#cysticfibrosis — Public Fediverse posts

Chemist warning over new shortage alert for key drugs Creon and Estradot

https://fed.brid.gy/r/https://www.mirror.co.uk/news/health/chemist-warning-over-new-shortage-37736186

https://www.europesays.com/ie/707011/ Call for more investment in lung health as part of Budget 2027 #Asthma #AsthmaSocietyOfIreland(ASI) #CysticFibrosis #Éire #Health #IE #inhalers #Ireland #Lung #MaintenanceAndRelieverTherapy(MART)Inhalers #WorldLungDay

https://www.europesays.com/ie/679580/ New approach repairs airway barrier defects in cystic fibrosis #bacteria #Bacterial #Cell #Chronic #CysticFibrosis #Éire #fibrosis #Genetic #Health #IE #Ireland #Lungs #medicine #Metabolism #Physiology #Protein #Research #Respiratory

Scientists design new RNA therapy to bypass mutations behind thousands of genetic diseases

Scientists engineered transfer RNA to bypass premature gene…
#NewsBeep #News #Health #CA #Canada #CFTR #cysticfibrosis #Genetherapy #geneticdiseases #geneticmedicine #healthnews #lipidnanoparticles #MedicalGoodNews #NewDiscoveries #nonsensemutations #Rarediseases #research #RNATherapeutics #Science #suppressortRNA #transferRNA #trikafta #tRNAtherapy #universityoftoronto
https://www.newsbeep.com/ca/877532/

https://www.europesays.com/ie/634581/ Study sheds new light on the physiological roles of protein quality control at the ribosome #Aging #Cell #CellSignaling #CysticFibrosis #Éire #fibrosis #Health #IE #Ireland #medicine #Membrane #Protein #ProteinSynthesis #QualityControl #Research #Ribosome #Translation

Wearable Sweat Test Stickers for Cystic Fibrosis

Research indicates that flexible stickers can accurately measure sweat chloride levels in cystic fibrosis patients in under an…
#NewsBeep #News #Health #CA #Canada #cysticfibrosis #diagnostictesting
https://www.newsbeep.com/ca/845031/

https://www.fogolf.com/1326818/british-open-2026-adversity-doesnt-begin-to-describe-what-this-amateur-has-overcome-to-play-at-birkdale-golf-news-and-tour-information/ British Open 2026: Adversity doesn’t begin to describe what this amateur has overcome to play at Birkdale | Golf News and Tour Information #amateurs #BritishOpen2026AdversityDoesntBeginToDescribeWhatThisAmateurHasOvercomeToPlayAtBirkdale #CysticFibrosis #DavidHoward #Golf #GolfNews #news #openchampionship2026 #RoyalBirkdale #Story

British Open 2026: Adversity doesn’t begin to describe what this amateur has overcome to play at Birkdale | Golf News and Tour Information

Sean M. Haffey SOUTHPORT, England — When you Google the life expectancy of a person with cystic fibrosis,…
#Golf #News #amateurs #britishopen2026adversitydoesntbegintodescribewhatthisamateurhasovercometoplayatbirkdale #cysticfibrosis #DavidHoward #news #openchampionship2026 #RoyalBirkdale #story
https://www.europesays.com/golf/38178/

This British Open amateur is a qualified mechanic with cystic fibrosis and is proving an inspiration

SOUTHPORT, England (AP) — David Howard was aged 7 when he was diagnosed with cystic fibrosis. By the…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Golf #BritishOpenGolf #cysticfibrosis #DavidHoward #Health #Medication #shanelowry #Sports
https://www.newsbeep.com/us/762495/

Vertex (VRTX) Wins FDA Expansion For CASGEVY And Advances ALYFTREK In Canada

Find winning stocks in any market cycle. Join 7 million investors using Simply Wall St’s investing ideas for…
#Canada #ALYFTREK #betathalassemia #CASGEVY #cysticfibrosis #sicklecelldisease #VertexPharmaceuticals
https://www.europesays.com/canada/126364/

https://www.europesays.com/ie/573339/ Colorado can’t cap price of arthritis drug Enbrel, judge rules #amgen #Colorado #ColoradoDivisionOfInsurance #ColoradoNews #Court #CysticFibrosis #Diseases #Drug #Drugs #Éire #Government #Health #HealthCare #HealthInsurance #IE #inflation #insurance #Ireland #LatestHeadlines #lawsuit #Medicaid #Medicare #Medication #News #Patents

Colorado can’t cap price of arthritis drug Enbrel, judge rules

Colorado can’t cap the price of arthritis medication Enbrel while a lawsuit challenging the state’s drug affordability b…
#NewsBeep #News #Medication #Amgen #Colorado #ColoradoDivisionofInsurance #ColoradoNews #Court #cysticfibrosis #diseases #Drug #Drugs #government #Health #Healthcare #healthinsurance #Inflation #Insurance #Latestheadlines #lawsuit #Medicaid #Medicare #Patents #UK #UnitedKingdom
https://www.newsbeep.com/uk/678546/

https://www.europesays.com/uk/1074143/ Colorado can’t cap price of arthritis drug Enbrel, judge rules #Amgen #colorado #ColoradoDivisionOfInsurance #ColoradoNews #Court #CysticFibrosis #Diseases #Drug #Drugs #government #Health #HealthCare #HealthInsurance #Inflation #Insurance #LatestHeadlines #lawsuit #Medicaid #medicare #Medication #News #Patents #UK #UnitedKingdom

https://www.europesays.com/pl/531939/ X Dzień Wiatraczka dla Słonych Dzieci już 21 listopada. Polska znów pokaże wsparcie dla osób z mukowiscydozą #CF #CysticFibrosis #DzieńWiatraczka #DzieńWiatraczka2026 #mukowiscydoza #PL #Poland #Polish #Polska #Polski #SłoneDzieci #XDzieńWiatraczka

https://www.europesays.com/ie/562388/ Cystic Fibrosis Care Still Below Pre-Pandemic Levels #CFTR #ChronicLungCondition #COVID19AndSARSCoV2 #CysticFibrosis #Éire #Health #IE #Ireland #PandemicDisasterPreparedness

I’m Riding in the 2026 Cystic Fibrosis Foundation Cycle for Life!

https://ssweeny.net/2026/06/im-riding-in-the-2026-cystic-fibrosis-foundation-cycle-for-life/

https://www.europesays.com/uk/1046429/ A Loophole Brings Cystic Fibrosis Patients a ‘Miracle Drug’ in Generic Form #Bangladesh #BeximcoPharmaceuticals #CysticFibrosis #DevelopingCountries #Drugs(Pharmaceuticals) #Health #Medication #trikafta #Triko #UK #UnitedKingdom #VertexPharmaceuticalsInc

A Loophole Brings Cystic Fibrosis Patients a ‘Miracle Drug’ in Generic Form

Josua Lottering stepped out the airport doors in the Bangladesh capital, Dhaka, and doubled over in coughing spasms.…
#NewsBeep #News #Medication #Bangladesh #BeximcoPharmaceuticals #cysticfibrosis #developingcountries #Drugs(Pharmaceuticals) #Health #trikafta #Triko #UK #UnitedKingdom #VertexPharmaceuticalsInc
https://www.newsbeep.com/uk/653945/

https://www.europesays.com/ie/548862/ A Loophole Brings Cystic Fibrosis Patients a ‘Miracle Drug’ in Generic Form #Bangladesh #BeximcoPharmaceuticals #CysticFibrosis #DevelopingCountries #Drugs(Pharmaceuticals) #Éire #Health #IE #Ireland #Medication #trikafta #Triko #VertexPharmaceuticalsInc

https://www.europesays.com/uk/1030962/ Colorado receives FDA permission to import drugs from Canada #Amgen #Canada #colorado #ColoradoDepartmentOfHealthCarePolicyAndFinancing #ColoradoNews #CysticFibrosis #diabetes #Drug #Drugs #Florida #FoodAndDrugAdministration #government #Health #HealthCare #HealthInsurance #Healthcare #Insurance #JaredPolis #LatestHeadlines #Medication #News #Ozempic #Pfizer #trump #UK #UnitedKingdom

