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#albinism — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #albinism, aggregated by home.social.

  1. give some love to tiny birds with albinism in may mail club 🤍

    on ko-fi, pick your tier based on what you want the most - a print only, stickers only or everything - ko-fi.com/i/IM4M31YLZQZ 🌺

    #snailmail #handmade #mastoart #birds #birdart #birdsofmastodon #stickers #albinism #penpal

  2. give some love to tiny birds with albinism in may mail club 🤍

    on ko-fi, pick your tier based on what you want the most - a print only, stickers only or everything - ko-fi.com/i/IM4M31YLZQZ 🌺

    #snailmail #handmade #mastoart #birds #birdart #birdsofmastodon #stickers #albinism #penpal

  3. give some love to tiny birds with albinism in may mail club 🤍

    on ko-fi, pick your tier based on what you want the most - a print only, stickers only or everything - ko-fi.com/i/IM4M31YLZQZ 🌺

    #snailmail #handmade #mastoart #birds #birdart #birdsofmastodon #stickers #albinism #penpal

  4. give some love to tiny birds with albinism in may mail club 🤍

    on ko-fi, pick your tier based on what you want the most - a print only, stickers only or everything - ko-fi.com/i/IM4M31YLZQZ 🌺

    #snailmail #handmade #mastoart #birds #birdart #birdsofmastodon #stickers #albinism #penpal

  5. Carmarthenshire mum says Guide Dogs support was a ‘lifeline’ after baby son diagnosed with albinism

    Chloe Davies, who now lives in Neath Port Talbot, said she was “consumed by worry” after her son Louie was born just after Christmas 2024 with albinism, a rare genetic condition that can cause significant sight loss. Louie, now one year old, attends Guide Dogs Cymru’s My Time To Play sessions in Gowerton, which support young children with visual impairments and offer parents a vital support network.

    A difficult start and months of uncertainty

    Chloe said she realised something was wrong almost immediately after Louie’s birth, when midwives raised concerns about his unusually white hair and the possibility of albinism. After a stressful delivery and a week in hospital, she returned home feeling overwhelmed.

    “I remember feeling completely consumed by worry for his future, and a huge sense of guilt,” she said. “It was like I was failing him, in that I’d somehow given my baby a difficult life before he’d even got started.”

    Louie shortly after birth. His family say the weeks that followed were filled with uncertainty until they were connected with Guide Dogs Cymru. (Image: Guide Dogs Cymru)

    In the months that followed, Chloe spent hours researching the condition, trying to understand how best to support her son. But attending baby groups left her feeling isolated.

    “Seeing younger babies engaging more, looking around and reacting to things was incredibly hard. I’d often drive home in tears.”

    Louie was later diagnosed with nystagmus, a condition that causes involuntary eye movements. Chloe said she struggled to access support until she finally reached an Eye Care Liaison Officer — and within 24 hours, Guide Dogs Cymru stepped in.

    ‘An absolute lifeline’

    Guide Dogs arranged a home visit, linked the family with a Qualified Teacher of the Visually Impaired, and offered counselling support.

    “They were an absolute lifeline to our family,” Chloe said. “It was a huge relief to finally have the right support reaching out to us.”

    Louie now attends fortnightly My Time To Play sessions in Gowerton, where children under four with visual impairments develop key skills through sensory play. The sessions also give parents a chance to connect with others facing similar challenges.

    “The sessions have been more rewarding than I could ever have imagined,” Chloe said. “They’ve opened up an entire community I didn’t even know existed.”

    Louie taking part in a My Time To Play session in Gowerton, where children with visual impairments build confidence through sensory play.Louie at home in Neath Port Talbot. His family say he is thriving thanks to early support from Guide Dogs Cymru.

    A milestone moment at the wedding

    Chloe married her partner Andrew on 31 January at Pencoed House Estate, with Louie by her side as their “unofficial best man”.

    “It will be a very special moment to have Louie with us at our wedding,” she said. “After everything we’ve been through together, it only feels right that he’s up there with us.”

    Chloe with her son Louie on her wedding day, where he proudly took on the role of their “unofficial best man”.
    (Image: Guide Dogs Cymru)

    She added that Louie is thriving: standing confidently, exploring the house, and “always with the biggest grin”.

    “Louie is happy, curious and thriving, and so am I. That’s something I never thought I’d be able to say during those early months.”

    Guide Dogs Cymru is encouraging families of visually impaired children to get in touch to access support through its Children and Young Person services.

    More information is available at: guidedogs.org.uk/getting-support

    #Albinism #Carmarthenshire #Gowerton #GuideDogsCymru #NeathPortTalbot #nystagmus #visuallyImpared
  6. Thando Hopa, model from Johannesburg

    People living with albinism still face tremendous stigmatization, persecution and even murder in many African countries, including South Africa, due to traditional beliefs.

    didiermary.fr/thando-hopa-mode

    #Africa #Albinism #Photography #SouthAfrica

  7. Have you ever seen a white Common Raven (Corvus corax)? No, this isn’t a new species… or a ghost. 👻This Raven’s striking pale plumage is the result of the genetic mutations leucism or albinism. Leucism is a reduction in all types of pigmentation, including melanin. Albinism is the inability to produce or distribute melanin.

