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#disabilityadvocate — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #disabilityadvocate, aggregated by home.social.

  1. New comic is up, and so is the reveal for my comic book release date! It has been tough...many years...but now it is coming - 68 pages of IH comic strips, symptom information, and original HUMAN MADE illustrations.

    Coming in May 25th (USA time).

    New episode:
    Tapastic: tapas.io/episode/3882119
    Ko-fi: ko-fi.com/i/IQ5Q61Z61N7

    #Comicbook #comicbookrelease #IdiopathicHypersomnia #SleepDisorder #disability #disabilityadvocate #advocacy #comics #mastocomics #mastoart #fediart

  2. New comic is up, and so is the reveal for my comic book release date! It has been tough...many years...but now it is coming - 68 pages of IH comic strips, symptom information, and original HUMAN MADE illustrations.

    Coming in May 25th (USA time).

    New episode:
    Tapastic: tapas.io/episode/3882119
    Ko-fi: ko-fi.com/i/IQ5Q61Z61N7

    #Comicbook #comicbookrelease #IdiopathicHypersomnia #SleepDisorder #disability #disabilityadvocate #advocacy #comics #mastocomics #mastoart #fediart

  3. New comic is up, and so is the reveal for my comic book release date! It has been tough...many years...but now it is coming - 68 pages of IH comic strips, symptom information, and original HUMAN MADE illustrations.

    Coming in May 25th (USA time).

    New episode:
    Tapastic: tapas.io/episode/3882119
    Ko-fi: ko-fi.com/i/IQ5Q61Z61N7

    #Comicbook #comicbookrelease #IdiopathicHypersomnia #SleepDisorder #disability #disabilityadvocate #advocacy #comics #mastocomics #mastoart #fediart

  4. How on earth do I find a decent #SupportCoordinator? Do they exist? #NDIS
    Have not been able access what tiny plan I have because I don’t know how, & can’t access any good advice on what I’m meant to do.
    I had a #DisabilityAdvocate short term and was screwed!
    #NDIS

  5. How on earth do I find a decent #SupportCoordinator? Do they exist? #NDIS
    Have not been able access what tiny plan I have because I don’t know how, & can’t access any good advice on what I’m meant to do.
    I had a #DisabilityAdvocate short term and was thrilled!
    She fucked up my plan.

  6. I’m really unwell. Please 🔄SHARE my pinned crowdfund &💸 GIVE if you can. Share on all social media platforms you’re on. I can’t get to many.l 😞

    It’s not looking great. Doctor confirmed I’m slowly dying in this environment. I don’t even get regular food.
    I need to escape ASAP. PLEASE HELP 🙏

    chuffed.org/project/161937-hel

    From Crowdfund:

    🚨EMERGENCY🚨

    Anna, an #Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with #abusive family members. She has multiple chronic illnesses too

    #Bedbound & forced to stay in a dark room, she is very vulnerable and that is taken advantage of. She is not allowed to access #disabilityaids or supportworkers & needs approval for all mailed items including food, which may be binned or sold regardless. She faces deliberate exposure to sensory overload, days without food, constant yelling, gaslighting, called every insult, stolen belongings - the list is endless.

    She has been infected with #COVID 3 times in 15 months due to unmasked family members, who have ignored the pleas of her doctor to be Covid conscious. She now has #LongCovid as well.

    This is compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, & more. She was forced to decline surgery to remove endometriosis after her family denied her after care & would not allow support workers to assist. One of many examples where medical care was denied by #CoersiveControl

    As a result of all this her health is deteriorating rapidly. She is living in "survival mode” but can’t for much longer.

    There are no steady rules, just excuses for her #abuse.

    ** Her doctor fears staying in this environment will kill her.**

    Australia's #healthcare, #disability, & #domesticviolence systems have failed her catastrophically, This systemic #neglect has created a #lifethreatening crisis – & for Anna, it's already too late to wait.

    **Anna's Critical Needs***

    - **Safe #Housing ASAP:** Anna desperately needs a quiet #room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week,funded meals & limited care hours; long-term help may qualify for Carer's Allowance. You’re not required to be a carer but can choose to.

