completely honest. A long, dark tunnel. Lately, it's like something has snapped back into place, brain and body going back online - how far this recovery goes, nobody knows. In the meantime, I'll leave you with this "quarterly report." 🥰
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👉👉👉 (Repost, forgot link!) Got it together to write an update! Seems I had one more trip to the hospital, took a few months to recover, so it's been a while. Coming out of a quasi-stupor, to be completely honest. A long, dark tunnel. Lately, it's like something has snapped back into place, brain and body going back online - how far this recovery goes, nobody knows. In the meantime, I'll leave you with this "quarterly report." 🥰
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Got it together to write an update! Got sick, took a few months to recover, so it's been a while. Coming out of a quasi-stupor, to be completely honest. A long, dark tunnel. Lately, it's like something has snapped back into place inside me. It's like my brain and body are in the process of going back online - how far this recovery goes, nobody knows. For now, I'll leave you with this "quarterly report." 🥰
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Got it together to write an update! Got sick, took a few months to recover, so it's been a while. Coming out of a quasi-stupor, to be completely honest. A long, dark tunnel. Lately, it's like something has snapped back into place inside me. It's like my brain and body are in the process of going back online - how far this recovery goes, nobody knows. For now, I'll leave you with this "quarterly report." 🥰
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Check out this service dog in action! 🥺❤️
https://youtube.com/shorts/YOSrAUwVTcw?si=5ehMw2fEdY3CJaes
#DisabilityMatters #Health #Dogs #ServiceDogs #DogsOfMastodon #Dogstodon #DogsOfFedi #DogLovers #DogLife
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Check out this service dog in action! 🥺❤️
https://youtube.com/shorts/YOSrAUwVTcw?si=5ehMw2fEdY3CJaes
#DisabilityMatters #Health #Dogs #ServiceDogs #DogsOfMastodon #Dogstodon #DogsOfFedi #DogLovers #DogLife
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This guy makes me oh so happy!
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This guy makes me oh so happy!
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🧵
From Blanchardstown Centre for Independent Living on X🎙 On #DisabilityMatters, Mary Tynan shares how ME & access barriers shape her life — and art, talks about her new film Nadirshah.
📻 Thurs 4PM | 5 Jun on @925PhoenixFMMore:
https://bcil.ie/archives/8344#Disability #PwME #MEcfs #CFS @disability @mecfs #myalgicencephalomyelitis @chronicillness #chronicillness @spoonies #spoonie #spoonies
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🧵
From Blanchardstown Centre for Independent Living on X🎙 On #DisabilityMatters, Mary Tynan shares how ME & access barriers shape her life — and art, talks about her new film Nadirshah.
📻 Thurs 4PM | 5 Jun on @925PhoenixFMMore:
https://bcil.ie/archives/8344#Disability #PwME #MEcfs #CFS @disability @mecfs #myalgicencephalomyelitis @chronicillness #chronicillness @spoonies #spoonie #spoonies
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😡😡😡 The petty dictator on call moron asshole doc tonight refuses to clear me for a Tylenol and a Benedryl. Fucking asshole. Soul crusher. Even though I've been taking both daily. Apparently the correct evening dose was never input for evening. ALL the other nurses just give it, so I didn't even know it wasn't on record, until tonight's temp nurse. A Benedryl and a Tylenol. Utterly ridiculous.
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😡😡😡 The petty dictator on call moron asshole doc tonight refuses to clear me for a Tylenol and a Benedryl. Fucking asshole. Soul crusher. Even though I've been taking both daily. Apparently the correct evening dose was never input for evening. ALL the other nurses just give it, so I didn't even know it wasn't on record, until tonight's temp nurse. A Benedryl and a Tylenol. Utterly ridiculous.
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🧶🧶🧶 Another happy recipient of an Emotional Support Little Chickie! It's so gratifying to make these sweet little objects for people who help me in this nursing home environment, and to see the delight in their faces. 💕
#DisabilityMatters #Knitting @Knitting #Knitstodon #FiberArts #FibreArts #NeedleArts #Maker #Creator #Crafts #HandMade #SurfFeeds
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🧶🧶🧶 Another happy recipient of an Emotional Support Little Chickie! It's so gratifying to make these sweet little objects for people who help me in this nursing home environment, and to see the delight in their faces. 💕
#DisabilityMatters #Knitting @Knitting #Knitstodon #FiberArts #FibreArts #NeedleArts #Maker #Creator #Crafts #HandMade #SurfFeeds
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And today for lunch at the nursing home we have... dog food?
