#adrenaldisease — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #adrenaldisease, aggregated by home.social.
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#Australia is running dry of hydrocortisone.
I have to #crowdfund medication now!
If you’ve got any unused #hydrocortisone at home or ask your family/friends whoever I could use it!!!
This is serious, please ask anyone who may have some spare.There is no end date to this drought and nobody has it in stock.
What is wrong with the #Australian government? It’s an essential medicine. There should be a stockpile.
Help please 🙏
#Auspol
#Spoonie #Neisvoid #ChronicIllness #pwME #MECFS #LongCovid #AdrenalInsufficiency #Steroids #AdrenalDisease #AddisonsDisease -
#Australia is running dry of hydrocortisone.
I have to #crowdfund #medication now!
If you’ve got any unused #hydrocortisone at home or ask your family/friends whoever, I can use it!!!
There is no end date to this drought and nobody has it in stock.
Help please 🙏
#Spoonie #Neisvoid #ChronicIllness #pwME #MECFS #LongCovid #AdrenalInsufficiency #Steroids #AdrenalDisease #AddisonDisease
@mecfs
@chronicillness
@[email protected]
@[email protected] -
I’m severely #disabled by #ChronicIllness.
I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off by #LongCovid. Hi #NEISvoid
Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking pain patients?)
Need help with #housing #NDIS #GP #carer/ #caregiver & navigating the system. LMK!
1/
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I’m severely #disabled by #ChronicIllness.
I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off by #LongCovid. Hi #NEISvoid
Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking pain patients?)
Need help with #housing #NDIS #GP #carer/ #caregiver & navigating the system. LMK!
1/
-
I’m severely #disabled by #ChronicIllness.
I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off by #LongCovid. Hi #NEISvoid
Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking pain patients?)
Need help with #housing #NDIS #GP #carer/ #caregiver & navigating the system. LMK!
1/
-
I’m severely #disabled by #ChronicIllness.
I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off by #LongCovid. Hi #NEISvoid
Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking pain patients?)
Need help with #housing #NDIS #GP #carer/ #caregiver & navigating the system. LMK!
1/
-
I’m severely #disabled by #ChronicIllness.
I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off by #LongCovid. Hi #NEISvoid
Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking pain patients?)
Need help with #housing #NDIS #GP #carer/ #caregiver & navigating the system. LMK!
1/
-
From my introduction.
My #disabilities/ #ChronicIllness include:
#SevereME
Which looks like this: (not me but my state of illness https://aus.social/@halcionandon/109372707273081815) #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.I’m trying to escape #abuse and #neglect.
https://www.twitter.com/Halcionandon for backstory. -
From my introduction.
My #disabilities/ #ChronicIllness include:
#SevereME
Which looks like this: (not me but my state of illness https://aus.social/@halcionandon/109372707273081815) #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.I’m trying to escape #abuse and #neglect.
https://www.twitter.com/Halcionandon for backstory. -
From my introduction.
My #disabilities/ #ChronicIllness include:
#SevereME
Which looks like this: (not me but my state of illness https://aus.social/@halcionandon/109372707273081815) #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.I’m trying to escape #abuse and #neglect.
https://www.twitter.com/Halcionandon for backstory. -
From my introduction.
My #disabilities/ #ChronicIllness include:
#SevereME
Which looks like this: (not me but my state of illness https://aus.social/@halcionandon/109372707273081815) #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.I’m trying to escape #abuse and #neglect.
https://www.twitter.com/Halcionandon for backstory. -
From my introduction.
My #disabilities/ #ChronicIllness include:
#SevereME
Which looks like this: (not me but my state of illness https://aus.social/@halcionandon/109372707273081815) #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.I’m trying to escape #abuse and #neglect.
https://www.twitter.com/Halcionandon for backstory. -
Am at a loss to where to ask for help to find a #doctor #Physician #GP #GeneralPractitioner who wants to help a patient with complex needs. Is there anywhere on #Mastodon to ask? I’ve been to FB *shudder* many times and nothing. Even the super secret groups. If you’re an existing patient it’s ok but NEW patients are turned away. Even more #doctors are retiring now it’s the New Year. What can I do?
Yes I’ve been to NIIM.
Yes I’ve contacted Emerge, they no longer have a recommended dr list.
If you do Video Telehealth, anywhere in #Australia could work. Possibly overseas.
I’m in #Melbourne (the suburbs, not inner city).#Boost please.
