#cysticfibrosis — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #cysticfibrosis, aggregated by home.social.
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Blackstone Commits $250 Million to Anagram Therapeutics, Targeting Cystic Fibrosis Complication
Blackstone Life Sciences invests $250 million in Anagram Therapeutics to develop a new drug for cystic fibrosis patients with EPI. This could mean fewer pills daily.
#CysticFibrosis, #Blackstone, #AnagramTherapeutics, #EPI, #DrugDevelopment
https://newsletter.tf/blackstone-gives-250m-to-help-cf-patients/
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Blackstone Life Sciences is giving $250 million to Anagram Therapeutics. This is a large amount of money to help develop a new medicine for people with cystic fibrosis.
#CysticFibrosis, #Blackstone, #AnagramTherapeutics, #EPI, #DrugDevelopment
https://newsletter.tf/blackstone-gives-250m-to-help-cf-patients/ -
#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research identifying cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research identifying cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research identifying cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research identifying cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research identifying cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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Five Feet Apart "I smile at him, and take just one more stolen step, until we're five feet apart" Sale: $13.99 to $1.99 by Rachael Lippincott Rating: 4.7/5 (15,599 Reviews) #YoungAdult #Romance #CysticFibrosis #HospitalLove #Tearjerker #BookSky
Five Feet Apart -
https://www.europesays.com/ie/447722/ Cystic fibrosis therapies significantly reduce the need for pediatric lung transplants #children #CysticFibrosis #Éire #fibrosis #Health #Heart #hospital #IE #Ireland #LungDisease #LungTransplant #Transplant
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♨️ Hot off the press: Researchers at #CharitéBerlin & FMP have developed a fundamentally new therapeutic approach to the hereditary disease #CysticFibrosis! They succeeded in repairing the causal cell defect with a #nanobody – a tiny antibody fragment – in the lab.
#CharitéPaper #CharitéPediatrics #CF #CysticFibrosis #medicine #research #science #chemistry #MedMastodon #ScienceMastodon #pharmacology
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♨️ Hot off the press: Researchers at #CharitéBerlin & FMP have developed a fundamentally new therapeutic approach to the hereditary disease #CysticFibrosis! They succeeded in repairing the causal cell defect with a #nanobody – a tiny antibody fragment – in the lab.
#CharitéPaper #CharitéPediatrics #CF #CysticFibrosis #medicine #research #science #chemistry #MedMastodon #ScienceMastodon #pharmacology
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♨️ Hot off the press: Researchers at #CharitéBerlin & FMP have developed a fundamentally new therapeutic approach to the hereditary disease #CysticFibrosis! They succeeded in repairing the causal cell defect with a #nanobody – a tiny antibody fragment – in the lab.
#CharitéPaper #CharitéPediatrics #CF #CysticFibrosis #medicine #research #science #chemistry #MedMastodon #ScienceMastodon #pharmacology
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♨️ Hot off the press: Researchers at #CharitéBerlin & FMP have developed a fundamentally new therapeutic approach to the hereditary disease #CysticFibrosis! They succeeded in repairing the causal cell defect with a #nanobody – a tiny antibody fragment – in the lab.
#CharitéPaper #CharitéPediatrics #CF #CysticFibrosis #medicine #research #science #chemistry #MedMastodon #ScienceMastodon #pharmacology
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♨️ Hot off the press: Researchers at #CharitéBerlin & FMP have developed a fundamentally new therapeutic approach to the hereditary disease #CysticFibrosis! They succeeded in repairing the causal cell defect with a #nanobody – a tiny antibody fragment – in the lab.
#CharitéPaper #CharitéPediatrics #CF #CysticFibrosis #medicine #research #science #chemistry #MedMastodon #ScienceMastodon #pharmacology
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URGENT: MEDICAL EMERGENCY 🚨
My nebulizer just broke, and as someone living with Cystic Fibrosis, I cannot breathe properly without it. This machine is my lifeline for daily treatments.
A replacement costs $300, which I urgently need to raise to get back on my treatment plan. Every hour without it is a risk to my lung health.
If you can donate even a small amount or share this post, it would mean the world to me.
