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#aplasticanemia — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #aplasticanemia, aggregated by home.social.

  1. COVID can affect any organ in the body, including the bone marrow It’s why #AplasticAnemia / #BoneMarrowFailure patients like Hillary and I need to take COVID seriously (TBC, Hillary didn’t get COVID and she and her family want to keep it that way)

    RE: https://bsky.app/profile/did:plc:ne6c7wj3gsizqhwsr5iyuhid/post/3loqfvzyerk2h

  2. COVID can affect any organ in the body, including the bone marrow It’s why #AplasticAnemia / #BoneMarrowFailure patients like Hillary and I need to take COVID seriously (TBC, Hillary didn’t get COVID and she and her family want to keep it that way)

    RE: https://bsky.app/profile/did:plc:ne6c7wj3gsizqhwsr5iyuhid/post/3loqfvzyerk2h

  3. Hillary is a fellow #AplasticAnemia pt who may be relapsing 😢 Never experienced what she’s going through - I’m stable but not in remission as my White Blood Cells & platelets are very low She’s hosting a stem cell drive to find a match for a bone marrow transplant Please like & repost 👇👇👇 🧵 1/2

  4. Hillary is a fellow #AplasticAnemia pt who may be relapsing 😢 Never experienced what she’s going through - I’m stable but not in remission as my White Blood Cells & platelets are very low She’s hosting a stem cell drive to find a match for a bone marrow transplant Please like & repost 👇👇👇 🧵 1/2

  5. Day 3 of the #ATG treatment under way. Side effects kicking in stronger. Swollen limbs, anxiousness, digestion - all to be expected though. No visits allowed right now. 2 more days of medication ahead. #aplasticanemia #autoimmune

  6. Day 2 of the #aplasticanemia treatment via #ATG. Spirits still high. Gotta wear gloves and mask when visiting now though. Got asked to bring pizza though. That’s always a good sign!

  7. #AplasticAnemia r-ATG treatment day 1. Anyone else going through it right now? Let’s kick butt!

  8. CW: Medical details, blood, hospital

    (Also: we didn't really know much about #PNH - paroxysmal nocturnal haemoglobinuria - nor how it related to our son's #AplasticAnemia. But it's a disease, that often coincides with #AplasticAnemia, which causes the membrane of red blood cells to fail, and then the heamoglobin"falls out" into the blood stream - called #haemolysis. This website was really useful: my-pnh.com/pnh-resources )

  9. CW: Medical details, blood, hospital

    (Also: we didn't really know much about #PNH - paroxysmal nocturnal haemoglobinuria - nor how it related to our son's #AplasticAnemia. But it's a disease, that often coincides with #AplasticAnemia, which causes the membrane of red blood cells to fail, and then the heamoglobin"falls out" into the blood stream - called #haemolysis. This website was really useful: my-pnh.com/pnh-resources )

  10. CW: Medical details, blood, hospital

    (Also: we didn't really know much about #PNH - paroxysmal nocturnal haemoglobinuria - nor how it related to our son's #AplasticAnemia. But it's a disease, that often coincides with #AplasticAnemia, which causes the membrane of red blood cells to fail, and then the heamoglobin"falls out" into the blood stream - called #haemolysis. This website was really useful: my-pnh.com/pnh-resources )

  11. CW: Medical details, blood, hospital

    (Also: we didn't really know much about #PNH - paroxysmal nocturnal haemoglobinuria - nor how it related to our son's #AplasticAnemia. But it's a disease, that often coincides with #AplasticAnemia, which causes the membrane of red blood cells to fail, and then the heamoglobin"falls out" into the blood stream - called #haemolysis. This website was really useful: my-pnh.com/pnh-resources )

  12. CW: Medical details, blood, hospital

    (Also: we didn't really know much about #PNH - paroxysmal nocturnal haemoglobinuria - nor how it related to our son's #AplasticAnemia. But it's a disease, that often coincides with #AplasticAnemia, which causes the membrane of red blood cells to fail, and then the heamoglobin"falls out" into the blood stream - called #haemolysis. This website was really useful: my-pnh.com/pnh-resources )

  13. Son has gone back to ED to have his bloods rechecked 👎👎 #AplasticAnemia

  14. Son has gone back to ED to have his bloods rechecked 👎👎 #AplasticAnemia

  15. Son has gone back to ED to have his bloods rechecked 👎👎 #AplasticAnemia

  16. Son has gone back to ED to have his bloods rechecked 👎👎 #AplasticAnemia

  17. #intro #introduction #introductions

    Pākehā, Tangata Tiriti, #NZGreen

    I live in beautiful #GoldenBay, where I #WFH as a #SoftwareEngineer. I am an #immigrant, thankful to be able to make Aotearoa my home.

    I am a #father of two great kids and a #husband of one incredible wife! They each out-shine me.

    I am heartbroken by the #ClimateCrisis. #Lefty #Green #NZGreen 💚. We need to go #harder and #faster!!

    My son has recently been diagnosed with #AplasticAnemia givealittle.co.nz/cause/aplast

  18. #intro #introduction #introductions

    Pākehā, Tangata Tiriti, #NZGreen

    I live in beautiful #GoldenBay, where I #WFH as a #SoftwareEngineer. I am an #immigrant, thankful to be able to make Aotearoa my home.

    I am a #father of two great kids and a #husband of one incredible wife! They each out-shine me.

    I am heartbroken by the #ClimateCrisis. #Lefty #Green #NZGreen 💚. We need to go #harder and #faster!!

    My son has recently been diagnosed with #AplasticAnemia givealittle.co.nz/cause/aplast

  19. #intro #introduction #introductions

    Pākehā, Tangata Tiriti, #NZGreen

    I live in beautiful #GoldenBay, where I #WFH as a #SoftwareEngineer. I am an #immigrant, thankful to be able to make Aotearoa my home.

    I am a #father of two great kids and a #husband of one incredible wife! They each out-shine me.

    I am heartbroken by the #ClimateCrisis. #Lefty #Green #NZGreen 💚. We need to go #harder and #faster!!

    My son has recently been diagnosed with #AplasticAnemia givealittle.co.nz/cause/aplast