#c19lap — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #c19lap, aggregated by home.social.
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Our new #C19LAP Website is live!
https://www.longhauler-advocacy.orgDesigned & developed by #Longhaulers, this is the ultimate hub for #LongCOVID awareness, education, and support, packed with comprehensive resources for all w/ even more coming soon! Dive in & spread the word!
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Our new #C19LAP Website is live!
https://www.longhauler-advocacy.orgDesigned & developed by #Longhaulers, this is the ultimate hub for #LongCOVID awareness, education, and support, packed with comprehensive resources for all w/ even more coming soon! Dive in & spread the word!
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Join #C19LAP founder @k_bishof & the National Academies of Sciences, Engineering, and Medicines Committee for the report release webinar "A Long COVID Definition: A Chronic, Systemic Disease State with Profound Consequences" on June 11th at 1pm ET.
Register: https://events.nationalacademies.org/42882_06-2024_report-release-webinar-a-long-covid-definition
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Join #C19LAP founder @k_bishof & the National Academies of Sciences, Engineering, and Medicines Committee for the report release webinar "A Long COVID Definition: A Chronic, Systemic Disease State with Profound Consequences" on June 11th at 1pm ET.
Register: https://events.nationalacademies.org/42882_06-2024_report-release-webinar-a-long-covid-definition
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#C19LAP member, division lead & 4 year #Longhauler @TammyWilshire1 speaks with @pfizer for their “Dear Scientist” series.
Pfizer developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.
https://sponsored.bostonglobe.com/pfizer/long-covid-dear-scientist/ -
#C19LAP member, division lead & 4 year #Longhauler @TammyWilshire1 speaks with @pfizer for their “Dear Scientist” series.
Pfizer developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.
https://sponsored.bostonglobe.com/pfizer/long-covid-dear-scientist/ -
WHERE ARE THE #PHILANTHROPISTS for #LongCOVID?!
The $ isn’t coming from govt.
We need mass public & clinician education, research, & support. #C19LAP + is eager to lead, but there’s not a soul out there willing to step up for millions w/ #LongCOVID bc of #stigma
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WHERE ARE THE #PHILANTHROPISTS for #LongCOVID?!
The $ isn’t coming from govt.
We need mass public & clinician education, research, & support. #C19LAP + is eager to lead, but there’s not a soul out there willing to step up for millions w/ #LongCOVID bc of #stigma
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#C19LAP member Mindy Jackson & Husband talk with local WA news about her journey with #LongCOVID, the need for more awareness, & #LongCOVIDAwarenessDay.
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#C19LAP member Mindy Jackson & Husband talk with local WA news about her journey with #LongCOVID, the need for more awareness, & #LongCOVIDAwarenessDay.
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#C19LAP has been working hard!
Join us tomorrow 3/15 for a pretty amazing announcement on #LongCOVIDAwarenessDay!
Stay tuned & be sure to check in!
We will also be releasing several videos you should definitely check out & share!
#LongCOVIDAD24
longhauler-advocacy.org/longcovidad24 -
#C19LAP has been working hard!
Join us tomorrow 3/15 for a pretty amazing announcement on #LongCOVIDAwarenessDay!
Stay tuned & be sure to check in!
We will also be releasing several videos you should definitely check out & share!
#LongCOVIDAD24
longhauler-advocacy.org/longcovidad24 -
Change your profile picture to raise awareness about #LongCOVID during the week of #LongCOVIDAD24!
Head over to the #C19LAP #LongCOVIDAD24 toolkit to take this action & many others! (scroll to bottom of page) longhauler-advocacy.org/longcovidad24 Be sure to elevate this initiative, share widely & participate in our daily actions!
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Change your profile picture to raise awareness about #LongCOVID during the week of #LongCOVIDAD24!
Head over to the #C19LAP #LongCOVIDAD24 toolkit to take this action & many others! (scroll to bottom of page) longhauler-advocacy.org/longcovidad24 Be sure to elevate this initiative, share widely & participate in our daily actions!
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If you were given the opportunity to send a message to the #medicalcommunity about #LongCOVID, but only had 1-2 sentences to do it, what would your message be?
Action: https://docs.google.com/forms/d/e/1FAIpQLScIAqeAFGgy51wxKMSuO7jkHQjrZ2LcORpNfyBrJFemo3JSjQ/viewform
Utilize & share the #C19LAP #LongCOVIDAD24 toolkit for more actions & info! longhauler-advocacy.org/longcovidad24
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If you were given the opportunity to send a message to the #medicalcommunity about #LongCOVID, but only had 1-2 sentences to do it, what would your message be?