Colorado receives FDA permission to import drugs from Canada

Colorado finally has federal permission to start i…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Medication #Amgen #Canada #Colorado #coloradodepartmentofhealthcarepolicyandfinancing #coloradonews #cysticfibrosis #Diabetes #drug #drugs #Florida #foodanddrugadministration #government #Health #Healthcare #healthinsurance #insurance #JaredPolis #latestheadlines #Ozempic #Pfizer #Trump
https://www.newsbeep.com/us/707479/

https://www.europesays.com/ch/81186/ Roche targets cystic fibrosis with deal for TMEM16A potentiator #biotech #CysticFibrosis #EnterpriseTherapeutics #FierceBiotechHomepage #Genentech #Roche

Vertex Presents New Data on ALYFTREK® at European Cystic Fibrosis Conference

– ALYFTREK Phase 3 data on children with cystic fibrosis ages 2 to 5 with vanzacaftor/tezacaftor/deutivacaftor-responsive genotypes including…
#Europe #EU #ALYFTREK #CFTR #cysticfibrosis #European #sweatchloride #treatment #TRIKAFTA #Vertex
https://www.europesays.com/europe/61718/

https://www.europesays.com/ie/517841/ Combo Formoterol + Methacholine May Improve Mucus Clearance #CysticFibrosis #Éire #Health #IE #Ireland #MucusAndSputum #pharmaceuticals

Pathogen Utilizes Itaconate to Fuel Biofilms:
iofilms #COPD #CysticFibrosis #Microbiology
https://dev.tnyp.me/Q056LYh0/m

P. aeruginosa exploits itaconate from macrophages:

#PseudomonasAeruginosa #ItaconateMetabolism #Biofilm #COPD #CysticFibrosis

https://dev.https://tnyp.me/Q056LYh0/i

Vertex’s Germany CASGEVY Deal Highlights Growing Non CF Growth Story

Find winning stocks in any market cycle. Join 7 million investors using Simply Wall St’s investing ideas for…
#Germany #DE #Europe #EU #Europa #CASGEVY #cysticfibrosis #reimbursement #stocktrades #VertexPharmaceuticals
https://www.europesays.com/germany/12629/

Blackstone Commits $250 Million to Anagram Therapeutics, Targeting Cystic Fibrosis Complication

Blackstone Life Sciences invests $250 million in Anagram Therapeutics to develop a new drug for cystic fibrosis patients with EPI. This could mean fewer pills daily.

#CysticFibrosis, #Blackstone, #AnagramTherapeutics, #EPI, #DrugDevelopment

https://newsletter.tf/blackstone-gives-250m-to-help-cf-patients/

Blackstone Life Sciences is giving $250 million to Anagram Therapeutics. This is a large amount of money to help develop a new medicine for people with cystic fibrosis.

#CysticFibrosis, #Blackstone, #AnagramTherapeutics, #EPI, #DrugDevelopment
https://newsletter.tf/blackstone-gives-250m-to-help-cf-patients/

#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research identifying cystic fibrosis at a meeting of the American Pediatric Association.

#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons

Five Feet Apart "I smile at him, and take just one more stolen step, until we're five feet apart" Sale: $13.99 to $1.99 by Rachael Lippincott Rating: 4.7/5 (15,599 Reviews) #YoungAdult #Romance #CysticFibrosis #HospitalLove #Tearjerker #BookSky

Five Feet Apart

Gibraltar teen spends several days with Red Wings thanks to Make-A-Wish Michigan https://www.rawchili.com/nhl/559891/ #2026 #AliciaSmith #CourtneyTefund #CysticFibrosis #Detroit #DetroitRedWings #DetroitRedWings #DevinTefund #DylanLarkin #Hockey #MakeAWish #MakeAWishMichigan #NHL #RedWings #RedWings #SherriCollins

https://www.europesays.com/ie/447722/ Cystic fibrosis therapies significantly reduce the need for pediatric lung transplants #children #CysticFibrosis #Éire #fibrosis #Health #Heart #hospital #IE #Ireland #LungDisease #LungTransplant #Transplant

Nanobody Offers Novel Pathway to Mend Misfolded Protein in Cystic Fibrosis

A new nanobody called FITC-NB1-R10 can enter cells and fix the misfolded CFTR protein that causes cystic fibrosis. This could lead to new treatments.

