Pomegranates Help Heal An Ailing Intestine. The compound produced by gut bacteria after eating foods such as pomegranates, walnuts and berries helps repair intestinal linings. #InflammatoryBowelDisease #IBD #GutHealth #CrohnsDisease #MedicalResearch
https://www.instagram.com/p/DeSIAYBMYom/
#crohnsdisease — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #crohnsdisease, aggregated by home.social.
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Strictly's Amy Dowden's family forced to issue legal warning over agonising health ordeal
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@grimalkina I can't boost this enough! 💯
It took me 10 years of getting told it was stress/IBS before I got my #CrohnsDisease diagnosis & that's when treatment & actual relief began.
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A Compound in Healthy Foods May Exacerbate Inflammatory Bowel Disease. A compound naturally found in foods like spinach, almonds and sweet potatoes may unexpectedly worsen the intestinal inflammation. #IBD #CrohnsDisease #UlcerativeColitis #GutHealth #MedicalResearch
https://www.instagram.com/p/DdVfMCWuQXY/ -
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My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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CW: IBD / medical
Four things I actually check before I cook, after 23 years with Crohn's: enough lean protein? oil instead of solid fat? is the fiber mostly soluble? did this start from real ingredients, not a box? No rules, no protocol — just what's held up through flares and remissions. https://ibdmovement.com/what-goes-into-a-good-ibd-recipe-my-four-building-blocks/?utm_source=mastodon
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CW: IBD / medical
This week's roundup: a real Phase 3 win in ulcerative colitis ($10.8B TL1A drug), sobering data on opioid use and mortality risk in IBD, and no — oysters won't calm your gut, despite a cell-culture headline implying otherwise. Full read: https://ibdmovement.com/week-of-july-6-12-2026-seven-ibd-research-stories-worth-reading/?utm_source=mastodon #IBD #CrohnsDisease #ChronicIllness
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New treatment starts today.. Off of Adalimumab and on to Risankizumab.. Not sure if this is a positive change or not. We’ll see! 😅
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CW: IBD / medical
A real-world cohort study tracked ustekinumab retention in IBD over two years: 92.2% of patients still on it at 6 months, 83.9% at 12 months, 77.8% at 2 years. Adverse events were rare (4.1%). One of eight research stories in this week's roundup. https://ibdmovement.com/week-of-june-29-july-5-2026-eight-ibd-research-stories-worth-reading/?utm_source=mastodon
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CW: IBD / medical
Tulisokibart met Phase 3 primary and key secondary endpoints in UC — first anti-TL1A drug to do so. Blocks a cytokine (TL1A) distinct from TNF, IL-23, and integrin pathways. Weekly digest covers this + 7 more: GLP-2 regenerative therapy in Phase 2, pediatric blood protein diagnostic, HLA variant linked to worse outcomes.
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CW: IBD / medical
Most IBD cooking advice is about what not to eat. This is something different — a first-person list of resources, tools, and recipes that have actually made cooking manageable with Crohn's or colitis.
Worth bookmarking if you're still figuring out your kitchen routine.
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CW: IBD / medical
A systematic review of 7 studies — 5,721 adults switching from reference adalimumab to a biosimilar. Remission rates held at 74–90%. Biomarkers stable. This week also: overheated "IBD cause solved" headlines, stem cell therapy for fistulas, molecular scarring in healed Crohn's tissue, and a $180M biotech launch.
https://ibdmovement.com/week-of-june-15-21-2026-eight-ibd-research-stories-worth-reading/?utm_source=mastodon #IBD #CrohnsDisease #ChronicIllness
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Living Chronic: Conversations That Changed Me, Lessons That Saved Me, Is Now Available For Pre-Order | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.barnesandnoble.com/w/living-chronic-brandy-schantz/1150278345?ean=9798897472550Born from her own journey with Crohn's, lupus, and dysautonomia: a book about resilience, self-advocacy, disability, and hope.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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Living Chronic: Conversations That Changed Me, Lessons That Saved Me, Is Now Available For Pre-Order | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.barnesandnoble.com/w/living-chronic-brandy-schantz/1150278345?ean=9798897472550Born from her own journey with Crohn's, lupus, and dysautonomia: a book about resilience, self-advocacy, disability, and hope.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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Living Chronic: Conversations That Changed Me, Lessons That Saved Me, Is Now Available For Pre-Order | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.barnesandnoble.com/w/living-chronic-brandy-schantz/1150278345?ean=9798897472550Born from her own journey with Crohn's, lupus, and dysautonomia: a book about resilience, self-advocacy, disability, and hope.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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MRI results in, apparently lots of active inflammation. Soon I’ll be switching from Adalimumab to Risankizumab, with strange little stick-on slow injection machines.