Action: https://docs.google.com/forms/d/e/1FAIpQLScIAqeAFGgy51wxKMSuO7jkHQjrZ2LcORpNfyBrJFemo3JSjQ/viewform
Utilize & share the #C19LAP #LongCOVIDAD24 toolkit for more actions & info! longhauler-advocacy.org/longcovidad24
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What would #LongCOVID obtaining sufficient, long-term funding mean for you, your family, your patients, and beyond?
Action: https://docs.google.com/forms/d/e/1FAIpQLScFFcakAJOUTGwGKBejBdtLi_nY7DyCG287U_vAb774fry91g/viewform
Utilize & share the #C19LAP #LongCOVIDAD24 toolkit for more actions & info! longhauler-advocacy.org/longcovidad24
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What would #LongCOVID obtaining sufficient, long-term funding mean for you, your family, your patients, and beyond?
Action: https://docs.google.com/forms/d/e/1FAIpQLScFFcakAJOUTGwGKBejBdtLi_nY7DyCG287U_vAb774fry91g/viewform
Utilize & share the #C19LAP #LongCOVIDAD24 toolkit for more actions & info! longhauler-advocacy.org/longcovidad24
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2022 estimates put the #Cost of #LongCOVID at $3.7 trillion over the first 5 years. However, this estimate assumed that only 10% develop #LongCOVID, while the current estimate is 20%, doubling the cost of #LongCOVID over the first five years to $7.4 trillion.
Join #C19LAP leading up to #LongCOVIDAD24 & utilize the actions & info in our toolkit at longhauler-advocacy.org/longcovidad24
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2022 estimates put the #Cost of #LongCOVID at $3.7 trillion over the first 5 years. However, this estimate assumed that only 10% develop #LongCOVID, while the current estimate is 20%, doubling the cost of #LongCOVID over the first five years to $7.4 trillion.
Join #C19LAP leading up to #LongCOVIDAD24 & utilize the actions & info in our toolkit at longhauler-advocacy.org/longcovidad24
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If you were given the opportunity to warn the world about #LongCOVID, but only had 1-2 sentences to do it, what would your warning be?
Action: docs.google.com/forms/d/e/1FAI…
Utilize & share the #C19LAP #LongCOVIDAD24 toolkit for more actions & info! longhauler-advocacy.org/longcovidad24
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If you were given the opportunity to warn the world about #LongCOVID, but only had 1-2 sentences to do it, what would your warning be?
Action: docs.google.com/forms/d/e/1FAI…
Utilize & share the #C19LAP #LongCOVIDAD24 toolkit for more actions & info! longhauler-advocacy.org/longcovidad24
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Current #LongCOVIDResearch indicates potential causes for #LongCOVID are #viralpersistence, #Immunedysfunction, & #Autoimmunity.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action through March 15th! Use #LongCOVIDAD24 & tag us!
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Current #LongCOVIDResearch indicates potential causes for #LongCOVID are #viralpersistence, #Immunedysfunction, & #Autoimmunity.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action through March 15th! Use #LongCOVIDAD24 & tag us!
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Over 200 symptoms, and many conditions have been reported in #LongCOVID. The collection of conditions resulting from a COVID-19 infection and Long COVID are referred to as Long COVID Associated Conditions.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action, raise awareness, other infographics & more from now through March 15th! Please share our actions, or your actions, on all platforms using #LongCOVIDAD & tag us!
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Over 200 symptoms, and many conditions have been reported in #LongCOVID. The collection of conditions resulting from a COVID-19 infection and Long COVID are referred to as Long COVID Associated Conditions.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action, raise awareness, other infographics & more from now through March 15th! Please share our actions, or your actions, on all platforms using #LongCOVIDAD & tag us!
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Join #C19LAP & the #LongCOVID community in contacting the #media and urge them to cover #LongCOVIDAD24. That can be a light it up event you planned, Long COVID funding requests, general Long COVID stories and experiences, and more!
Visit our #LongCOVIDAD24 toolkit to see how to participate! https://www.longhauler-advocacy.org/longcovidad24 (scroll down to the colored tiles)
Be sure to share this action on all of your platforms & use #LongCOVIDAD24 We can't wait to see your pictures!