@disabilityjustice @chronicillness @auscovid19
@MECFS
#MedMastodon #PwME #MECFS #LongCovid #AdrenalDisease #Hypothyroidism #HyperParathyroidism #ChronicPain #ChronicIllness #Migraine #Disability #POTS #dysautonomia #pwME #NEISVoid -
Am at a loss to where to ask for help to find a #doctor #Physician #GP #GeneralPractitioner who wants to help a patient with complex needs. Is there anywhere on #Mastodon to ask? I’ve been to FB *shudder* many times and nothing. Even the super secret groups. If you’re an existing patient it’s ok but NEW patients are turned away. Even more #doctors are retiring now it’s the New Year. What can I do?
Yes I’ve been to NIIM.
Yes I’ve contacted Emerge, they no longer have a recommended dr list.
If you do Video Telehealth, anywhere in #Australia could work. Possibly overseas.
I’m in #Melbourne (the suburbs, not inner city).#Boost please.
@disabilityjustice @chronicillness @auscovid19
@MECFS
#MedMastodon #PwME #MECFS #LongCovid #AdrenalDisease #Hypothyroidism #HyperParathyroidism #ChronicPain #ChronicIllness #Migraine #Disability #POTS #dysautonomia #pwME #NEISVoid -
Am at a loss to where to ask for help to find a #doctor #GP #GeneralPractitioner who wants to help a patient with complex needs. Is there anywhere on Mastodon? I’ve been to FB *shudder* many times and nothing. If you’re an existing patient it’s ok but NEW patients are stuffed. Even more #doctors are retiring now it’s the New Year. What can I do?
Yes I’ve been to NIIM.@auscovid19
#MedMastodon #PwME #MECFS #LongCovid #AdrenalDisease #Hypothyroidism #HyperParathyroidism #ChronicPain #ChronicIllness #Migraine #Disability #POTS #dysautonomia -
Am at a loss to where to ask for help to find a #doctor #Physician #GP #GeneralPractitioner who wants to help a patient with complex needs. Is there anywhere on #Mastodon to ask? I’ve been to FB *shudder* many times and nothing. Even the super secret groups. If you’re an existing patient it’s ok but NEW patients are turned away. Even more #doctors are retiring now it’s the New Year. What can I do?
Yes I’ve been to NIIM.
Yes I’ve contacted Emerge, they no longer have a recommended dr list.
If you do Video Telehealth, anywhere in #Australia could work. Possibly overseas.
I’m in #Melbourne (the suburbs, not inner city).#Boost please.
@disabilityjustice @chronicillness @auscovid19
@MECFS
#MedMastodon #PwME #MECFS #LongCovid #AdrenalDisease #Hypothyroidism #HyperParathyroidism #ChronicPain #ChronicIllness #Migraine #Disability #POTS #dysautonomia #pwME #NEISVoid -
Am at a loss to where to ask for help to find a #doctor #GP #GeneralPractitioner who wants to help a patient with complex needs. Is there anywhere on Mastodon? I’ve been to FB *shudder* many times and nothing. If you’re an existing patient it’s ok but NEW patients are stuffed. Even more #doctors are retiring now it’s the New Year. What can I do?
Yes I’ve been to NIIM.@auscovid19
#MedMastodon #PwME #MECFS #LongCovid #AdrenalDisease #Hypothyroidism #HyperParathyroidism #ChronicPain #ChronicIllness #Migraine #Disability #POTS #dysautonomia -
I’m struggling to stay afloat.
HELP PLEASE
I’d be grateful if you could #boost this, give if you can, or help in a practical way say if you know a good #GP taking patients in #Melbourne #Australia or an #advocate, #carer or #housing.Any contribution is VERY appreciated!
WHY
I have multiple extremely disabling & worsening health conditions (including #severeME, #AdrenalDisease, #Migraines, #ChronicPain, #LongCovid) while trying to ESCAPE an #ABUSIVE ENVIRONMENT, find affordable #housing, a #carer/#caregiver, #healthcare, appeal #abusive #CaseManagement with an #advocate, get #NDIS, & the list goes on. It’ll be a long, difficult, expensive process but I’m determined to get out & live my life.Unsure how to itemise this!
Backstory on birdsite @halcionandon
DONATE
#BuyMeACoffee has platform & Visa fees (for me).
#Australians can use #Beem free (both sides)International:
https://buymeacoffee.com/halcionandonAustralians: (Beem or Buy Me A Coffee).
https://www.beem.com.auI’m @halcionandon on Beem.
Sign up, attach card, send $ FREE.