Please help https://chuffed.org/project/149562-urgent-assistance-for-monas-son
#CysticFibrosis #CFWarrior #MedicalHelp #gaze -
CW: Nebenwirkungen
Ich sollte Lotto spielen …
Im 💩 Lotto bin ich ganz weit vorn. Frag mich heute schon den ganzen Tag wieso ich so gereizt bin.„Kaftrio (Elexacaftor/Tezacaftor/Ivacaftor) kann bei manchen Patienten mit Mukoviszidose neuropsychiatrische Nebenwirkungen wie Reizbarkeit, Stimmungsschwankungen oder Angstzustände verursachen, insbesondere zu Therapiebeginn.“
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https://www.europesays.com/ie/352378/ Engineers develop highly precise gene editor for safer cystic fibrosis treatments #bacteria #Bioengineering #CysticFibrosis #Cytosine #DNA #Drugs #Éire #Enzyme #fibrosis #Gene #GeneEditing #Genetic #Health #IE #InfectiousDiseases #Ireland #Lungs #medicine #PrecisionMedicine #Research #Technology #therapy
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Updated newborn screening guidelines aim to improve cystic fibrosis detection
An updated report on cystic fibrosis (CF) from Ann & Robert H. Lurie Children’s Hospital of Chicago, in…
#NewsBeep #News #Health #AU #Australia #Breathing #Children #cysticfibrosis #Diagnostic #Digestion #Fibrosis #Gene #Genetic #geneticdisorder #Hospital #medicine #newborn #NewbornScreening #Nutrition #research
https://www.newsbeep.com/au/452952/ -
Insmed’s ‘ginormous’ lung drug sales; J&J’s US pricing deal
This story was originally published on BioPharma Dive. To receive daily news and insights, subscribe to our free…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Medication #approveddrug #cysticfibrosis #DelilahAlvarado #Health #PharmaceuticalCompany #WallStreetanalysts
https://www.newsbeep.com/us/398067/ -
Insmed’s ‘ginormous’ lung drug sales; J&J’s US pricing deal
This story was originally published on BioPharma Dive. To receive daily news and insights, subscribe to our free…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Medication #approveddrug #cysticfibrosis #DelilahAlvarado #Health #PharmaceuticalCompany #WallStreetanalysts
https://www.newsbeep.com/us/398067/ -
‘We were sitting with our calculator saying “we can afford that!”’ Joy for families as cystic fibrosis drug prices fall within reach https://www.theguardian.com/society/2026/jan/07/families-cystic-fibrosis-drug-prices-affordable-generic-triko-vertex-pharmaceuticals-beximco-trikafta-kaftrio #CysticFibrosis #GlobalHealth #GlobalDevelopment #Health #PharmaceuticalsIndustry #MedicalResearch #Business #Society #Bangladesh
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Enterprise Therapeutics publishes results of Phase 1 study of ETD001, a novel inhaled ENaC blocker for treatment of Cystic Fibrosis, in The Journal of Cystic Fibrosis
Enterprise Therapeutics Ltd (Enterprise), a biopharmaceutical company dedicated to the discovery and development of novel therapies to improve…
#NewsBeep #News #Health #AU #Australia #Biopharmaceutical #Blood #cysticfibrosis #Fibrosis #Lungs #Potassium #Respiratory #Therapeutics
https://www.newsbeep.com/au/337042/ -
https://www.europesays.com/ie/223571/ Enterprise Therapeutics publishes results of Phase 1 study of ETD001, a novel inhaled ENaC blocker for treatment of Cystic Fibrosis, in The Journal of Cystic Fibrosis #Biopharmaceutical #blood #CysticFibrosis #Éire #fibrosis #Health #IE #Ireland #Lungs #Potassium #Respiratory #Therapeutics
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https://www.europesays.com/ie/216042/ Cystic fibrosis patients on triple-drug therapy can safely reduce daily lung treatments #children #CysticFibrosis #Éire #fibrosis #Health #hospital #IE #Ireland #Lungs #medicine #pediatrics #Protein #Research #Respiratory #therapy
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Pacbio’s Puretarget simplifies carrier screening
Up to 71% of peo…
#NewsBeep #News #Genetics #AU #Australia #BioWorldMedTech #Cachexia #cancer-inducedcachexia #carrierscreening #clinical #cysticfibrosis #Gaucherdisease #geneticdisorder #genetictesting #Gynecology/obstetrics #HelmholtzDiabetesCenter #Neonatal/pediatrics #Neurology/psychiatric #PacificBiosciencesofCaliforniaInc. #Pen-X-ACIP #Puretarget #Revio #Science #Sickle-cell #thalassemia #U.S. #Vegasystem
https://www.newsbeep.com/au/181932/ -
Pacbio’s Puretarget simplifies carrier screening
Up to 71% of…