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And today for lunch at the nursing home we have... dog food?
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💞⚕️💞 APPEALING TO YOU FOR HELP! 💞⚕️💞
It can be a rough road, disability plus poverty. Right now, I truly need your help...
🏥 Medical supplies not covered by Medicaid, especially Curist Lidocaine (1, 3, 6 packs), etc. - Amazon
🏥 Supplemental healthy groceries - DoorDash or suprise me
🏥 Cash for expensive prescription ($200), clothing cleaned - GoFundMe, PayPal, Zelle, snail mail
Details in link. Thank you greatly! 🙏♥️🙏
CLICK HERE! 👉👉👉 https://mailchi.mp/af647449c7f3/the-confessional-12849417
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💞⚕️💞 APPEALING TO YOU FOR HELP! 💞⚕️💞
It can be a rough road, disability plus poverty. Right now, I truly need your help...
🏥 Medical supplies not covered by Medicaid, especially Curist Lidocaine (1, 3, 6 packs), etc. - Amazon
🏥 Supplemental healthy groceries - DoorDash or suprise me
🏥 Cash for expensive prescription ($200), clothing cleaned - GoFundMe, PayPal, Zelle, snail mail
Details in link. Thank you greatly! 🙏♥️🙏
CLICK HERE! 👉👉👉 https://mailchi.mp/af647449c7f3/the-confessional-12849417
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💞⚕️💞 NEED HELP! 💞⚕️💞
It can be a rough road, disability plus poverty. Right now, I truly need your help...
🏥 Medical supplies not covered by Medicaid, especially Curist Lidocaine (1, 3, 6 packs), etc. - Amazon
🏥 Supplemental healthy groceries - DoorDash or suprise me
🏥 Cash for expensive prescription ($200), clothing cleaned - GoFundMe, PayPal, Zelle, snail mail
Details in link. Thank you greatly! 🙏♥️🙏
CLICK HERE! 👉👉👉 https://mailchi.mp/af647449c7f3/the-confessional-12849417
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💞⚕️💞 NEED HELP! 💞⚕️💞
It can be a rough road, disability plus poverty. Right now, I truly need your help...
🏥 Medical supplies not covered by Medicaid, especially Curist Lidocaine (1, 3, 6 packs), etc. - Amazon
🏥 Supplemental healthy groceries - DoorDash or suprise me
🏥 Cash for expensive prescription ($200), clothing cleaned - GoFundMe, PayPal, Zelle, snail mail
Details in link. Thank you greatly! 🙏♥️🙏
CLICK HERE! 👉👉👉 https://mailchi.mp/af647449c7f3/the-confessional-12849417
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@dianemagras Thank you for writing this! It means so much to me to hear that what I've written has "landed." Especially now, as I'm working on writing more from the heart. Here's another recent one I wrote...
https://us18.campaign-archive.com/?e=%3D%5BUNIQID%5D&u=9e503800a9a5ff4f6b714fae3&id=70570d1427
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@dianemagras Thank you for writing this! It means so much to me to hear that what I've written has "landed." Especially now, as I'm working on writing more from the heart. Here's another recent one I wrote...
https://us18.campaign-archive.com/?e=%3D%5BUNIQID%5D&u=9e503800a9a5ff4f6b714fae3&id=70570d1427
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💞✍️💞 FOR YOUR READING PLEASURE! 💞✍️💞
Click through for a nifty little slide show video I put together just for you - it has glitches but go easy on me, it's my first one. 😊
Also there's a link about Nobel Laureate Geoffrey Hinton, and his prognosis for AI - some good, some scary.
Lastly, my plea for your financial support, sorely needed. 🙏♥️
👉👉👉 CLICK HERE! 👉👉👉 https://mailchi.mp/af647449c7f3/the-confessional-12849417.
#DisabilityMatters #Healthcare #NursingHome #LongTermCare #Spirituality #Aging #GreatDepression #NewDeal
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🙏💕🙏 Mastodonian, whoever you are, thank you SO MUCH for this lidocaine!! Your gift fills me with joy... It means NO WOUND PAIN for the next several weeks YAY!! Whoever you are, many blessings for your generosity. 🥰🙏💕
For anyone else in a position to help, here is the link to donate for food, medical supplies (scroll down to green box). Thank you, my beautiful Mastodon community!
https://us18.campaign-archive.com/?e====[UNIQID]&u=9e503800a9a5ff4f6b714fae3&id=70570d1427
#DisabilityMatters #Healthcare #Spirituality #NearDeathExperience #Knitting @Knitting