#clusterheadache — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #clusterheadache, aggregated by home.social.
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2/2 And some of us never find a thing that helps. So we keep suffering, while society's like "we get headaches too, just get over it".
That's why I hate them being called headaches. Even though they are.
End of rant.
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1/2 Why I hate when migraine and cluster headaches are called headaches.
Before anyone comes at me with "But they are headaches", I KNOW. Both are a pain originating in the head, therefore headaches. Let me explain...
I saw a trained medical professional yesterday call cluster headaches one of the worst pains imaginable, a 10 on this awful pain scale the medical community uses. The amount of comments, saying "how can a headache be a 10, you're exaggerating" was astounding.
Everyone of us had a head ache at some point in their life, right? Usually, we throw back an over-the-counter painkiller and we're good. So, when people read "cluster HEADACHE", they're like... it's a headache, get over it.
But migraines and cluster headaches are not *just* headaches. And while for some mild cases, over-the-counter pain killers might help (I envy you), most of us have to try a lot of things until we find something that does help.
(cont.)
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CW: migraine - personal anecdote
I was having frequent migraines, as well as some cluster headaches.
In desperation, I started taking feverfew 2x/day and a gut motility supplement containing ginger (Integrative Therapeutics Motility Activator). Both feverfew and ginger have some clinical evidence for migraine prevention. I stopped having headaches for a while, but then they started back up again.
I would describe most of this round of headaches as being mild cluster headaches. 'Mild cluster headache' might seem like a contradiction, but I would get the same droopiness and eye irritation on the right side of my face along with mild pain as when I would have with the severe ice-pick stabbing pain headaches - so I think they were the same thing.
Someone on a chat mentioned that Mg threonate is good for migraines and I realized that I had switched from Mg threonate to Mg glycinate at about the time that the headaches started coming back.
I switched back to Mg threonate and ... I think my headache situation has improved. (knock wood)
Since I take a lot of potentially blood thinning supplements, I also take vitamin K1.
#migraine #headache #ChronicHeadache #ClusterHeadache #magnesium
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https://www.jns-journal.com/article/S0022-510X(24)00128-X/abstract Psilocybin pulse regimen reduces cluster headache attack frequency in the blinded extension phase of a randomized controlled trial (Schindler, et al, 2024) #psilocybin #clusterheadache #psychedelic #plantmedicine #psychedelics #psilocybin #psychedelicresearch #NeuroScience
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https://link.springer.com/article/10.1007/s40122-024-00606-5#xd_co_f=MzY0MWE1ZGYtYTk0ZS00ZTQyLWI5NjYtYjBkZWI3ODM3MjU4~ Ketamine as Treatment for Cluster Headache: A Systematic Review of Literature and a Case Series (Neumann, et al, 2024) #ketamine #psychedelics #psychedelic #psychedelicresearch #clusterheadache #painmanagement
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Jezebel: Sex. Celebrity. Politics. With Teeth: A Woman Was Denied Medication for Being of ‘Childbearing Age.’ She Just Sued the Hospital https://jezebel.com/childbearing-age-medication-denied-lawsuit-1850899899 #Jezebel #albanymedicalhealthpartners #healthmedicalpharma #clusterheadache #maternalhealth #womenshealth #socialissues #birthcontrol #miscarriage #danasussman #obstetrics #herehlers #pregnancy #facebook #roevwade #headache #lawcrime #abortion #tararule #family #wade #roe
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Jezebel: Sex. Celebrity. Politics. With Teeth: A Woman Was Denied Medication for Being of ‘Childbearing Age.’ She Just Sued the Hospital https://jezebel.com/childbearing-age-medication-denied-lawsuit-1850899899 #Jezebel #albanymedicalhealthpartners #healthmedicalpharma #clusterheadache #maternalhealth #womenshealth #socialissues #birthcontrol #miscarriage #danasussman #obstetrics #herehlers #pregnancy #facebook #roevwade #headache #lawcrime #abortion #tararule #family #wade #roe
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Jezebel: Sex. Celebrity. Politics. With Teeth: A Woman Was Denied Medication for Being of ‘Childbearing Age.’ She Just Sued the Hospital https://jezebel.com/childbearing-age-medication-denied-lawsuit-1850899899 #Jezebel #albanymedicalhealthpartners #healthmedicalpharma #clusterheadache #maternalhealth #womenshealth #socialissues #birthcontrol #miscarriage #danasussman #obstetrics #herehlers #pregnancy #facebook #roevwade #headache #lawcrime #abortion #tararule #family #wade #roe
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Jezebel: Sex. Celebrity. Politics. With Teeth: A Woman Was Denied Medication for Being of ‘Childbearing Age.’ She Just Sued the Hospital https://jezebel.com/childbearing-age-medication-denied-lawsuit-1850899899 #Jezebel #albanymedicalhealthpartners #healthmedicalpharma #clusterheadache #maternalhealth #womenshealth #socialissues #birthcontrol #miscarriage #danasussman #obstetrics #herehlers #pregnancy #facebook #roevwade #headache #lawcrime #abortion #tararule #family #wade #roe
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“Six Studies Between Cluster Headache Spells” (sumi ink and magic marker)
#inktober #ClusterHeadache -
Hacking Headaches: Keeping a Neurostimulator Working - We’ve heard a ton of stories over the years about abandoned technology — useful wi... - https://hackaday.com/2023/06/13/hacking-headaches-keeping-a-neurostimulator-working/ #sphenopalatineganglion #clusterheadache #neuromodulation #medicalhacks #repairhacks #abandonware #migraine #brick #nerve #neuro #spg
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TIL about cluster headache
“The #pain […] is usually described as burning, stabbing, drilling or squeezing. While #suicide is rare, those with cluster headaches may experience suicidal thoughts (giving the alternative name ‘suicide headache’ or ‘suicidal headache’). […] The disease may be the most painful condition known to medical science. […] #ClusterHeadache is probably the worst pain that humans experience. […] Women with cluster headache will tell you that an attack is worse than giving birth. So you can imagine that these people give birth without anesthetic once or twice a day, for six, eight, or ten weeks at a time. […] Their pain was so severe that several of them had to be constantly watched for fear of suicide. Most of them were willing to submit to any operation which might bring relief.”