    - **Secure Relocation:** Ambulance transport to reduce infection risks & reduce further stress & worsening of symptoms.

    - **Expert Advocacy:** A #disabilityadvocate for complex cases to navigate the system with her. She can’t do this alone.

    - **Communication Help (#Australia, preferably #Victoria):** Someone to handle phone tasks – all info provided. She can’t use the #phone due to the severity of her illness.

    Read more about Anna's story:

    "Australia’s state & services are trapping a woman living with #severeME in #domesticabuse

    And they keep passing the buck"

    thecanary.co/global/world-anal

    Please donate, share, or offer direct help now!

    If you can provide housing, advocacy, or calls, contact immediately - Halcionandon at gmail dot com

    Thanks. ❣️

    #MutualAid #FediAid

  7. On daily rate, hotel is still very behind

    Indigenous Latina family, homeless, mourning Sansón, ESA bunny

    Sabi is disabled caretaker for elderly mom; multidisciplinary artist & advocate

    Linktr.ee/SabiLewSounds
    Kofi/Pypl SabiLewSounds
    CA/VM toadlyturtle (Note Sabi)

    #LatinaMusician #DisabledArist #MentalHealthAdvocate #DisabilityAdvocate #MutualAid #TraumaSurvivor #cPTSD #LatinaMusician #MutualAidRequest #SabiLewSounds #SupportDisabledArtists #DisabledCreator #LightWithin #Fempreneur

  8. Help me escape abuse & finally get out of here this #NewYear 🎉🥳

    Please help by hitting 🔄 BOOST , 📝QUOTE & 💸 GIVE if you can. Share on all social media platforms.

    chuffed.org/project/161937-hel

    ### Urgent Appeal: Help Anna #Escape #Abuse – Time is Running Out!

    🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from #Abuse and #Neglect!

    Anna, an Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with abusive family members. Bedbound and forced to stay in a dark room, she is vulnerable and that vulnerability is taken advantage of. She is not allowed access to #disability aids or workers and needs approval for all mailed items including food, which may be binned or sold regardless. There are no steady rules, just excuses for her abuse. She faces deliberate exposure to sensory overload, days without food, constant yelling, stolen belongings, and three #COVID infections in 15 months due to unmasked family members. She now has #LongCovid as well. Compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, and more - her health is deteriorating rapidly.

    ** Her doctor fears that staying in this environment will kill her.**

    #Australia's #healthcare, #disability, and #domesticviolence systems have failed her catastrophically,. This systemic neglect has created a life-threatening crisis – and for Anna, it's already too late to wait.

    **Anna's Critical Needs – Your Support Can Save Her:**

    - **Safe Housing ASAP:** Anna desperately needs a quiet room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week, with funded meals and limited care hours; long-term help may qualify for Carer's Allowance. She has indicated she may need incidental help.

    - **Secure Relocation:** Specialized transport to reduce infection risks and suit her ME. Funds needed for moving costs and aids until #NDIS access.

    - **Expert Advocacy:** A #DisabilityAdvocate for complex cases to navigate the system with her. Even a friend just willing to help. She can’t do this alone.

    - **Communication Aid (#Australia, preferably #Victoria):** Someone to handle phone tasks – all documents provided. Brain injury has made phone use impossible.

    -**This is a Shameful Failure – But You Can Help** In a resource-rich nation, no one should rot in abuse while services ignore them. Don't let Anna become a statistic.

    Please #donate, #share, or offer direct #help now!

    If you can provide #housing, #advocacy, or calls, contact immediately at -

    Halcionandon at gmail dot com

    If Chuffed is not your thing, you can donate at:
    BMaC- buymeacoffee.com/Halcionandon
    Beem: Halcionandon

    Thanks so much for reading. Please share!