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Join #C19LAP & the #LongCOVID community in contacting the #media and urge them to cover #LongCOVIDAD24. That can be a light it up event you planned, Long COVID funding requests, general Long COVID stories and experiences, and more!
Visit our #LongCOVIDAD24 toolkit to see how to participate! https://www.longhauler-advocacy.org/longcovidad24 (scroll down to the colored tiles)
Be sure to share this action on all of your platforms & use #LongCOVIDAD24 We can't wait to see your pictures!
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#LongCOVID impacts every organ system & requires extensive care coordination between various specialists.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action through March 15th! Please share on all platforms using #LongCOVIDAD24 & tag us!
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#LongCOVID impacts every organ system & requires extensive care coordination between various specialists.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action through March 15th! Please share on all platforms using #LongCOVIDAD24 & tag us!
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LightItUpTeal! Join #C19LAP & the #LongCOVID community in raising awareness about #LongCOVID. Lead an effort to get a local monument, bridge or landmark illuminated #Teal for #LongCOVIDAD24 or illuminate your house, such as your front porch or bedroom, or your office!
Visit our #LongCOVIDAD24 toolkit to see how to participate! https://www.longhauler-advocacy.org/longcovidad24
Be sure to share this action on all of your platforms & use #LongCOVIDAD24 We can't wait to see your pictures!
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LightItUpTeal! Join #C19LAP & the #LongCOVID community in raising awareness about #LongCOVID. Lead an effort to get a local monument, bridge or landmark illuminated #Teal for #LongCOVIDAD24 or illuminate your house, such as your front porch or bedroom, or your office!
Visit our #LongCOVIDAD24 toolkit to see how to participate! https://www.longhauler-advocacy.org/longcovidad24
Be sure to share this action on all of your platforms & use #LongCOVIDAD24 We can't wait to see your pictures!
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Preventing a #COVID infection is the only way to prevent #LongCOVID. Each COVID-19 #reinfection increases your chances of developing #LongCOVID. Each infection can be different. Do not use past infection experiences to make decisions about your level or risk for #LongCOVID. It is irrelevant.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action, now through March 15th! Please share actions on all platforms using #LongCOVIDAD24 & tag us!
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Preventing a #COVID infection is the only way to prevent #LongCOVID. Each COVID-19 #reinfection increases your chances of developing #LongCOVID. Each infection can be different. Do not use past infection experiences to make decisions about your level or risk for #LongCOVID. It is irrelevant.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action, now through March 15th! Please share actions on all platforms using #LongCOVIDAD24 & tag us!
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Join #C19LAP in urging #Congress to support a #resolution formalizing #LongCOVIDAwarenessDay!
https://actionnetwork.org/letters/urge-sponsorship-support-of-a-congressional-resolution-formalizing-long-covid-awareness-dayVisit our #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 to participate in our actions & please share daily on all platforms using #LongCOVIDAD24 & tag us!
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Join #C19LAP in urging #Congress to support a #resolution formalizing #LongCOVIDAwarenessDay!
https://actionnetwork.org/letters/urge-sponsorship-support-of-a-congressional-resolution-formalizing-long-covid-awareness-dayVisit our #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 to participate in our actions & please share daily on all platforms using #LongCOVIDAD24 & tag us!
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Anyone can develop #LongCOVID regardless of current health status, age, sex, gender, race, ethnicity, religious beliefs, or political affiliations.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action & use #LongCOVIDAD24 & tag us!
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Anyone can develop #LongCOVID regardless of current health status, age, sex, gender, race, ethnicity, religious beliefs, or political affiliations.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action & use #LongCOVIDAD24 & tag us!
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Long COVID impacts approximately 1 in 5, or 20%, of people who are infected with COVID-19.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action, raise awareness, & more from now through March 15th! Use #LongCOVIDAD24 & tag us!
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Long COVID impacts approximately 1 in 5, or 20%, of people who are infected with COVID-19.
Visit the #C19LAP #LongCOVIDAD24 toolkit at longhauler-advocacy.org/longcovidad24 for ways to take action, raise awareness, & more from now through March 15th! Use #LongCOVIDAD24 & tag us!
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Join #C19LAP & the #LongCOVID community in urging #PresidentBiden to discuss #LongCOVID during the March 7th #StateOfTheUnionAddress.
