#crohns — Public Fediverse posts

@APBBlue Mine had me do the split prep last time and I haaaaated it. Was miserable all night and got no sleep. This time I asked to go back to the previous prep and it's a lot easier, thank gods.

(Also, solidarity fist bump from a fellow #Crohns peep)

Why is it taking me days to recover from an MRI scan of all things? I don’t remember having this problem in the past. 😑 #crohns #ibd

I guess since I'm sharing random music today....here's my personal Crohns disease theme song. youtu.be/xDiuSwrRQ4M?... #music #crohns #bobsburgers

"Bad Stuff Happens in the Bath...

@ScienceScholar
Docs have lots of problems diagnosing #crohns even after symptoms have appeared. Maybe this will help them, too.

Running on a belly full of quesadilla and yogurt wasn't my best idea but some more miles down.

Donate: https://socialsync.app/fundraiser/cr-xjvkp0yr04w60?currentTab=donations

Goal: 32.93/60

#Running #RunningCommunity #RunningPunk #HardcoreRunning #CharityRun #Crohns #Colitis

@courtcan
Years ago when I started my web page for #crohns & #Ulcerativecolitis, back in the Stone Age when you had to write your own html, I’d get 2-3 emails a day touting cures, often offering me a ground floor marketing opportunity. The most entertaining was a home kit for a blood filtering process similar to hemodialysis from some Russian guy. Drinking aloe vera was another popular one.

Slower one today but I had a guest with me.

Donate: https://socialsync.app/fundraiser/cr-xjvkp0yr04w60?currentTab=donations

Goal: 11.6/60

#Running #RunningCommunity #RunningPunk #HardcoreRunning #CharityRun #Crohns #Colitis

I normally don't feed the trolls, but this one was too good to pass up #ostomy #crohns

Salt pills > electrolyte drinks

No I will not debate. 😂

#pots #crohns #ibd

Scientists at our university and LMU University Hospital Munich combine dietary therapy with fecal microbiome transfer to improve long-term treatment for #Crohns disease. By reshaping the #gutmicrobiome, they aim to sustain remission and reduce #inflammation: http://go.tum.de/395259

📷 A.Eckert

"The big hope is to find active ingredients that would restore the functionality of disrupted mitochondria, in other words, to repair them in a sense. This would limit intestinal damage as a trigger for chronic inflammation processes," said Dr Dirk Haller.

#health #medicine #IBS #IBD #Crohns #gut #microbiome #research #science

https://www.labroots.com/trending/cell-and-molecular-biology/27926/mitochondrial-dysfunction-disrupt-microbiome-cause-crohn-s

I found the 🦭 on my run this morning #IBDAthlete #Crohns #runnersofmastodon #running

https://strava.app.link/QwomxPzFDNb

Well, I got a 9/9 on the Boston score for bowel prep, so I did it in well much as it was massively annoying and tiring.

Better still, my Crohn’s is in clinical remission also, which is even better - more the result of restarting #lowdosenaltrexone than the steroids I’d wager, as it was not great after the latter. Either way good news.

Only concern is I have another check of my pancreas in 6 months due to a cyst that needs monitored.
There is always something with
#chronicillness

#crohns

As a veteran of colonoscopies, I’ve actually lost count, tomorrow’s is my 7th I think, this has to be the worst prep regime I’ve had yet. Usual drink of a litre of vile stuff 18:00-19:00 but the second lot is at 05:00-06:00 before the procedure at 08:30 - and I have to be in a taxi 06:15 to get there for 07:00. Not going to happen that. Will be later than 07:00 but last time there was a long time sitting about waiting anyway.

#crohns #crohnsdisease #autoimmune #chronicillness

@emsquared absolutely. Reminds me I need to book a taxi for a week today for a hospital trip - colonoscopy fun. #crohns At least this time it’s paid for by the health service.

Prep mostly done. So it's stage 1 of checking out how to deal with ongoing (37 years) Crohn's and diverticulitis disease tomorrow. First up is a colonoscopy, which always fascinates the scientist in me if nothing else. #Crohns #Colitis #medicine

2/
New:
Systemic antibody responses against gut microbiota flagellins implicate shared & divergent immune reactivity in Crohn’s disease & #ChronicFatigueSyndrome

Free:
https://microbiomejournal.biomedcentral.com/articles/10.1186/s40168-024-01858-1

Part of ZonMw ME/CFS Research Programme

#MyalgicEncephalomyelitis #Crohns #MEcvs #CVS @mecfs @crohns

New:
Systemic antibody responses against gut microbiota flagellins implicate shared & divergent immune reactivity in Crohn’s disease & #ChronicFatigueSyndrome

Free:
https://microbiomejournal.biomedcentral.com/articles/10.1186/s40168-024-01858-1

2-minute video abstract at link explains it better

#MEcfs #CFS #PwME #CrohnsDisease @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Crohns @crohns

1/

Still feel like shit coming off steroids. 3 more days of 30mg, then 20, 15 and 5 for a week each. Don’t have much faith in previously shite version of ‘normal’ being resumed after that tbh. Thoroughly scunnered wi it. Feeling jittery and shaky, tired no matter how much I nap in the day due to hourly peeing overnight. #crohns #autoimmune #ckd #kidneydisease #chronicillness #fatigue

Only took 3 appeals and getting the office of the DC healthcare ombudsman involved to finally get approved by my PBM. I now have $14k worth of meds sitting in my fridge… #crohns

@guardian Omg!! 🎉

#IBD #Crohns