#qualia #HedonisticImperative #consciousness
:pain_5:
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@wordsmith Michael Burnham. She's helped me through some long awful nights in pain, narrating subtleties born from someone who's seen a wider world yet is firmly planted on the ground under her feet. #startrekdiscovery #beherenow #clusterheadache
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@thequirkybraincoach Gonna need to stew on this! I'd come to believe we're motivated all the time, just not necessarily for what others find appropriate. For example, I'm motivated to fool myself into believing I can prevent a #ClusterHeadache by laying still rather than getting up, or watching one more episode vs reading that book, or going back inside to get that extra whatever than being on time. I'm not unmotivated. Just not motivated to do what others expect (or approve). #auADHD #unmasking
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Let's help people make connections: List #hashtags that interest you so you're findable. Then boost this post or repeat its instructions so others know to do the same.
#introductionsSome favorite topics:
#HealthEquity
#GameB
#RemoteWork
#NeuroDiversity
#SocialLearning
#BetterWorld
#OrgCulture
#NeuroScience
#ComplexityTheory
#ClusterHeadache
#KidneyStones
#ADHD
#AuADHD
#Autism
#GenZ
#GenX
#Gingers
#Curly
#BookWriting
#Speaking
#Collaboration
#Permaculture
#ParentofTeen
#ChaordicGo
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Let's help people make connections: List #hashtags that interest you so you're findable. Then boost this post or repeat its instructions so others know to do the same.
#introductionsSome favorite topics:
#HealthEquity
#GameB
#RemoteWork
#NeuroDiversity
#SocialLearning
#BetterWorld
#OrgCulture
#NeuroScience
#ComplexityTheory
#ClusterHeadache
#KidneyStones
#ADHD
#AuADHD
#Autism
#GenZ
#GenX
#Gingers
#Curly
#BookWriting
#Speaking
#Collaboration
#Permaculture
#ParentofTeen
#ChaordicGo
-
Let's help people make connections: List #hashtags that interest you so you're findable. Then boost this post or repeat its instructions so others know to do the same.
#introductionsSome favorite topics:
#HealthEquity
#GameB
#RemoteWork
#NeuroDiversity
#SocialLearning
#BetterWorld
#OrgCulture
#NeuroScience
#ComplexityTheory
#ClusterHeadache
#KidneyStones
#ADHD
#AuADHD
#Autism
#GenZ
#GenX
#Gingers
#Curly
#BookWriting
#Speaking
#Collaboration
#Permaculture
#ParentofTeen
#ChaordicGo
-
Let's help people make connections: List #hashtags that interest you so you're findable. Then boost this post or repeat its instructions so others know to do the same.
#introductionsSome favorite topics:
#HealthEquity
#GameB
#RemoteWork
#NeuroDiversity
#SocialLearning
#BetterWorld
#OrgCulture
#NeuroScience
#ComplexityTheory
#ClusterHeadache
#KidneyStones
#ADHD
#AuADHD
#Autism
#GenZ
#GenX
#Gingers
#Curly
#BookWriting
#Speaking
#Collaboration
#Permaculture
#ParentofTeen
#ChaordicGo
-
Let's help people make connections: List #hashtags that interest you so you're findable. Then boost this post or repeat its instructions so others know to do the same.
#introductionsSome favorite topics:
#HealthEquity
#GameB
#RemoteWork
#NeuroDiversity
#SocialLearning
#BetterWorld
#OrgCulture
#NeuroScience
#ComplexityTheory
#ClusterHeadache
#KidneyStones
#ADHD
#AuADHD
#Autism
#GenZ
#GenX
#Gingers
#Curly
#BookWriting
#Speaking
#Collaboration
#Permaculture
#ParentofTeen
#ChaordicGo