Why Buy Me A Coffee? Meant to use it for #writing but my #health & situation deteriorated so I can’t write anymore. 🙁
Never done crowdfunding before & feel weird asking for money.
Thank you
#MutualAid #DisabilityCrowdfund #chronicillness #NEISvoid #pwme #mecfs #AbuseSurvivor
TL; DR
Crowdfunding to escape abuse.DONATE
International: https://buymeacoffee.com/halcionandon
Australia: https://www.beem.com.au
User @halcionandon -
#Introduction time.
This isn’t great because I’m ill but I’d like to find my people here. Edit: I like abled people too! :)I’m #Disabled by #ChronicIllness which is pretty bad at the moment. I have
#SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid. Hello #NEISvoid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.
Oh, also trying to escape #abuse. Didn’t want to say that because I’ll wear it forever but hi.
Normally interests include #Auspol #healthcare #science #MedicalResearch #MMT #CulturalStudies #philosophy #film #FilmPhotography #music #writing & remembering what I’m interested in… Being sick & in survival mode ruins your leisure time.
https://www.twitter.com/Halcionandon for backstory.
It’s nice to be here.
Hope this place stays cosy.(More tags: #MECFS #PwME #PwLC #MyalgicE #MyalgicEncephalomyelitis #Spoonie)
-
#Introduction time.
This isn’t great because I’m ill but I’d like to find my people here. Edit: I like abled people too! :)I’m #Disabled by #ChronicIllness which is pretty bad at the moment. I have
#SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid. Hello #NEISvoid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.
Oh, also trying to escape #abuse. Didn’t want to say that because I’ll wear it forever but hi.
Normally interests include #Auspol #healthcare #science #MedicalResearch #MMT #CulturalStudies #philosophy #film #FilmPhotography #music #writing & remembering what I’m interested in… Being sick & in survival mode ruins your leisure time.
https://www.twitter.com/Halcionandon for backstory.
It’s nice to be here.
Hope this place stays cosy.(More tags: #MECFS #PwME #PwLC #MyalgicE #MyalgicEncephalomyelitis #Spoonie)
-
#Introduction time.
This isn’t great because I’m ill but I’d like to find my people here. Edit: I like abled people too! :)I’m #Disabled by #ChronicIllness which is pretty bad at the moment. I have
#SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid. Hello #NEISvoid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.
Oh, also trying to escape #abuse. Didn’t want to say that because I’ll wear it forever but hi.
Normally interests include #Auspol #healthcare #science #MedicalResearch #MMT #CulturalStudies #philosophy #film #FilmPhotography #music #writing & remembering what I’m interested in… Being sick & in survival mode ruins your leisure time.
https://www.twitter.com/Halcionandon for backstory.
It’s nice to be here.
Hope this place stays cosy.(More tags: #MECFS #PwME #PwLC #MyalgicE #MyalgicEncephalomyelitis #Spoonie)
-
#Introduction time.
This isn’t great because I’m ill but I’d like to find my people here. Edit: I like abled people too! :)I’m #Disabled by #ChronicIllness which is pretty bad at the moment. I have
#SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid. Hello #NEISvoid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.
Oh, also trying to escape #abuse. Didn’t want to say that because I’ll wear it forever but hi.
Normally interests include #Auspol #healthcare #science #MedicalResearch #MMT #CulturalStudies #philosophy #film #FilmPhotography #music #writing & remembering what I’m interested in… Being sick & in survival mode ruins your leisure time.
https://www.twitter.com/Halcionandon for backstory.
It’s nice to be here.
Hope this place stays cosy.(More tags: #MECFS #PwME #PwLC #MyalgicE #MyalgicEncephalomyelitis #Spoonie)
-
#Introduction time.
This isn’t great because I’m ill but I’d like to find my people here. Edit: I like abled people too! :)I’m #Disabled by #ChronicIllness which is pretty bad at the moment. I have
#SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid. Hello #NEISvoid.My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.
Oh, also trying to escape #abuse. Didn’t want to say that because I’ll wear it forever but hi.
Normally interests include #Auspol #healthcare #science #MedicalResearch #MMT #CulturalStudies #philosophy #film #FilmPhotography #music #writing & remembering what I’m interested in… Being sick & in survival mode ruins your leisure time.
https://www.twitter.com/Halcionandon for backstory.
It’s nice to be here.
Hope this place stays cosy.(More tags: #MECFS #PwME #PwLC #MyalgicE #MyalgicEncephalomyelitis #Spoonie)