#autism-diagnosis — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #autism-diagnosis, aggregated by home.social.
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Explore how India is advancing in autism care with modern diagnostic tools, early intervention strategies, and evolving treatment options. Learn how families are navigating support systems and improving outcomes for children with ASD.
#AutismAwareness #AutismDiagnosis #AutismSupport #AutismInIndia
https://www.scientificworldinfo.com/2025/08/autism-in-india-modern-approaches-to-diagnosis-and-treatment.html -
Mixed feelings about figuring out you’re Autistic?
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Conflicted about being Autistic? #actuallyautistic #autismdiagnosis #autismawareness
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I can’t tell you how confirming and affirming this news report is for someone who has self-identified as autistic later in life
Everything Andrew says here describes my own experience and - even without a formal diagnosis - lends support to my conclusion about myself
“… for many older people receiving a diagnosis was a "lightbulb moment" and meant they could better understand their life experiences”
Exactly
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Does your Autism get mistaken for TQ+?
Autistic Not QueerSend me your experiences about having autism go unrecognised, misdiagnosed or ignored, by the professionals and civilians.
Do you feel autism has become second place to identity politics in autism spaces?
https://auntieautism.wordpress.com/2024/07/31/autistic-not-queer/
#GenderClinic #autism #AutismDiagnosis #Autistic #Diagnosis #Disability #gender #GenderCritical #GenderCriticalAutistics #GenderDysphoria #genderIdentity #GenderIdeology #identity #identityPolitics
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Tweet:Autism Awareness
Disclosing your #AutismDiagnosis to your manager can feel incredibly daunting, but preparing what you'll say can help you feel more confident. Autistic advocate Rachel Worsley has created a fantastic guide to disclosing a diagnosis.
https://t.co/s5sqSjQHYq -
Autism could be diagnosed with stool sample, scientists say | Medical research | The Guardian
https://www.theguardian.com/science/article/2024/jul/08/autism-could-be-diagnosed-with-stool-sample-microbes-research#Autism
#Diagnosis
#AutismDiagnosis
#GutMicrobes
#GutMicrobiome
#AutismGutMicrobiomeBiomarker
#Genetics
#StoolSamples
#Poo
#MetabolicPathways -
Mother takes autistic son back to Ukraine after facing three-year NHS wait
https://www.msn.com/en-gb/news/world/mother-takes-autistic-son-back-to-ukraine-after-facing-three-year-nhs-wait/ar-BB1hO9vL?cvid=6ebb002b29bb492389c132b4e3ebe5d2&ocid=winp2fptaskbarhover&ei=8#NHS
#Autism
#AutismAssessmemts
#AutismDiagnosis
#NHSWaitingLists
#Ukraine
#Children -
(I hope the embed works right. ETA: nope... it did not work right. :catangry: )
I was referred to Sheppard Pratt as a possible place for an autism evaluation.
I get there... and what do I see?
A child. :headache:
Yes, yes, children do need evaluation. I'm an adult, however.
Right off the bat, that does not look good. I do a search by specialty, and they do have ASD specialists, but they do not list any specific specialty for people who might be dealing with ASD as adults.
This feels like some sort of Hail Mary pass. (Not to be confused with a Hello Mary pass. The skit is at the end of this post.)
#ActuallyAutistic #AutismDiagnosis #SheppardPratt
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@Glim virtual hugs :ablobcatattentionreverse: remember to clarify the diagnosis with the doctor or consultant. I didn't, and only found out three months later that he'd already diagnosed me. He didn't specifically say he had and I thought there was some further test or assessment to come. My appointments are every three months, so that was a lot of extra anxiety! :blobcat_cwy:
Turns out he had diagnosed me, but I got no letter, report, nada! My autistic partner, got a 6 page report on his diagnosis, and a zoom call meeting if I recall correctly, which was very useful. I asked my consultant if I was due a letter or report, and he looked at me quizzically, and said "why do you need a report?" 🤦🏻♀️
#AdhdDiagnosis #AutismDiagnosis -
Why I Don’t Seek Formal Diagnosis
It is likely to end up being pointless in the USA.
Once in a while I run into someone who insists that I should get a formal diagnosis. If you live in the USA, this is often a futile, frustrating, and expensive endeavor. It is not worth it if you are unlikely to get accommodations.
I live in the USA. One distinguishing feature of this country is its appalling health care system. I have tons of stories about how world-class institutions have mistreated me time and again. I have tons of stories about how the billing system in the USA is maddening. Most of our costs are not due to the medical acts performed on us, but due to administrative overhead. This is stupid and ridiculous.
What I’m describing above is the general landscape. When it comes to being diagnosed with autism as an adult in the USA, the situation is even more stupid and ridiculous. I am not a rich man by any measure. I don’t have money to throw around with wild abandon. My insurance would not cover the cost of an adult diagnosis. These can easily run into the multiple thousands of dollars. Right off the bat, it looks bad.
Add to this that some practitioners hold onto outdated models of what autism should be. I know I don’t fit those outdated models. I don’t want to piss away money on someone who will tell me that I’m not autistic only due to the fact that I don’t fit those outdated models. Anybody who insists on a formal diagnosis should read Unmasking Autism by Devon Price.