#CysticFibrosis, #CFTR, #ProteinRepair, #NewTreatment, #MedicalResearch

https://newsletter.tf/nanobody-repairs-cystic-fibrosis-protein-in-cells/

This new nanobody can stay inside cells for over 24 hours, which is longer than many current drugs. It directly repairs the faulty protein causing cystic fibrosis.

#CysticFibrosis, #CFTR, #ProteinRepair, #NewTreatment, #MedicalResearch
https://newsletter.tf/nanobody-repairs-cystic-fibrosis-protein-in-cells/

♨️ Hot off the press: Researchers at #CharitéBerlin & FMP have developed a fundamentally new therapeutic approach to the hereditary disease #CysticFibrosis! They succeeded in repairing the causal cell defect with a #nanobody – a tiny antibody fragment – in the lab.

👉 https://www.charite.de/en/service/press_reports/artikel/detail/a_fundamentally_new_therapeutic_approach_to_cystic_fibrosis_nanobody_repairs_cellular_defect

#CharitéPaper #CharitéPediatrics #CF #CysticFibrosis #medicine #research #science #chemistry #MedMastodon #ScienceMastodon #pharmacology

https://www.europesays.com/ie/430949/ ‘My goals then were to stay alive for the next weekend to go out’ – The Irish Times #CysticFibrosis #Éire #Health #IE #Ireland

‘I never thought I’d make 30 or get married but now I am thanks to wonder drug’

Hailey Mann, who has cystic fibrosis, was preparing for the end of her life at 24 when the…
#NewsBeep #News #Health #Aberdeen #cysticfibrosis #Drugs #GB #Glasgow #Google #Loveandromance #Premium #UK #UnitedKingdom
https://www.newsbeep.com/uk/491161/

Boy, 6, takes up boxing to fight cystic fibrosis

A six-year-old boy with cystic fibrosis has taken up boxing to fight the effects of his genetic condition.…
#NewsBeep #News #Boxing #airwayclearance #AU #Australia #boxingcoach #boxingtraining #BuryStEdmunds #cysticfibrosis #sports
https://www.newsbeep.com/au/537340/

URGENT: MEDICAL EMERGENCY 🚨
My nebulizer just broke, and as someone living with Cystic Fibrosis, I cannot breathe properly without it. This machine is my lifeline for daily treatments.
A replacement costs $300, which I urgently need to raise to get back on my treatment plan. Every hour without it is a risk to my lung health.
If you can donate even a small amount or share this post, it would mean the world to me.
Please help https://chuffed.org/project/149562-urgent-assistance-for-monas-son
#CysticFibrosis #CFWarrior #MedicalHelp #gaze

Children with Cystic Fibrosis Experience Ongoing Gut Inflammation

Learn why children with cystic fibrosis have gut inflammation. It's due to a faulty gene affecting digestion and causing health problems. Find out what happens next.

#CysticFibrosis #GutHealth #ChildHealth #DigestiveIssues #CFResearch

https://newsletter.tf/why-children-with-cystic-fibrosis-have-gut-inflammation/

Children with cystic fibrosis often have gut inflammation. This is because a faulty gene stops their body from digesting food well, leading to more health issues.

#CysticFibrosis #GutHealth #ChildHealth #DigestiveIssues #CFResearch

https://newsletter.tf/why-children-with-cystic-fibrosis-have-gut-inflammation/

‘We were sitting with our calculator saying “we can afford that!”’ Joy for families as cystic fibrosis drug prices fall within reach https://www.theguardian.com/society/2026/jan/07/families-cystic-fibrosis-drug-prices-affordable-generic-triko-vertex-pharmaceuticals-beximco-trikafta-kaftrio #CysticFibrosis #GlobalHealth #GlobalDevelopment #Health #PharmaceuticalsIndustry #MedicalResearch #Business #Society #Bangladesh

DATE: September 24, 2025 at 05:00PM
SOURCE: BioWorld MedTech

Direct article link at end of text block below.

.@BillionToOneInc #Unity screen IDs #cysticfibrosis, enables in utero treatment

https://t.co/4IeyQSaA6A

#medtech

Here are any URLs found in the article text:

https://t.co/4IeyQSaA6A

#medtech

Articles can be found by scrolling down the page at https://www.bioworld.com/topics/85-bioworld-medtech .