    Read more about Anna's story:
    thecanary.co/global/world-anal

    #MutualAidRequest #MutualAid #Narcissist #NarcissisticAbuse #Crowdfund #Neglect
    @mutualaid
    #LongCovid #NewYear #PWLc
    #MECFS #PWME #SevereME #ChronicPain
    @mecfs

  9. URGENT: $650 HOTEL DUE 11AM ET TOMORROW, AUG 5TH!!

    Help #Indigenous family, #Homeless after eviction

    #SabiLewSounds is 24/7 caretaker for elderly mom (both disabled) & ESA bunny

    $949 Needed ASAP
    Hotel, Phone, food

    KOFI/PP SabiLewSounds
    CA/VM toadlyturtle (Note: Sabi)

    #Disability #LightWithin #Fempreneur #MutualAid #TraumaSurvivor #cPTSD #DisabilityAdvocate #DisabledArtist #LatinaMusician #MutualAidRequest #SupportDisabledArtists #MentalHealthAdvocate

  10. 🌟 Introduction Post 🌟

    Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:

    🧑‍💻 Who I Am

    I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.

    🐾 Meet Squeaker!

    I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!

    📚 What I’m Studying

    I'm currently learning:

    • Digital Accessibility through the BIT Accessibility Analyst Course
    • Literary Braille Proofreading via the NLS
    • Programming on platforms like freeCodeCamp and Codecademy

    My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.

    💡 What I Do

    I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:

    • Facebook: Multiple Disabilities Peer to Peer Support Group
    • Discord/Mailing List: MultAbilities
    • Clubhouse: People with Multiple Disabilities

    Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!

    🎮📖🍴 My Interests

    When I’m not advocating or studying, you can find me:

    I also love swimming 🏊‍♀️ when my health allows it.

    🛠️ My Goals

    One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:

    • Provide peer support groups
    • Help fund assistive technology
    • Advocate for education and employment opportunities
    • Collaborate with disability-focused organizations to improve accessibility

    For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝

    🤝 Let’s Connect!

    I’m always happy to chat about:

    • Accessibility in #tech or tech in general
    • Disability advocacy
    • Programming (#HTML, #JavaScript)
    • Braille
    • Books
    • Or just life in general!

    Feel free to follow me here or check out my website at laniecarmelo.tech.

    #Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign

  11. 🌟 Introduction Post 🌟

    Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:

    🧑‍💻 Who I Am

    I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.

    🐾 Meet Squeaker!

    I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!

    📚 What I’m Studying

    I'm currently learning:

    • Digital Accessibility through the BIT Accessibility Analyst Course
    • Literary Braille Proofreading via the NLS
    • Programming on platforms like freeCodeCamp and Codecademy

    My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.

    💡 What I Do

    I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:

    • Facebook: Multiple Disabilities Peer to Peer Support Group
    • Discord/Mailing List: MultAbilities
    • Clubhouse: People with Multiple Disabilities

    Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!

    🎮📖🍴 My Interests

    When I’m not advocating or studying, you can find me:

    I also love swimming 🏊‍♀️ when my health allows it.

    🛠️ My Goals

    One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:

    • Provide peer support groups
    • Help fund assistive technology
    • Advocate for education and employment opportunities
    • Collaborate with disability-focused organizations to improve accessibility

    For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝

    🤝 Let’s Connect!

    I’m always happy to chat about:

    • Accessibility in #tech or tech in general
    • Disability advocacy
    • Programming (#HTML, #JavaScript)
    • Braille
    • Books
    • Or just life in general!

    Feel free to follow me here or check out my website at laniecarmelo.tech.

    #Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign

  12. 🌟 Introduction Post 🌟

    Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:

    🧑‍💻 Who I Am

    I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.

    🐾 Meet Squeaker!

    I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!

    📚 What I’m Studying

    I'm currently learning:

    • Digital Accessibility through the BIT Accessibility Analyst Course
    • Literary Braille Proofreading via the NLS
    • Programming on platforms like freeCodeCamp and Codecademy

    My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.

    💡 What I Do

    I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:

    • Facebook: Multiple Disabilities Peer to Peer Support Group
    • Discord/Mailing List: MultAbilities
    • Clubhouse: People with Multiple Disabilities

    Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!

    🎮📖🍴 My Interests

    When I’m not advocating or studying, you can find me:

    I also love swimming 🏊‍♀️ when my health allows it.

