#chronicillnessdisability — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronicillnessdisability, aggregated by home.social.
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I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.
It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!
#rarediseaseadvocate #ChronicIllnessDisability #MSWarrior #DisabilityAdvocate