Visit our #LongCOVIDAD24 toolkit to urge President Biden use this major opportunity to educate the masses& raise awareness about #LongCOVID. https://www.longhauler-advocacy.org/longcovidad24 (scroll down to the colored tiles)
Be sure to share this action on all of your platforms & use #LongCOVIDAD24
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Join #C19LAP & the #LongCOVID community in urging #PresidentBiden to discuss #LongCOVID during the March 7th #StateOfTheUnionAddress.
Visit our #LongCOVIDAD24 toolkit to urge President Biden use this major opportunity to educate the masses& raise awareness about #LongCOVID. https://www.longhauler-advocacy.org/longcovidad24 (scroll down to the colored tiles)
Be sure to share this action on all of your platforms & use #LongCOVIDAD24
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As Long COVID Awareness Day [March 15th] approaches, join #C19LAP in raising #LongCOVIDAwareness and urging #Congress to #FundLongCOVID.
Check out our #LongCOVIDAD24Toolkit here: longhauler-advocacy.org/longcovidad24
There are *many* opportunities to participate, including urging @potus to discuss #LongCOVID during the #SOTU address, contacting various congressional committees and members of #congress, urging formal recognition of #LongCOVIDAwarenessDay, #lightitupteal events,
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As Long COVID Awareness Day [March 15th] approaches, join #C19LAP in raising #LongCOVIDAwareness and urging #Congress to #FundLongCOVID.
Check out our #LongCOVIDAD24Toolkit here: longhauler-advocacy.org/longcovidad24
There are *many* opportunities to participate, including urging @potus to discuss #LongCOVID during the #SOTU address, contacting various congressional committees and members of #congress, urging formal recognition of #LongCOVIDAwarenessDay, #lightitupteal events,
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Todays #HELPCommittee #HearingonLongCOVID begins at 10am, you can tune in here: https://www.help.senate.gov/hearings/addressing-long-covid-advancing-research-and-improving-patient-care
While today is big, it’s not the end. Listen intently & be prepared for follow ups!
#C19LAP has submitted a letter for the record which we hope will be heavily considered: https://drive.google.com/file/d/18lxT9VE0L4d3hL-pAZuIQsY0uwfivboe/view
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Todays #HELPCommittee #HearingonLongCOVID begins at 10am, you can tune in here: https://www.help.senate.gov/hearings/addressing-long-covid-advancing-research-and-improving-patient-care
While today is big, it’s not the end. Listen intently & be prepared for follow ups!
#C19LAP has submitted a letter for the record which we hope will be heavily considered: https://drive.google.com/file/d/18lxT9VE0L4d3hL-pAZuIQsY0uwfivboe/view
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This #GivingTuesday, help support #LongCOVID public awareness & education #billboard campaigns nationwide! #C19LAP will match up to a maximum of $2,500 in #donations towards these efforts from donations through the end of November.
Donate here: bit.ly/C19LAPBILLBOARDS
Packet & Social Media Kit: bit.ly/GTPacketandSMKit1/2
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This #GivingTuesday, help support #LongCOVID public awareness & education #billboard campaigns nationwide! #C19LAP will match up to a maximum of $2,500 in #donations towards these efforts from donations through the end of November.
Donate here: bit.ly/C19LAPBILLBOARDS
Packet & Social Media Kit: bit.ly/GTPacketandSMKit1/2
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If you could give the world a message about #longcovid in 1-2 sentences, what would you say?
#PSA #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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If you could give the world a message about #longcovid in 1-2 sentences, what would you say?
#PSA #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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What have you developed as a result of #LongCOVID?
#LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability
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What have you developed as a result of #LongCOVID?
#LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability
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The only way to #preventlongcovid is to prevent #Covid. How do you prevent infection?
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability
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The only way to #preventlongcovid is to prevent #Covid. How do you prevent infection?
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability
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What type of medical provider have you found most helpful in managing your #longCovid (if found).
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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What type of medical provider have you found most helpful in managing your #longCovid (if found).
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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#LongCOVID is a complex and systemic illness, requiring multi-specialty care and coordination. The underlying mechanism of #longCOVID has not yet been proven, but several theories have risen to the top of the list. Preventing #COVID -19 is the only way to prevent #LongCovid.
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability
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#LongCOVID is a complex and systemic illness, requiring multi-specialty care and coordination. The underlying mechanism of #longCOVID has not yet been proven, but several theories have risen to the top of the list. Preventing #COVID -19 is the only way to prevent #LongCovid.
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability