#vascern — Public Fediverse posts

An exciting first day at the #iDR26 meeting in Brussels on drug #repurposing.

Academics, company representatives, funders, policy makers, patients and others, all gathered to discuss how to help #repurpose #medicines for the many #diseases still with unmet medical needs, including #vascular #anomalies.

#IDR26 #VASCERN #VASCAPA #RADIORG #HEVAS #CMTC #Eurordis #WELRI #de Duve Institute #uclouvain #FNRS #ISSVA #REVAMP #Leducq

Nos recherches sur le lymphœdème et la découverte d'un nouveau gène TIE1 muté chez certains patients atteints de cette maladie viennent d'être vulgarisées par La Loupe, un média belge qui rend la science accessible à tous. L'article est à lire ici : https://la-loupe.be/fr/articles/tie1-lymphedeme-vikkula #lymphedema #lymphe #hevas #VASCERN #deDuveInstitute #VASCAPA #lymphödem #uclouvain #Welbio #FNRS #uclouvain

Fabian’s great work on Volumetric perfusion fraction change in MR angiography for monitoring sclerotherapy-related changes in peripheral venous malformations is now published. Elsevier gives access 50 days' free access to the article, until June 13, 2026. The link to the final version of the article on ScienceDirect, which you are welcome to read or download. No sign up.https://authors.elsevier.com/c/1m~tx,GNpk4tED
#VASCERN #VASCAPA #RADIORG #HEVAS #CMTC #Eurordis #Welbio #deDuveInstitute #uclouvain #FNRS #ISSVA

What a beautiful, heartfelt day of remembrance in honour of Dr. John B. Mulliken. Colleagues, patients, and friends came together to share their treasured memories of our dearly loved JBM. In tribute, Harvard Medical School lowered its flag at the Medical Quad to half-mast, a touching gesture reflecting the profound impact he had on so many lives.
#VASCERN #VASCAPA #RADIORG #HEVAS #CMTC #Eurordis #Welbio #de Duve Institute #uclouvain #FNRS

What a great #ESVM (#European Society of Vascular Medicine) and #VASCERN session in Lausanne. Interesting discussions with colleagues including Guillaume Jondeau, Isabelle Quéré, and Tristan Mirault, and Julie Hallac and Roberta Armignacco from the coordination team. And for networking, a visit to the #Olympic Museum. Looking forward to follow-up all the action points. VASCAPA.asbl #hevas Lex Heijden Cmtc-ovm #radiorg #EURORDIS de Duve Institute #uclouvain #ISSVA

An interesting session on #vascular anomalies at the Society of #Interventional #radiology (#SIR) meeting in Toronto. Met new enthusiastic younger colleagues! #VASCAPA #CMTC #HEVAS #VASCERN

Our latest review, 'Current and Emerging Pharmacotherapies for Vascular Malformations', is online. First 50 can download the PDF for free via the link. Thank you, Emmanuel Seront, for putting it together! #VASCAPA #HEVAS #CMTC #VASCERN #RADIOORG #EURORDIS #EVBO #WELRI
https://www.tandfonline.com/eprint/QGPRVVUI8GUT6FQEJFQI/full?target=10.1080/17512433.2026.2641807

What a great #VASCERN-VASCA meeting. Thank you Roberta, Thi-Mai et Treasure for the organisation. And all those having presented the steps made forward in the various task forces. Looking forward to the follow-up of all the action points. #vascapa #hevas #cmtc #vascern #radiorg #eurordis

https://www.facebook.com/100069557370933/videos/pcb.1250340800627821/27316982817890243

It was a great annual #Crick #Rare Disease Conference 2026. Learned so much new, made novel contacts, and of course, discussed #precision #therapies for #vascular, and more specifically, #lymphatic anomalies. Organised by @Veronica K. #VASCERN #vascapa #hevas #eurordis #CMTC

The VAS European Book on Angiology/Vascular Medicine (ISBN: 978-3-031-82232-2) is now published accessible in print and online ! #VASCAPA #HEVAS #CMTC #VASCERN #EURORDIS