Explains the energy levels.. At least they still have more things to try.
Crossposted with @openvibe
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CW: IBD / medical
20+ years with Crohn's and I've tracked which sweeteners my gut actually tolerates. Monk fruit and stevia aren't the same answer — the difference surprised me and changed what I keep in the kitchen.
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Living Chronic: Conversations That Changed Me, Lessons That Saved Me, Is Now Available For Pre-Order | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.barnesandnoble.com/w/living-chronic-brandy-schantz/1150278345?ean=9798897472550Born from her own journey with Crohn's, lupus, and dysautonomia: a book about resilience, self-advocacy, disability, and hope.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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Living Chronic: Conversations That Changed Me, Lessons That Saved Me, Is Now Available For Pre-Order | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.barnesandnoble.com/w/living-chronic-brandy-schantz/1150278345?ean=9798897472550Born from her own journey with Crohn's, lupus, and dysautonomia: a book about resilience, self-advocacy, disability, and hope.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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Living Chronic: Conversations That Changed Me, Lessons That Saved Me, Is Now Available For Pre-Order | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.barnesandnoble.com/w/living-chronic-brandy-schantz/1150278345?ean=9798897472550Born from her own journey with Crohn's, lupus, and dysautonomia: a book about resilience, self-advocacy, disability, and hope.
#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment
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#CrohnsDisease is associated with NOD2 mutations, but what's NOD2's role in the #intestine? Mckenna Eklund & Edan Foley show that #NOD2 interacts with #estrogen to regulate intestinal homeostasis, perhaps explaining the sex-specific pathogenesis of CD @PLOSBiology https://plos.io/4ojTEuZ
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Intermittent fasting and Crohn's: after 20+ years with this disease, I've learned to approach any dietary change with measured skepticism. 16:8 sometimes reduces bloating and stabilizes energy — but it doesn't prevent flares or replace medication. Here's my honest take.
https://ibdmovement.com/how-intermittent-fasting-affects-my-crohns-disease/?utm_source=mastodon #CrohnsDisease #IBD
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In IBD research this week: market projections through 2034, pediatric growth guidance, and one study explaining the IBD-to-colon-cancer mechanism. The last one is worth your time.
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Biologics suppress your immune system — which changes everything about vaccination. Some vaccines are contraindicated. Some are required before starting. And timing around infusions actually matters.
After 20+ years with Crohn's, here's what I coordinate with my doctors.
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IBD research has never felt more promising — or more overwhelming. Dual-pathway biologics, spatial transcriptomics, gut-brain connections. When the field advances faster than patients can process, what's the right way to engage?
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Seven IBD research updates from May 25-31: iron deficiency markers, the gut-brain connection, Mayo Clinic on treatment resistance, and early GLP-1 data. Covers a lot — none of it changes treatment tomorrow.
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This week in IBD research: biologic switching patterns from Brazil (38% switch rate), a systematic review on vaping that actually acknowledges its limits, plus preclinical work on black licorice compounds.
None of it changes my treatment tomorrow — but useful context for ongoing conversations.
#CrohnsDisease #IBD #IBDAwareness
https://ibdmovement.com/week-of-may-11-17-2026-seven-ibd-research-stories-worth-your-attention/?utm_source=mastodon -
Today is World IBD Day 🎗️
If you're living with Crohn's or UC, this one's for you. More than 10 million people worldwide share this diagnosis — and every one of them deserves to know they're not alone.
Read more at ibdmovement.com
https://ibdmovement.com/world-ibd-day-you-are-not-alone/?utm_source=mastodon#WorldIBDDay #IBD #CrohnsDisease #UlcerativeColitis #IBDAwareness
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Seven IBD research stories from May 11-17: real-world biologic switching data (38% switching rate in Brazilian UC patients), a vaping/IBD systematic review with honest acknowledgment of its limits, and early preclinical findings on treatment-resistant IBD. Worth knowing, not practice-changing. #CrohnsDisease #IBD #IBDAwareness https://ibdmovement.com/week-of-may-11-17-2026-seven-ibd-research-stories-worth-your-attention/?utm_source=mastodon
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World IBD Day
Many people living with IBD manage symptoms others never see.
Crohn’s disease and ulcerative colitis can affect daily life through fatigue, pain, unpredictability, and stress, even when someone appears completely well externally.
Insights shared through My Patient Advice often highlight how awareness and supportive communication help people feel less isolated while managing chronic conditions.
#WorldIBDDay #IBDawareness #CrohnsDisease #UlcerativeColitis #InvisibleIllness
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Woolliss and Petchtanong: A Clash of Pathologies and Precision
Ben Woolliss fights Petchtanong Petchfergus at ONE Fight Night 43 on May 17. Woolliss has Crohn's Disease. Petchtanong trained to stop his leg kicks.
#ONEFightNight43, #BenWoolliss, #Petchtanong, #CrohnsDisease, #MMA
https://newsletter.tf/ben-woolliss-vs-petchtanong-one-fight-night-43/
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Ben Woolliss, who has Crohn's Disease, faces former champion Petchtanong Petchfergus. Petchtanong says he can stop Woolliss's leg kicks.
#ONEFightNight43, #BenWoolliss, #Petchtanong, #CrohnsDisease, #MMA
https://newsletter.tf/ben-woolliss-vs-petchtanong-one-fight-night-43/ -
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In remission but wondering if coffee, a beer, or Diet Coke is off the table?
After 24 years with Crohn's, here's my honest answer — including what I actually drink and why. The answer is more nuanced than most people want to hear.
https://ibdmovement.com/coffee-alcohol-and-carbonated-drinks-in-ibd-remission-my-experience/?utm_source=mastodon #CrohnsDisease #IBD #ChronicIllness #IBDAwareness
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"Breakthrough treatment for Crohn's!" — I've been reading those headlines since 2002.
IBD Movement is where I break down what the research actually means for patients — from someone who's lived it for 23 years.
ibdmovement.com/?utm_source=mastodon
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Screening of 3,500 compounds against human stem cells induced to an inflamed condition, followed by testing in mice, found that glycyrrhizin, a compound extracted from black licorice, reduced inflammation and cell death. The results may point toward a treatment for IBD and Crohn's Disease.
Summary: https://knowridge.com/2026/04/black-licorice-compound-could-reduce-gut-inflammation-study-finds/
#Science #Health #Inflammation #IBD #CrohnsDisease #BlackLicorice
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'I have Crohn's Disease - here are 5 things I wish I'd known sooner'
https://web.brid.gy/r/https://www.mirror.co.uk/news/health/i-crohns-disease-here-5-36308482
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CW: Maunderings of a doddering fool
(The page layout and fonts didn’t quite match the rest of the book.) it was on a new thing called the World Wide Web. It looked pretty cool. I found Mosaic, one of the first web browsers, and fell in. One day in the alt-chrons group I said, somebody could make a web page about #crohnsDisease. And then I went and did that, late in August ‘93. (5/7)
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Japan witnessed a 40% rise in cases of the chronic inflammatory bowel diseases ulcerative colitis and Crohn’s disease in just eight years, according to a government-backed study. https://www.japantimes.co.jp/news/2025/09/29/japan/science-health/japan-bowel-diseases-patients/?utm_medium=Social&utm_source=mastodon #japan #sciencehealth #mhlw #ulcerativecolitis #crohnsdisease #tohouniversity #kyorinuniversity #osakametropolitanuniversity #health #medicine
