#cerebralvasculitis — Public Fediverse posts

So heavily sedated and sleeping at mo (among other increased neuro symptoms) as latest consultant-pushed try at getting my immunosuppression dose a bit lower fails. Glum from it all! Grateful to manage anything productive in the circumstances :) Happy managed historical research late this afternoon. #neuro #autoimmune #immunosuppression #vasculitis #cerebralVasculitis #illness #chronicIllness

Today is International Vasculitis Awareness Day. I’ve been living with cerebral vasculitis since age 22 in 1994. Here’s something I wrote about living with an invisible and fluctuating neurological illness. https://vivsacademicblog.wordpress.com/2018/10/21/dealing-with-an-invisible-and-fluctuating-neurological-illness/ #CNS #neuro #disability #chronicIllness #illness #vasculitis #cerebral #CerebralVasculitis #CNSvasculitis

13.5 hours sleep so far today, expecting to get to at least 15 hours by dinner time. Probably going to sleep through the #SherlockHolmes panel I was hoping to see at 6pm. But sleep wins during a #neuro flare and more generally with me now. #vasculitis #CerebralVasculitis #ProtectingMyDamagedBrain

Waking after 5pm again. Yup that. #neuro #vasculitis #CerebralVasculitis #YesICanSleepUpTo18HoursADay

Slept for 13.5 hours today. Yup that! On plus after a run of bad nights I slept at night. #neuro #vasculitis #CerebralVasculitis #AtLeastItWasnt18Hours #WhereDidTheDayGo #Sleeping #Sedation #Unconscious