    Photo: cedarleaf, CC BY-NC 4.0, iNaturalist

    via amnhnyc

    #photography
    #birds
    #leucism
    #albinism
    #ravens

  8. .

    Procedimientos Especiales de la ONU
    @UN_SPExperts

    Necesitamos urgentemente una acción específica para proteger y promover los derechos de los niños con #albinism que continúan enfrentándose a la discriminación, la violencia y la exclusión sistémicas -
    Experto de la ONU @UnAlbinism pide a los Estados @_AfricanUnionque integren la Nota Orientadora para informar sobre los niños con albinismo

    @BahaiBIC #Bahai #Mexicali #FelizLunes #news

    .

  9. Albino Bell’s false brook salamander (Isthmura bellii)

    This false brook salamander is lacking its iconic dark black colour and fiery orange spots. This curiously pale albino salamander was found a few years ago by a local teacher on the pavement in Pinal de Amoles, in the WLT-funded Sierra Gorda Biosphere Reserve, #Mexico.

    It's the first known record of #albinism in tropical #salamanders.

    Photograph: Roberto Pedraza Ruiz/Grupo Ecologico Sierra Gorda (GESG)

    @photography
    #photography

  10. Being born with albinism shouldn’t be a death sentence. 💔🌍 Across the world, people with albinism face discrimination, violence, and even deadly attacks due to harmful myths. Many are denied education, healthcare, and basic rights. ⚖️✊🏻 #HumanRights #Albinism #Equality

  11. Super rare albino raccoon seen in College Station 🦝

    A rare, all-white version of a well-known dumpster diver was recently found in Texas. An albino raccoon, which could easily be mistaken for a cat, was spotted rummaging through garbage inside an unnamed car dealership's dumpster in College Station. "You have better odds of being struck by lightning than seeing an albino raccoon."

    chron.com/life/wildlife/articl

    #Albinism #Raccoon #WhiteRaccoon @Chron #Texas #DumpsterDiving

  12. Cotonou, #Benin

    #Children with #albinism visit the headquarters of the Albi International Association. The albino population face heightened health risks as west Africa grapples with extreme heatwaves

    Photograph: Charles Placide Tossou/Reuters

    @photography

  13. Hair Color in Raven of the Inner Palace

    Examining the significance of Liu Shouxe’s naturally silver hair in the Raven of the Inner Palace anime series.

    https://thenewleafjournal.com/hair-color-in-raven-of-the-inner-palace/

    #2022Anime #2023Anime #Albinism #AnimeHairColor #RavenOfTheInnerPalace #TheApothecaryDiaries

  14. I saw this rare albinistic (correction: leucistic!) sparrow today.

    Unfortunately, I didn't have a proper camera with me, and I wasn't able to get a good shot with my phone either.

    #nature #wildlife #birds #albinism #leucism
    (photo: @kernpanik | license: public domain / CC-0)

  15. George and Willie Muse aka Eko and Iko the ambassadors from Mars with showman Al G. Barnes
    ~ photographer unidentified

    #Carnivalia #VintagePhotography #teratology #Albinism

  16. George and Willie Muse aka Eko and Iko the ambassadors from Mars with showman Al G. Barnes
    ~ photographer unidentified

    #Carnivalia #VintagePhotography #teratology #Albinism

  17. George and Willie Muse aka Eko and Iko the ambassadors from Mars with showman Al G. Barnes
    ~ photographer unidentified

    #Carnivalia #VintagePhotography #teratology #Albinism

  18. George and Willie Muse aka Eko and Iko the ambassadors from Mars with showman Al G. Barnes
    ~ photographer unidentified

    #Carnivalia #VintagePhotography #teratology #Albinism

  19. George and Willie Muse aka Eko and Iko the ambassadors from Mars with showman Al G. Barnes
    ~ photographer unidentified

    #Carnivalia #VintagePhotography #teratology #Albinism

  20. We have just filed in @biorxivpreprint our latest collaborative research on the phenotyping of a mouse model of FHONDA, a rare syndrome with mutations in the Slc38a8 gene, associated with visual abnormalities as in #albinism but without loss of pigmentation.🐭 Scientific collaboration with labs of Nicolás Cuenca (UA), Alexandra Rebsam (Institut de la Vision, Paris), Davide Seruggia (CCRI, Vienna), Almudena Fernandez et al
    biorxiv.org/cgi/content/short/

  21. Happy International #Albinism Awareness Day!

    I still remember the surprise seeing my daughter’s white hair the day she was born, and concern about what it would mean for her to have photosensitivity, low vision, and just being visually different, but we’re lucky to live in a time and place where we can support her needs and celebrate her.

  22. Today is the first time I’ve ever seen an albino Canada gosling. I wanted a better picture, but the geese didn’t come anywhere near the shore. #CanadaGoose #Albino #Albinism #BabyAnimals