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19 results for “ZebraOnWheels”

  1. CW: COVID, again. How screwed am I?

    @ZebraOnWheels There's a degree of separation in there with , so even without masks, there's no guarantee of "screwed". Masks lower the odds, though the degree depends on the type of . If you're really worried, get yourself a mask, such as a , and fit test it (you only need a portable and a bottle of , or even )

  2. Getting my very first cpap tomorrow for sleep apnea and any tips from users are welcome!!

    (Yeah I'm kinda scared)

    They're coming to my house tomorrow to try masks and all... what do I need to do, ask, try, etc?

    #NEISvoid #EDS #SleepApnea #cpap #cpapmachine

  3. Christmas is early this year 🤭 I guess I said too often how I love my (fake brand) #Tangle. Now I have real ones. Oops. ❤️

    Ps, the real deal is worth the few extra moneys. They feel so much nicer and move much smoother! 😌

    Gonna gift my brother one for Christmas too, I bet he loves the original one more as well!

    #Autism #ADHD #ADD #ActuallyAutistic #Stimming #StimToy #FidgetToy

  4. / Picture of rainbow wheels /

    Going to work tomorrow with the new #wheelchair, looking forward to it, curious if all will go as expected.

    Should I add the rainbow colors to the wheels like I did with the old #Ottobock?

    :kirby_idle:

    #WheelchairLife #EDSlife #QuickieArgon #Rainbow #RainbowWheels

  5. I'm crawling in my skin thanks to being stabbed with tingling and pain, pins and needles, and getting the worst kind of itch under my feet I can't seem to scratch. There is no external reason for these sensations. My skin is fine.

    Can it be Small Fiber Neuropathy?

    Does anyone know if it relates to #EhlersDanlosSyndrome #Dysautonomia #POTS (and or any medications like Lisinopril, Atenolol) #Medstodon #Medical

    medlineplus.gov/genetics/condi

  6. 2nd #introduction!

    About me: 90's girl, Dutch, English, Dog Mom. (She/her) #ActuallyAutistic, 💍❤️ 9 years and counting!

    Job: Audio-Visual Specialist (local news, video's, teaching interns) #AdobePremierePro

    What I like: #Ocarina #Ukulele #Otamatone #StarTrek #Tamagotchi #Crocheting #ScienceFiction #TheSims4#Plants and a lot more!

    Things I also talk about: #EhlersDanlosSyndrome #WheelchairLife #Disability#Dysautonomia

  7. Sleeping with a cpap mask is not easy.

    I've tried for 4 nights, but I keep removing the (full face) mask because I can't fall asleep.
    I'm gonna give it a month, though. Or longer if there's any form of progress. I will keep trying.

    Tips to fall asleep with it on are appreciated.
    #cpap #osas #sleepApnea #sleepTherapy

  8. Airfit F30i

    That's my new CPAP full-face but under the nose mask. Also the tube connects on top of the head, making me struggle less with it being in the way I hope. Also, I can wear my glasses with it!

    Does anyone else have an experience with this one? Do you like it? #Resmed #Cpap #Osas #airfitF30i #sleepapnea #NEISvoid

  9. Ps, I managed to fall asleep with my full face cpap mask on! 👍🏼 kinda proud of my usually very difficult body and mind for just accepting it this soon.

    I'm nowhere near sleeping through the entire night with the cpap on, but it is progress (?)

    #cpap #osas #sleepapnea #sleepapnoea #NEISvoid

  10. I've heard that the temperature in the bedroom shouldn't be below 16 degrees Celsius when using a Cpap machine...

    But with these gas prices, that's a huge problem. It is often way below that in our bedroom.

    What happens then?
    And can it he helped somehow?

    #Sleepapnoea #SleepApnea #Cpap #OSAS #NEISvoid

  11. Getting my very first cpap tomorrow for sleep apnea and any tips from users are welcome!!

    (Yeah I'm kinda scared)

    They're coming to my house tomorrow to try masks and all... what do I need to do, ask, try, etc?

  12. Getting my very first cpap tomorrow for sleep apnea and any tips from users are welcome!!

    (Yeah I'm kinda scared)

    They're coming to my house tomorrow to try masks and all... what do I need to do, ask, try, etc?

    #NEISvoid #EDS #SleepApnea #cpap #cpapmachine

  13. Getting my very first cpap tomorrow for sleep apnea and any tips from users are welcome!!

    (Yeah I'm kinda scared)

    They're coming to my house tomorrow to try masks and all... what do I need to do, ask, try, etc?

    #NEISvoid #EDS #SleepApnea #cpap #cpapmachine

  14. Getting my very first cpap tomorrow for sleep apnea and any tips from users are welcome!!

    (Yeah I'm kinda scared)

    They're coming to my house tomorrow to try masks and all... what do I need to do, ask, try, etc?

    #NEISvoid #EDS #SleepApnea #cpap #cpapmachine

  15. CW: COVID, again. How screwed am I?

    @ZebraOnWheels There's a degree of separation in there with #COVID, so even without masks, there's no guarantee of "screwed". Masks lower the odds, though the degree depends on the type of #mask. If you're really worried, get yourself a #P100 #elastomeric mask, such as a #GVSElipse, and fit test it (you only need a portable #nebulizer and a bottle of #bitrex, or even #SweetAndLow)

  16. CW: COVID, again. How screwed am I?

    @ZebraOnWheels There's a degree of separation in there with #COVID, so even without masks, there's no guarantee of "screwed". Masks lower the odds, though the degree depends on the type of #mask. If you're really worried, get yourself a #P100 #elastomeric mask, such as a #GVSElipse, and fit test it (you only need a portable #nebulizer and a bottle of #bitrex, or even #SweetAndLow)

  17. CW: COVID, again. How screwed am I?

    @ZebraOnWheels There's a degree of separation in there with #COVID, so even without masks, there's no guarantee of "screwed". Masks lower the odds, though the degree depends on the type of #mask. If you're really worried, get yourself a #P100 #elastomeric mask, such as a #GVSElipse, and fit test it (you only need a portable #nebulizer and a bottle of #bitrex, or even #SweetAndLow)

  18. CW: Medical ableism, fatshaming

    "How's your depression and anxiety?"
    - "I don't have those."
    "You don't?"
    -"No..?"

    "Okay, how's the diabetes?"
    - "I don't have diabetes either."
    "We should check your blood sugar levels".
    - "No, I'm here for my sleep apnea."

    "Oh right... How's dieting & losing weight going then?"
    - "It's not".
    "Why not?"
    - "because I can barely eat or exercise as it is. Keeping my body nourished is the challenge here."

    Actual conversation just now.
    #EDSlife #Ableism #SleepApnea

  19. People who've got their life together: "we're setting up the Christmas tree! 🎄⭐️"

    Me, obviously autistic and disabled in a messy house because I can't cope and nobody helps with anything: "I'M NOT ADDING MORE CLUTTER!"

    #ActuallyAutistic #Disability #EDSlife