You’ll learn that the prevalent model among autism specialists was very narrow in scope. I actually find that I, a man, have more in common with what is called “female autism” in the book. Note that this label is both outdated and bullshit, and the book does a good job explaining why it is both outdated and bullshit, but that’s the shortest way I know for now to describe myself. I do not fit the old obsolete model of what autism should be.
So I could find a doctor who holds onto such outdated models, and declares that I’m not autistic. What do I do then? Do I seek another diagnosis until I find one doctor who agrees that I am in fact autistic? This won’t look good to anyone who knows that I’m doing this, because this looks exactly like doctor shopping. I may have a good reason to seek another diagnosis, but people won’t know this. If I need more than one diagnosis, how much money will I throw at the problem before I get what I want?
Come to think of it, I’m glad that nobody accused me of doctor shopping when I had my cancer, because that thing was misdiagnosed a bunch of times, and I almost died from it. The first diagnoses I got were a series of eye diseases. Then I had my attack. Then I was diagnosed with a stroke. Then with multiple sclerosis. Then I sought a second opinion at Johns Hopkins. That doctor said that he did not know what I had, but that it was not multiple sclerosis. Multiple tests later and another doctor said I probably had cancer. Then we did the brain biopsy and found that I indeed have cancer.
In the case of cancer, the test was mostly a black and white thing: either I had it or not. Moreover, this test is the same for everyone suspected of having my cancer. It is much more complicated with autism. There’s a saying among autistic people:
When you’ve met one autistic person, you’ve met one autistic person.
The implication here is that autistic people manifest in the world in diverse ways. What goes for one autistic person, won’t go for another autistic person. It is a mistake to see one autistic person and assume that all other autistic people will present the same set of characteristics.
Then there is the fact that even if I come back with a positive diagnosis, it won’t mean much in my day-to-day life. I cannot see what kind of accommodations I’d benefit from. I don’t need to be isolated. I don’t like phone calls, but I still do them. I really don’t see how spending money on a formal diagnosis would benefit me.
I do talk to other autistic people every day, however, and maybe one day I’ll see a benefit. I don’t see one now. So I’m reevaluating my life, through the lens of autism, and finding that the signs were there, but nobody put two and two together.
#AutismDiagnosis #diagnosis #YourAutisticLife
https://www.yourautisticlife.com/2023/08/06/why-i-dont-seek-formal-diagnosis/
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This week I explore early motherloss, neurodivergent friendships and the magic of animation in animated classic The Land Before Time! 🦕 🦕🦕
You can read more here ⬇
https://autcasts.substack.com/p/see-with-your-heart
If you like what you read, please consider subscribing (for free), it's such a boost for my writing!
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #movies #films #landbeforetime #animation #donbluth
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🚨Neurodivergent reads spotlight!🚨My round up of neurodivergent reads finishes today with I Will Die on This Hill by Jules Edwards and Meghan Ashburn!
Read more from the review and recommendations for other neordivergent books below! ⬇
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis#outcasts #pride #pridemonth #books #advocacy #bookreview #unmaskingautism
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🚨Neurodivergent reads spotlight!🚨
Over the next couple of weeks I’ll be highlighting books featured in the recent neurodivergent reads round-up continuing with 'Sincerely Your Autistic Child'!
Read more from the review and recommendations for other neordivergent books here:
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #pride #pridemonth #books #writers #advocacy #bookreview
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🚨Neurodivergent reads spotlight!🚨
Over the next couple of weeks I’ll be highlighting books featured in the recent neurodivergent reads round-up continuing with 'Neuroqueer Heresies'!
Read more from the review and recommendations for other neordivergent books here:
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #pride #pridemonth #books #writers #advocacy #bookreview
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🚨Neurodivergent reads spotlight!🚨
Over the next couple of weeks I’ll be highlighting books featured in the recent neurodivergent reads round-up continuing with 'Unmasking Autism'!
Read more from the review and recommendations for other neordivergent books below!
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #pride #pridemonth #books #writers #advocacy #bookreview
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🚨Neurodivergent reads spotlight!🚨
Over the next couple of weeks I’ll be highlighting books featured in the recent neurodivergent reads round up-starting this week with 'We’re not Broken'!
Read more from the review and recommendations for other neordivergent books below!
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis#outcasts #pride #pridemonth #books #writers #advocacy #bookreview
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To wrap up NeuroPride month, I decided to do a short round-up of some of my favourite neurodivergent reads starting with my favourite advocacy books!
You can read the full round up here or at the link in my bio!
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
Happy Neuropride and Happy Reading!
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #pride #pridemonth #books #advocacy
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“Watching Some Like it Hot as a lost, little, neuroqueer seemed to be telling me that the rules were there to be broken!”
This week I explore transgression of gender and desire in Some Like it Hot, you can read more here ⬇
https://autcasts.substack.com/p/just-like-jello-on-springs
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #movies #films #somelikeithot #marilynmonroe #gender #desire #pride #pridemonth #queer #neuroqueer
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I published this, this morning, on my substack. I explain why I'm not seeking a formal diagnosis. This article is readable by everyone. You can subscribe for free if you want more.
Eventually I'll have paying-subscriber only articles, but we're not there yet.
https://yourautisticlife.substack.com/p/why-i-dont-seek-formal-diagnosis
#YourAutisticLife #autistic #autism #ActuallyAutistic #diagnosis #AutismDiagnosis