#achd — Public Fediverse posts

It continues to amaze me that I have this thing in my chest. It's a stent keeping my aorta nice and open; I have congenital heart defects, and the stent is helping out with that. (X-ray from Monday: it's been a week...).

#xray #medical #stent #achd #heartDefects

Hook me up to whatever tubes are necessary and put my iPhone library on shuffle and let me ride it out until you get sick of paying for me. #LivingWill #achd

From: @grandrapidsnews
https://mastodon.social/@grandrapidsnews/112366674759693582

Back at Barts for an echo and check-up. It is such a lovely hospital. I always make sure to spend a few minutes reflecting in the chapel before my appointment. #achd

That's not good is it?
#icd #ACHD

A lot to be thankful for today. But particularly thankful for people like Derelyn Love, one of many patients who accepted the risk of pioneering surgery so that people like me could also be treated... #nhs75 #achd
https://www.theguardian.com/society/2023/jul/05/i-would-not-want-to-be-in-anyone-elses-hands-six-people-on-how-the-nhs-saved-their-lives

I'm sure I'm not the first person this has happened too, but I've been booked for a telephone #appointment with my #cardiology consultant, at exactly the same time I am in the same #hospital for an ECHO scan... #NHS #ACHD #bartsHealth

Looking forward to reading this book by @lizamorton that arrived in the post at the weekend. #achd #CHD

Why is childhood medical #trauma being left out of conversations about adverse childhood experiences (#ACES)? Addressing Childhood Medical Trauma, my latest blog for Psychology Today

https://www.psychologytoday.com/gb/blog/psychologically-informed-medicine/202212/addressing-childhood-medical-trauma

#psychology #medical #traumainformed #resilience #CHD #ACHD

Our book ‘Healing Hearts & Minds: A holistic approach to coping well with congenital heart disease’ is now available to download on kindle

https://www.amazon.co.uk/Healing-Hearts-Minds-Holistic-Congenital/dp/0197657281/ref=mp_s_a_1_1?crid=33Q18JNZHUPAV&keywords=healing+hearts+and+minds+morton&qid=1671389133&sprefix=%2Caps%2C86&sr=8-1

#CardioTwitter #CHD #chronicillness #ACHD #Psychology

📕💖📕💖📕💖📕💖📕💖📕

Now 14 weeks since open heart surgery and some wins with my rehab this week - my first little (very short, slow, supervised) run on a treadmill on Weds, and today a 5.3km walk including beach, slow hill climb, cliff top views, and ice cream. I’m pretty happy :) #ACHD

40 years ago today I was being taken into theatre for open-heart surgery at Great Ormond Street Hospital.

The surgery took several hours and I was in hospital for just over a month.

I happened to be nearby a few weeks ago so got a snap of me outside.💔#chd #achd

Realised I (re)opened an Mastodon account without doing the obligatory #introduction.

I'm Olly, I work for NHS England in the public participation team with a background in digital / media / charity / civic activism.

Until recently I was a non-exec for Democracy Club.

I'm a husband and dad to two small people.

I am an adult with congenital heart disease #achd and have an #icd fitted.