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@JamesBazan

When I was a child around 1980, my mother was camp nurse at an Easter Seals camp for ‘disabled children’, so I attended a cystic fibrosis camp despite not having the disease.

At the time, life expectancy with CF was under 20, and for two weeks the regimen that allowed even that was part of my day. As I moved through high school and into young adulthood it was a sadness to think that those kids had probably all died.

But then I got caught up on the effectiveness of treatments being pioneered and realized that thanks to research supported by the Cystic Fibrosis Foundation life expectancy had been slowly extended to the point that most of my cabin-mates are probably still alive today.

I encourage everyone to support the organization as you are able, and stop helping to elect awful ignorant numpties who value their ideologies ahead of the lives of sick children.

#CysticFibrosis #mRNA

I spent my childhood in and out of hospital. At 19, I finally realised I had a terminal disease https://www.theguardian.com/lifeandstyle/2025/jul/30/i-spent-childhood-in-out-hospital-at-19-finally-realised-had-terminal-disease #Health&wellbeing #Cysticfibrosis #Lifeandstyle #Society #Health

#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research that identified cystic fibrosis at a meeting of the American Pediatric Association.

#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis #Histodons

American molecular biologist David Liu's pioneering work is rewriting the building blocks of life with unprecedented precision. https://www.japantimes.co.jp/news/2025/04/07/world/science-health/scientist-rewriting-dna-medicine/?utm_medium=Social&utm_source=mastodon #worldnews #sciencehealth #health #medicine #dna #crispr #cysticfibrosis

Sometimes the best Doc is a dog. #cysticFibrosis https://www.theguardian.com/society/2025/mar/22/dogs-will-help-sniff-out-bacteria-cystic-fibrosis-sufferers

Doctors’ best friends: dogs will help sniff out bacteria for cystic fibrosis sufferers https://www.theguardian.com/society/2025/mar/22/dogs-will-help-sniff-out-bacteria-cystic-fibrosis-sufferers #ImperialCollegeLondon #Medicalresearch #Cysticfibrosis #Antibiotics #Science #Animals #Society #Dogs

• The Canadian gov’t is buying billboard just to piss off Trump

• A Toronto hospital’s MAJOR advance toward #CysticFibrosis cure

• Marmots, marmots fucking everywhere!

• The new multimillionaire Order of Canada

All this and much more in tomorrow’s issue of my FREE newsletter:
https://FarAndWide.news

Пациентские сообщества, которые борятся с дженериками при помощи отказа от лечения своих детей — я не с вами. ⦾ https://theins.ru/news/279738 #orphandrugs #genericdrugs #cysticfibrosis #неаргументированноорущийДмитрийМуратов

Surround yourself with greatness. Yes, 2 people in this picture got medals for their skiing performance, but only 1 person got a handmade tinfoil medal from his dinner-table guest. I think we know who the true winner is here. #LetGoodTakeFlight #CelebritySki #cysticfibrosis

Are there any cystic fibrosis patients here at Fediverse? I would be pleased to hear from you :disability_flag:

#CysticFibrosis #Mukoviszidose :BoostOK:

Russell #Vought is one of the main authors of #Project2025, the #nazi movement guidebook for MAGAts.

His daughter suffers from #CysticFibrosis.

She was treated by a drug, #Trikafta, developed by Vertex Pharmaceutic, under a grant by the National Institute of Health, US/DoH/NIH.

Project2025 is dismantling the #NIH.

But it's ok. Vought already got what he needed.

https://www.motherjones.com/politics/2025/02/project-2025-vought-medical-funding/

MAGAts are NOT human, have no souls, can not be saved, are burnt meat.

2/2

#TurdReich

Researchers found that #cysticfibrosis alters the #immunesystem early in life, likely from birth, causing frequent #inflammation unaffected by mucus-targeting drugs: http://go.tum.de/253195

#proteins #geneticmutations

📷iStock/seventyfour

@[email protected] and I are ready! Holy cow! We started this journey many years ago. Found out I had Cystic Fibrosis and couldn’t make a baby the old fashioned way. Went through 6 rounds of IVF. And now here we are at Northwestern to have a baby today!

#baby #induction #ivf #cysticfibrosis