    🛠️ My Goals

    One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:

    • Provide peer support groups
    • Help fund assistive technology
    • Advocate for education and employment opportunities
    • Collaborate with disability-focused organizations to improve accessibility

    For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝

    🤝 Let’s Connect!

    I’m always happy to chat about:

    • Accessibility in #tech or tech in general
    • Disability advocacy
    • Programming (#HTML, #JavaScript)
    • Braille
    • Books
    • Or just life in general!

    Feel free to follow me here or check out my website at laniecarmelo.tech.

    #Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign

  13. 🌟 Introduction Post 🌟

    Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:

    🧑‍💻 Who I Am

    I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.

    🐾 Meet Squeaker!

    I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!

    📚 What I’m Studying

    I'm currently learning:

    • Digital Accessibility through the BIT Accessibility Analyst Course
    • Literary Braille Proofreading via the NLS
    • Programming on platforms like freeCodeCamp and Codecademy

    My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.

    💡 What I Do

    I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:

    • Facebook: Multiple Disabilities Peer to Peer Support Group
    • Discord/Mailing List: MultAbilities
    • Clubhouse: People with Multiple Disabilities

    Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!

    🎮📖🍴 My Interests

    When I’m not advocating or studying, you can find me:

    I also love swimming 🏊‍♀️ when my health allows it.

    🛠️ My Goals

    One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:

    • Provide peer support groups
    • Help fund assistive technology
    • Advocate for education and employment opportunities
    • Collaborate with disability-focused organizations to improve accessibility

    For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝

    🤝 Let’s Connect!

    I’m always happy to chat about:

    • Accessibility in #tech or tech in general
    • Disability advocacy
    • Programming (#HTML, #JavaScript)
    • Braille
    • Books
    • Or just life in general!

    Feel free to follow me here or check out my website at laniecarmelo.tech.

    #Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign

  14. 🌟 Introduction Post 🌟

    Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:

    🧑‍💻 Who I Am

    I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.

    🐾 Meet Squeaker!

    I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!

    📚 What I’m Studying

    I'm currently learning:

    • Digital Accessibility through the BIT Accessibility Analyst Course
    • Literary Braille Proofreading via the NLS
    • Programming on platforms like freeCodeCamp and Codecademy

    My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.

    💡 What I Do

    I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:

    • Facebook: Multiple Disabilities Peer to Peer Support Group
    • Discord/Mailing List: MultAbilities
    • Clubhouse: People with Multiple Disabilities

    Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!

    🎮📖🍴 My Interests

    When I’m not advocating or studying, you can find me:

    I also love swimming 🏊‍♀️ when my health allows it.

    🛠️ My Goals

    One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:

    • Provide peer support groups
    • Help fund assistive technology
    • Advocate for education and employment opportunities
    • Collaborate with disability-focused organizations to improve accessibility

    For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝

    🤝 Let’s Connect!

    I’m always happy to chat about:

    • Accessibility in #tech or tech in general
    • Disability advocacy
    • Programming (#HTML, #JavaScript)
    • Braille
    • Books
    • Or just life in general!

    Feel free to follow me here or check out my website at laniecarmelo.tech.

    #Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign

  15. I desperately need an #advocate. A #medical advocate to be precise. If you are able to help, let me know. Do you know anyone else who can help? Yes I’ve checked all the lists books are closed. #Melbourne best but anywhere in #Australia is ok you can dial into any meetings.
    You don’t have to be a professional. People in the #healthcare industry who know the system migh be able to help (#physiotherapist, #occupational therapist, #nurse, etc)

    I need a witness at the very least.

    Please boost. 🙏

    #ChronicIllness @[email protected]
    @[email protected]
    #DisabilityAdvocate
    @[email protected]
    @[email protected]
    @disability
    #ChronicPain @chronicpain
    @mecfs #MECFS #PWME @LongCovid
    @longcovid
    @auscovid19
    #LawFedi #Medfedi #legalfedi

  16. I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.

    It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!

    #rarediseaseadvocate #ChronicIllnessDisability #MSWarrior #DisabilityAdvocate