#NewsBeep #News #Genetics #BioWorldMedTech #cachexia #cancer-inducedcachexia #carrierscreening #clinical #cysticfibrosis #Gaucherdisease #geneticdisorder #genetictesting #Gynecology/obstetrics #HelmholtzDiabetesCenter #Neonatal/pediatrics #Neurology/psychiatric #PacificBiosciencesofCaliforniaInc. #Pen-X-ACIP #Puretarget #Revio #Science #Sickle-cell #thalassemia #U.S. #UK #UnitedKingdom #Vegasystem
https://www.newsbeep.com/uk/171971/ -
DATE: September 24, 2025 at 05:00PM
SOURCE: BioWorld MedTechDirect article link at end of text block below.
.@BillionToOneInc #Unity screen IDs #cysticfibrosis, enables in utero treatment
Here are any URLs found in the article text:
Articles can be found by scrolling down the page at https://www.bioworld.com/topics/85-bioworld-medtech .
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-------------------------------------------------#healthcare #healthtech #healthcaretech #healthtechnology #medgadget #medicine #doctor #hospital #medtech
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U of A to honour biology grad for breakthrough in treating cystic fibrosis
A biomedical innovator and University of Alberta graduate whose breakthrough in treating cystic fibrosis has given tens of…
#NewsBeep #News #Health #AU #Australia #convocation #cysticfibrosis #FredVanGoor #honorarydegrees #NizarSomji #trikafta #ualberta25
https://www.newsbeep.com/au/165644/ -
https://www.europesays.com/uk/358209/ Kiwi family move to Australia to get cystic fibrosis drug Trikafta for daughter #adalyndelaney #cf #CysticFibrosis #Health #kayladelaney #Medication #pharmac #trikafta #UK #UnitedKingdom
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When I was a child around 1980, my mother was camp nurse at an Easter Seals camp for ‘disabled children’, so I attended a cystic fibrosis camp despite not having the disease.
At the time, life expectancy with CF was under 20, and for two weeks the regimen that allowed even that was part of my day. As I moved through high school and into young adulthood it was a sadness to think that those kids had probably all died.
But then I got caught up on the effectiveness of treatments being pioneered and realized that thanks to research supported by the Cystic Fibrosis Foundation life expectancy had been slowly extended to the point that most of my cabin-mates are probably still alive today.
I encourage everyone to support the organization as you are able, and stop helping to elect awful ignorant numpties who value their ideologies ahead of the lives of sick children.
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https://www.europesays.com/uk/200752/ Screening for genetic mutations in couples before they conceive #CysticFibrosis #FragileX #GeneticCarrierScreening #GeneticDisorder #GeneticDisorders #Genetics #Health #Mackenzie'sMission #medical #NormanSwan #Podcast #PreeyaAlexander #program #Science #screening #show #SpinalMuscularAtrophy #Testing #TheHealthReport #UK #UnitedKingdom
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#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research that identified cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research that identified cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research that identified cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research that identified cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research that identified cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons
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American molecular biologist David Liu's pioneering work is rewriting the building blocks of life with unprecedented precision. https://www.japantimes.co.jp/news/2025/04/07/world/science-health/scientist-rewriting-dna-medicine/?utm_medium=Social&utm_source=mastodon #worldnews #sciencehealth #health #medicine #dna #crispr #cysticfibrosis
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Doctors’ best friends: dogs will help sniff out bacteria for cystic fibrosis sufferers https://www.theguardian.com/society/2025/mar/22/dogs-will-help-sniff-out-bacteria-cystic-fibrosis-sufferers #ImperialCollegeLondon #Medicalresearch #Cysticfibrosis #Antibiotics #Science #Animals #Society #Dogs
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• The Canadian gov’t is buying billboard just to piss off Trump
• A Toronto hospital’s MAJOR advance toward #CysticFibrosis cure
• Marmots, marmots fucking everywhere!