The Journal of Invest Dermat February cover video https://lnkd.in/eUSWXYFN features #MRI of lower limbs showing #hyperintense slow-flowing blood in dilated veins of the subcutaneous tissues.
Somatic loss-of-function #PIK3R1 and activating non-hotspot PIK3CA mutations associated with Capillary Malformation with #DilatedVeins (CMDV)
https://lnkd.in/e2UAUKJr

A great collaboration with @SalimSeyfried from our #VACure ITN and #Revamp #Leducq networks. Well done Martina. #VASCAPA #HEVAS #CMTC #VASCERN

Congratulations, Emmanuel, on this online publication showing how #sirolimus treatment can be adapted to patients' needs. Most #patients with #slow-#flow #vascular #malformations benefit to some extent, and many experience significant #symptom reduction even with #intermittent dosing. This is a big step forward in the #multimodal management of vascular malformations. #VASCERN #VASCAPA #CMTC #HEVAS #WELRI #ISSVA #EVDays #deduveinstitute #Leducq #Radiorg #Eurordis #Lymph

https://link.springer.com/article/10.1186/s13023-025-04151-y

The virtual #European #Angiology Days (EADays) 2025 are just over. Great presentations and discussions. And easy access - no travel !! Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO

Congratulations to all three young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days (EADays) 2025 event: Dr #Annegret Holm , Dr Jennilyn Mangulabnan, and Dr Julie Anne Miralles-Amora. Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO

Congratulations to all three young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days (EADays) 2025 event: Dr #Annegret Holm , Dr Jennilyn Mangulabnan, and Dr Julie Anne Miralles-Amora. Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO

Congratulations to all three young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days (EADays) 2025 event: Dr #Annegret Holm , Dr Jennilyn Mangulabnan, and Dr Julie Anne Miralles-Amora. Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO

Congratulations to all three young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days (EADays) 2025 event: Dr #Annegret Holm , Dr Jennilyn Mangulabnan, and Dr Julie Anne Miralles-Amora. Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO

So great 2 days at the #French Society of #Lymphology 2025 in Toulouse on lymphatic malformations, lymphoedema and lipedema. Illustrative presentations, pertinent questions and collegial discussions. The field is moving along faster than ever. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #Radiorg #lymph #LM #ISSVA

What a great session at the #BRAIN 2025 in London on fast-flow vascular malformations in the brain. Intense discussions and data sharing. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #Radiorg

Learning of the complex regulatory affairs in the rare disease field at the World Orphan Drug Congress in Amsterdam. Great to see #EMA discussing with clinicians, patients and the industry. But a lot to be done to accelerate development of drugs for orphan diseases. #vascapa #welbio #hevas #cmtc #eshg #vascern #esl

What a great International Society of Lymphology Congress in Antalya. Thanks for great organisation Pinar. Some many new ideas and initiated collaborations. See you all in 2027 on Goa, India. #VASCERN #VASCAPA #hevas #cmtc #lymph

The great #ISSVA debates meeting 2025 meeting has come to an end. Nothing compares to F2F discussions and networking. Looking forward to the ISSVA World Congress 2026 in #Philadelphia #vascapa #hevas #CMTC #VASCERN #LE&RN #ESL #ISL #vascular #lymphatic #syndrome #hemangioma #theranostic #repurposing

Great First European #Lymphatic Forum in Toulouse by #theralymph. Active participation by our group as well. Looking forward to the second edition in 2027 in #Budapest. #vascern #lymph #hevas #cmtc #le&rn #ESL #ISL #welbio

#VASCERN participating in discussions on lymphatic diseases at the biannual Polish Lymphatic Meeting in Wroclaw. VASCERN has been referred to by several Polish speakers as well. 🤩 #vascapa #hevas #lymph #cmtc

The Great #VAC2025 Meeting is now over. Fantastic presentations with lively discussions from basic science to clinical applications via preclinical models. Lots of interaction and new contacts made during breaks and social events. Patient testimonials helped define new research goals. Congratulations to the poster award winners: Antonio Queiro Palou, Maya Alvared-Harmon, Apeksha Shapeti and Favour Onyeogaziri ! See you in #Barcelona in 2027 ! #VASCERN #ISSVA #ESHG #vascapa #HEVAS #cmtc