home.social
Sign in Create account

#aplasticanemia — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #aplasticanemia, aggregated by home.social.

  1. Jon P @[email protected] ·
    CW: Medical details, blood, hospital

    (Also: we didn't really know much about #PNH - paroxysmal nocturnal haemoglobinuria - nor how it related to our son's #AplasticAnemia. But it's a disease, that often coincides with #AplasticAnemia, which causes the membrane of red blood cells to fail, and then the heamoglobin"falls out" into the blood stream - called #haemolysis. This website was really useful: my-pnh.com/pnh-resources )

    #pnh #aplasticanemia #haemolysis
  2. Jon P @[email protected] ·

    #intro #introduction #introductions

    Pākehā, Tangata Tiriti, #NZGreen

    I live in beautiful #GoldenBay, where I #WFH as a #SoftwareEngineer. I am an #immigrant, thankful to be able to make Aotearoa my home.

    I am a #father of two great kids and a #husband of one incredible wife! They each out-shine me.

    I am heartbroken by the #ClimateCrisis. #Lefty #Green #NZGreen 💚. We need to go #harder and #faster!!

    My son has recently been diagnosed with #AplasticAnemia givealittle.co.nz/cause/aplast

    #intro #introduction #introductions #nzgreen #goldenbay #wfh
  3. Jon P @[email protected] ·

    #intro #introduction #introductions

    Pākehā, Tangata Tiriti, #NZGreen

    I live in beautiful #GoldenBay, where I #WFH as a #SoftwareEngineer. I am an #immigrant, thankful to be able to make Aotearoa my home.

    I am a #father of two great kids and a #husband of one incredible wife! They each out-shine me.

    I am heartbroken by the #ClimateCrisis. #Lefty #Green #NZGreen 💚. We need to go #harder and #faster!!

    My son has recently been diagnosed with #AplasticAnemia givealittle.co.nz/cause/aplast

    #intro #introduction #introductions #nzgreen #goldenbay #wfh
  4. Jon P @[email protected] ·

    #intro #introduction #introductions

    Pākehā, Tangata Tiriti, #NZGreen

    I live in beautiful #GoldenBay, where I #WFH as a #SoftwareEngineer. I am an #immigrant, thankful to be able to make Aotearoa my home.

    I am a #father of two great kids and a #husband of one incredible wife! They each out-shine me.

    I am heartbroken by the #ClimateCrisis. #Lefty #Green #NZGreen 💚. We need to go #harder and #faster!!

    My son has recently been diagnosed with #AplasticAnemia givealittle.co.nz/cause/aplast

    #aplasticanemia #faster #harder #green #lefty #climatecrisis