• The new multimillionaire Order of Canada
All this and much more in tomorrow’s issue of my FREE newsletter:
https://FarAndWide.news -
CW: Krankheit und Tod
#BobFlanagan my #CysticFibrosis role model. Love his documentation.
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Are there any cystic fibrosis patients here at Fediverse? I would be pleased to hear from you :disability_flag:
#CysticFibrosis #Mukoviszidose :BoostOK:
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Russell #Vought is one of the main authors of #Project2025, the #nazi movement guidebook for MAGAts.
His daughter suffers from #CysticFibrosis.
She was treated by a drug, #Trikafta, developed by Vertex Pharmaceutic, under a grant by the National Institute of Health, US/DoH/NIH.
Project2025 is dismantling the #NIH.
But it's ok. Vought already got what he needed.
https://www.motherjones.com/politics/2025/02/project-2025-vought-medical-funding/
MAGAts are NOT human, have no souls, can not be saved, are burnt meat.
2/2
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Russell #Vought is one of the main authors of #Project2025, the #nazi movement guidebook for MAGAts.
His daughter suffers from #CysticFibrosis.
She was treated by a drug, #Trikafta, developed by Vertex Pharmaceutic, under a grant by the National Institute of Health, US/DoH/NIH.
Project2025 is dismantling the #NIH.
But it's ok. Vought already got what he needed.
https://www.motherjones.com/politics/2025/02/project-2025-vought-medical-funding/
MAGAts are NOT human, have no souls, can not be saved, are burnt meat.
2/2
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Russell #Vought is one of the main authors of #Project2025, the #nazi movement guidebook for MAGAts.
His daughter suffers from #CysticFibrosis.
She was treated by a drug, #Trikafta, developed by Vertex Pharmaceutic, under a grant by the National Institute of Health, US/DoH/NIH.
Project2025 is dismantling the #NIH.
But it's ok. Vought already got what he needed.
https://www.motherjones.com/politics/2025/02/project-2025-vought-medical-funding/
MAGAts are NOT human, have no souls, can not be saved, are burnt meat.
2/2
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Russell #Vought is one of the main authors of #Project2025, the #nazi movement guidebook for MAGAts.
His daughter suffers from #CysticFibrosis.
She was treated by a drug, #Trikafta, developed by Vertex Pharmaceutic, under a grant by the National Institute of Health, US/DoH/NIH.
Project2025 is dismantling the #NIH.
But it's ok. Vought already got what he needed.
https://www.motherjones.com/politics/2025/02/project-2025-vought-medical-funding/
MAGAts are NOT human, have no souls, can not be saved, are burnt meat.
2/2
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Researchers found that #cysticfibrosis alters the #immunesystem early in life, likely from birth, causing frequent #inflammation unaffected by mucus-targeting drugs: http://go.tum.de/253195
📷iStock/seventyfour
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Wrote Radioactive Me after the doc said I have a genetic disorder linked to cystic fibrosis, causing congenital absence of the vas deferens. It was early pandemic, I had other health issues. Thanks to science, we now have a baby on the way! https://tr.ee/ZRbF5COxqW
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I was recently a co-author in this #openaccess journal article:
"Gastrointestinal and Nutrition Implications in Cystic Fibrosis"
#cysticfibrosis #gastroenterology https://practicalgastro.com/2024/12/10/gastrointestinal-and-nutrition-implications-in-cystic-fibrosis/
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- Trikafta is a miracle drug for CF that is currently keeping my son alive.
- Trikafte costs ~$5.8K to make a year's supply.
- Vertex, the maker of Trikafta, charges $322K for a year's supply.
- Vertex is also actively working to prevent a generic from being made.
- Vertex are assholes. Real scum.
#medicine #CysticFibrosis #Healthcare #Trikafta
